Wednesday, July 11, 2012
The Laser & The Type One
I've got alot to say about the awesomeness that was Friends For Life...but the most important thing to take care of (post-conferance)was a follow-up with my eye doctor. (each year, they offer a pretty in-depth screening..photographing everything & giving you pics to take home with you. This year, they used a new piece of technology that photographed the thickness of the retina...& detects any "air pockets" that could mean future vessel issues) Well,last fall (in the final weeks of pregnancy)a floater popped up in my right eye(duly freaking me out)..& it wasn't anything significant, just related to age. I just had to learn to live with it. Which I did. However, this year's FFL eye scan revealed complete clouding of my right eye lens & they recommended going back to the eye doctor. (yet again)
So I did that. I really like my eye doctor, he looks like Brad Pitt's (younger) brother. (and he doesn't rip into me about my current a1c) Dilated up,and he spent like 3 minutes looking around, leaned back,and announced that the R eye definetly needed that laser (the left eye isn't to the point of occluding vision yet). I guess since the floater occurred,I've just learned to live with the not-so-sharp vision.
This kind of laser burns a hole through the "sac" overgrowth that obscures the lens. (months/years after cataract surgery) It isn't D-related,& it supposedly isn't painful.However,it is a procedure (and thus,had to be scheduled for "Procedure Day")& like anything else eyeball related,they have to give you a list of (extremily rare) scary potential side effects.(and now I see why you wouldn't want it done unless the eye was completely clouded) I have hope that it will clear up the cloudiness in that eye some. (which I had assumed to be from floaters) It isn't exactly like having cataracts was,because I was stone cold blind from those,& its only noticable in that one eye. Anyway, I'm ready to just get this done...& hopefully, it will help. Once that eye is done, the problem won't reoccur in that eye.(there's the other one sometime down the line, to be dealt with then) Virtually everyone who has an IOL implant for cataracts has to get this laser done..so I don't feel like its my fault or anything.My retinas, thankfully, are still doing fine.
Wednesday, June 27, 2012
Saturday, June 23, 2012
A Few Good T-Cells
Many people with diabetes (myself included) fight the continual auto-immune wars.
Yes, we're hot (autoimmune) messes. Type 1 diabetes, celiac disease,thyroid
disorders,etc.etc.etc.

I imagine my thyroid cells like champions of yore (perhaps the Spartans and their Battle of
Thermopolae) , defending that pass, down to the last cell. Or perhaps those
t-cells that currently do
battle against my thyroid aren't of the same caliber/brutality as the ones that
finished off my islets. For my thyroid has been dealing with this onslought for
about 14 years now...concurrently with my diagnosis of type 1 diabetes. I've been
off/on Synthroid several times,pregnancy tends to increase the "needing help"
factor,but it keeps a lickin' and keeps on ticken.' My Endo (very much the thyroid
person, she is convinced all T1's are headed for being messed up in that dept.)
keeps watch over it with a wary eye...it's anyone's guess when it will die for
good.) I'm not really worried about it,when it happens, it happens,and its probably
the easiest organ function to self-regulate.(pop a daily pill)
Family Fun Fact: there's an additional autoimmune disease prevalient in my family.
Rheumatoid Arthritis is it's name, and both my Grandma and Mom had/have it.
It's a very genetic disease, and much as I don't like to think about it,it's
probably coming for me. Now that I've A. passed 30 B. survived pregnancy, for the
past couple of months my joints have been stiff/hurting. Ignoring it/doing more
exercises/self-medicating/etc. hasn't really improved the situation, so I went to my
doctor for some screening bloodwork (and checking for anything else, like Lyme
disease). Most of the time it shows up after kids (like 40+), but I think that it'll
probably go after me early(given that I don't intend to have 6 kids and spend the
majority of my 30's pregnant). Pregnancy is a state of immuno-comprimisation, so
that's why I think whatever's going on has waited till now to strike. If I do have
another auto-immune disease,it's going to be tough to deal with(LEAVE ME ALONE,
DISEASE). Diabetes is one of those things that you hope you can live a semi-healthy
long life with,but there's not much comfortable about a progressively debilitating
disease. (Plan B: go ahead and have six kids so that they can take care of me when
I'm too arthritic to care for myself & my husband, being 13 years older then me, may
not still be alive)
I really, really, hope I'm wrong,even Lyme disease sounds like a good alternative.
(easily treatable, end of situation)
Tuesday, June 12, 2012
The Girl in the Plastic Bubble*
(this is as bubble-ish as I can get us. I'm not a Photo-Shop Pro)
Sometimes it feels like we live our lives in a plastic bubble.
"Don't eat that."
"Exercise."
"Don't live alone."
"Keep your a1c under 6.5, and your risk of complications will be seriously decreased."
"Be sure to floss/brush/get regular checkups/never cut your toenails yourself/don't go barefoot/don't procreate without permission/don't drink more then 2 drinks/blahblahblahblahblah..."
That list goes on. We are, in the eyes of the media, healthcare profession, and the general public...a fragile species,that needs to be sheltered from the big bad world. (that will kill us) Our plastic bubble (of rules and regulations) will keep us safe.
But the thing about plastic bubbles is, you can't stay in them forever. Just like John Travolta's character had the yearning to rebel & go live life on his own terms,(regardless of how scary that was) we have to let diabetes conform to our lives...not the other way around. We can't live in a hospital (above and beyond the fact that you'd not be living very long in there anyway, with the rate of iatragenic infections) and reciting of the mantra "What would my Endo Do?" (in said situation)doesn't always jive with what we want. You've got to balance life with diabetes & keep on keeping on.
Run marathons.
Have babies.
Go be a world-class surgeon. (or firefighter, chef, Indy race car driver, etc.)
I am not a girl in a plastic bubble. I am not "fragile", to be lumped in with a million other PWD you may have come in contact with. I am unique,
on my own journey & not about to take the opinion of your brother's girlfriend's mom's first cousin-once-removed opinion about my disease. And till the day I die, I won't be defined by the lack of a functioning organ.
*(If you've ever seen the movie "The Boy in the Plastic Bubble"...(starring John Travolta)you'll have caught the reference.)
Saturday, June 02, 2012
Confessions of a Diabetic Mommy: The Top Eleven
#1 My child is witness to the sprouters, sprayers, gushers, finger pricks, pod changes, dexcom changes,and simeraly gory D-Acts 24 hours a day, seven days a week. At this age it shouldn't be upsetting,but I don't know, I'm probably scarring him for life (and setting him up for many future therapy sessions). I know toddlers definetly don't like seeing blood(I once checked my blood sugar while baby-sitting one and she started screaming, at top volume). He just smiles, and enjoys looking at his momma (probably the only time in his life he'll enjoy doing so).
#2 Our first family vacation will be a Diabetes Conference. (and likely many more) How utterly geek-y and appearingly not-fun is that? (it is actually very fun, but a normal person would probably pity the poor little soul) It's Orlando, it's summer...so there's not just the conference going on.(although he's rather too young to do anything this go-around)
#3 Sometimes, when I'm especially sleep deprived,(or low) I'll ask him "Are we low?", drink a juice box, feed him, and go back to bed. Low=cranky=feed both of us, in my mixed up brain. And if I'm not low, I'll wake up later with a high bg. (he isn't D, or hypoglycemic,and I'm very grateful for that)
#4 Sometimes (when I'm low) I'll drink the juicebox while he screams to be fed...and feel like the world's worst mom. (Dear Passersby: there's a reason I'm staring blankly at my screaming child, I swear there is. Don't judge unless you've been there)
#5 Test strip bottles make excellent rattles.
#6 Pod-y and Dexcom sensors are very tempting to little fingers. (which like to yank and grab anything and everything)They don't get anywhere near his mouth, however.
#7 I still leave test strips at random spots around the house..I need to d-proof the place, before he starts to crawl. (don't want him to be eating test strips!)
#8 Most of his friends will probably be connected to the DOC/D-World (in one way or the other). Eh. (not bad..just weird)
#9 He loves looking at my lighted Dexcom graph...and pretty much anything else with a light.
#10 I've already dipstick-checked several of his super-saturated diapers for ketones/glucose. Neurotic mother that I am, if he is going to get diabetes,I'd rather be knowing sooner rather then later. No, his kidneys just work well (and its summertime). I will not do anything invasive,& I'm not going to make his childhood unlivable, I'm going to let him be a kid. (and I'm also not going to do the Trial Net Study, because that would be even worse)But I am going to be vigilant for the signs.(should they occur,knock wood that they never do)
#11 I've wondered if a PWD had a low while locked in a room with nothing but a breast pump and a glucose meter,could they drink the breast milk (or would the act of extracting it make them even lower) Milk really doesn't have enough carbs to raise one quick enough,but its a rather fascinating concept...that you could save your own life.
I hope we don't screw up our child too badly.
Tuesday, May 29, 2012
Black
241. Probably have ketones,but improved over 12 hours ago, as my blood sugar went from 155 to 600+ in a matter of hours. (I'd eaten the routine breakfast of oatmeal & bolused appropriately) But it was a new pod,& not a good one,as I very shortly found out. Being greeted by that HIGH was a freak-out moment of epic proportions,the last time I've had one of those had been at least 6 years. I took a shot,& rechecked an hour later. Still high. I do not know what to do with a number I can't see,so I packed up the Bairn & we went to the ER,which resulted in a 525 bg at triage(I felt stupid,as I was obviously coming down). Cue stomachache. Blood sugar dropped to 404 by time of being seen,IV fluids & Zofran & 10 units later was 202 & discharged with orders to call Endo. tomorrow.(not in DKA)(Wee Bairns dad picked him up & took home,many hours before.Wee Bairn thought it was a very interesting place & charmed everyone he came in contact with.)
I need Zofran,& I need a listening ear(on my blood sugars) & a shoulder to cry on,words can't express how much I hate diabetes right now.It sucks.
- Posted using BlogPress from my iPhone
Sunday, May 20, 2012
Dblog Week: Hero (II)
Once upon a morning dreary
As I woke up, dragging wearily
Diet Coke was there-for me
And life was all that it should be.
It's not easy having D
Even worse to live with me
Diabetes ups and downs
Tic Tacs,wrappers, Almond Mounds.
Have I ever said that you're my hero?
Crazy, crazy, stupid lows
The one whose arms still hold me tight
Through my blurry, shaky sight.
Bills that stack upon the chair
Frequent doctors, frequent care
There is no break, there is no cure
The way things are, is how they were.
Truly on this ride called life
The highs and lows, the joys and strife
Interwoven with disease
Nothing really comes with ease.
To my wonderful type 3
I pledge to (try to) keep my a1c
Against it's bad effects assuaged
Well preserved,into old age.
Have I ever said that you're my hero
The only one who loves me so
You're everything sweet at 60 mg/dl
As I'm scarfing sugar pills.
(to the hero's in your life...make sure you appreciate them!)
Saturday, May 19, 2012
Dblog Week: Saturday Snapshots
to the Diabetes 365 project, let’s grab our cameras again and share some more d-related pictures.
Post as many or as few as you’d like. Feel free to blog your thoughts on or explanations of your pictures,
or leave out the written words and let the pictures speak for themselves.
Coasters.
I don't need no stinkin' control.
Mama, I think you're low.
But sometimes the stars aline.
A better day.
A Rattle!
We CAN eat these.
The Back-up Plan.
Stockpiled.
Yes, it does.
Screen of Death.
Mac-Gyvered.
Can I get a repeat? (on the last 24 hours)
Fondly dubbed "The Cockroach" by my loving spouse.
I love to bungee-jump.
A day in the life.
(don't leave home without it!!)
Friday, May 18, 2012
Dblog Week: I Want You to Know
Today let’s borrow a topic from a #dsma chat held last September. The tweet asked “What is one thing you would tell someone that doesn’t have diabetes about living with diabetes?”. Let’s do a little advocating and post what we wish people knew about diabetes. Have more than one thing you wish people knew? Go ahead and tell us everything.
Diabetes isn't about the destination, it's about the journey. And that journey just happens to coincide with this little thing called life.
It's there when I roll out of bed in the morning.
It's there when I'm running errands.
It's there when we're out with friends at an all-you-can-eat buffet.
It's there when my car breaks down on the highway & I'm down to my last test strip & I haven't eaten in who knows
how long.
It's there on your wedding day.
It's there when you're in labor,and that jello you ate just came back up.
It's there for a big test, a first kiss, a broken heart.
It never goes away. And it never takes a break. And like the wind, it blows wild and free...it does not like containment or predictability & will come back to smack you in the rear each and every chance it gets.
I've lived with it for 13+ years,and I don't know everything. I'll continue to learn and adapt till my dying day, which hopefully won't be because of diabetes, but I can't say for sure that it won't be. Because with this disease,even if you think you have it "controlled", just one bad series of events can kill you. The flu. A bad hypoglycemic event. Running out of supplies in the middle of nowhere.
So if you do have someone in your life with diabetes,I would encourage you to try and be more understanding & supportive. Diabetes is not a "just do this and you'll be fine" disease. It takes a toll, both mentally and physically. No one has diabetes "figured out"...not your doctor, not the diabetes gurus, & not you.(or me) Your diabetes is not my diabetes, and we must manage it different ways..due to the circumstances in our lives. But one thing I know,diabetes should fit into one's life, not the other way around.
Thursday, May 17, 2012
Dblog Week: My Dream Device
Today let’s tackle an idea inspired by Bennet of Your Diabetes May Vary. Tell us what your Fantasy Diabetes Device would be? Think of your dream blood glucose checker, delivery system for insulin or other meds, magic carb counter, etc etc etc. The sky is the limit – what would you love to see?
As I closed my eyes,preparing to immerse myself in the deliciousness you see above you, my brain was busy SWAG'ng & calculating & attempting to pull off a decent blood sugar 2 hours out. And then I thought: how great would it be if I had a machine that could magically tell me the carb count of any food on the planet...& how units of insulin(square,dual & over what time frame) I should mainline to pull off that magical straight line on my Dexcom? I'd call it the "Carbomatic". So much of diabetes control is 100% centered around carbs.(& knowing them is half the battle) It might sound like some sort of Artificial pancreas, but diabetes encompasses carbs,exercise,meds,stress,etc...not just carbs. I would love a machine that would figure out my meals for me...the readout would look something like this:
Spaghetti: 66 carbs
You can bolus 6.6 units,5.5 now & 1.1 over 30 minutes
At 1800 hours soothe your screaming baby for 30 minutes or do 15 minutes
Of vigorous walking
Check blood sugars again at 1900 hours.
Because I can be really bad at guessing the carbs in foods,even though I have the basics down it would be nice if it were less of a guessing game.(ah,the joys of playing Russian Roullette with your health)
- Posted using BlogPress from my iPad
Wednesday, May 16, 2012
Dblog Week: Let's Do It
Yesterday we gave ourselves and our loved ones a big pat on the back for one thing we are great at. Today let’s look at the flip-side. We probably all have one thing we could try to do better. Why not make today the day we start working on it. No judgments, no scolding, just sharing one small thing we can improve so the DOC can cheer us on!
What can I possibly do better with, as it pertains to my diabetes care? Well, there's a never ending list in that regard...but the #1 shortcoming (and the major contributor to my higher a1c) is my propensity to slightly underbolus food. Sometimes a little, sometimes alot. It has its roots in my past experiences of some pretty horrible hypos, some of which would go on all day (and I would require very little insulin or none at all for that day). When 0.1 units of insulin drops you a whopping 90 points (like it did one time),you tend to develop some insulin-phobia. This really doesn't happen anymore,but I still get times when I'm extremely sensitive to insulin. I realize this is an irrational fear, because most of the time that bolus is precisely what I needed to take but you can't always convince yourself of those things. And it drove my Endo very, very up the wall. (over the course of my pregnancy) ("140 is too high. YOU NEED TO TAKE THE WHOLE BOLUS AND BE UNDER 100.") It's also because I never stay 80, I always drop to 50 and have to treat the resulting low. Nowadays, even 180 sounds just fine to me.(treating lows are a major pain in my already busy schedule)
I guess I could compromise with a "to aim for" range of 120-160. (and go back to pre-bolusing) I don't need perfection,but if I take that bolus as I'm supposed to (and check after, to catch any impending lows) it really will result in better control. But as any with mental issue, it's a lot easier said then done. (changing years of hardwired behavior takes professional help, sometimes)
Tuesday, May 15, 2012
Diabetes Blog Week- One Great Thing
Today's Topic:
Living with diabetes (or caring for someone who lives with it) sure does take a lot of work, and it’s easy to be hard on ourselves if we aren’t “perfect”. But today it’s time to give ourselves some much deserved credit. Tell us about just one diabetes thing you (or your loved one) does spectacularly! Fasting blood sugar checks, oral meds sorted and ready, something always on hand to treat a low, or anything that you do for diabetes. Nothing is too big or too small to celebrate doing well!
(photo courtesy of Flikr-LilyWhitesParty, Creative Commons. Mine is probably twice as big, and 3x as stuffed)
Be Prepared. -Boy Scout Motto
If there's one thing I've learned, in my 13+ years of living with diabetes, is that there is no such thing as being over-prepared (for every possible scenario diabetes can throw at you). It was a lesson learned by flirting with disaster on several occasions,& it has made me into a person who can't just hop into the car with a light little handbag containing the bare essentials.No, I must come prepared for the possibility of Armegeddon (with the handbag containing the following(at the bare minimum):
-2 juice boxes
-roll of glucose tabs/smarties
-PDM (blood glucose meter) case/lancing device
-spare POD, insulin vial/syringe
- 2 or 3 additional test strip vials
- Wallet/cash/change(if I do need to get something else)
-a can of diet coke
-gum
- granola bar, crackers
- cellphone
- earbuds
- water bottle
-coupon organizer
-tube of lotion
-tube of hand sanitizer
-chapstick
- Kleenex
- sometimes my E-reader
-reading glasses
-sunglasses
-various and assorted papers
-medications
As you can imagine, this can get quite heavy to lug around but there is a security in having the stuff with me.(as well as having the honor of being the go-to person that everyone asks for "stuff" that they've forgotten) Even a nasty low can be knocked back into submission without the aid of glucagon, etc. (some of the other stuff is just common sense,such as the extra D-supplies (because if an infusion set or pod can fail, it will fail) One should be prepared for at least several days (D-wise), in my opinion. I don't live in the middle of nowhere (this area is very well populated) but the traffic jams make getting around quite a headache. (at times)
Now I just need to extend that organization to other areas of my life. (like the mess in the basement...sigh)
Monday, May 14, 2012
Dblog Week: A Blog,Bookmarked
Today's Topic: Find A Friend - Monday 5/14 Link List.
It seems the most popular thing about Diabetes Blog Week is that it helps us find blogs we weren’t reading yet and connect with some new blog friends. With that in mind, let’s kick off Diabetes Blog Week by making some new connections. Think about the d-blogs you read that you think we may not know about and introduce us to one that you love!! Let’s all find a new friend today! (Special thanks to Gina, everybody’s Diabetes BFF, for helping me title this post!)
Ever since discovering it on Six Until Me, I've enjoyed reading BigFoot Child Have Diabetes a blog by a parent of a CWD. It's a different writing style then the traditional blog and the author is hilarious.(I don't read it first thing in the morning, lest I shoot Diet Coke out my nose as I'm feeding the baby)I encourage you to add it to your blog feed (if you haven't already). It puts some humor in my day.
And on that note, you can now see why I'm not the person to pick if you need a glowing eulogy, recommendation, etc. Gushing is not my thing. What I have to say, I'll say once (twice if the situation merits it) and beyond that,I don't think it needs repeating ad nauseum. (quality speaks for itself)It really is a great blog though.
(come back tomorrow for a blog post that isn't quite so pathetic as today's has been)
Sunday, May 13, 2012
Friday, May 04, 2012
Mr. Hypo is (not) Your Friend: A D-Myth, Debunked
Friday, March 16, 2012
The Mom Files: Guilt 101
I never felt like I was creating a life as much as I did that I was destroying one.
And there,in a nutshell, was 38.5 weeks...the whole deal. It wasn't the heartburn,nausea,sciatica,45 lb weight gain, random migraines,shortness of breath,inability to bend over,15 daily trips to the restroom, finger & toe swelling...or the diabetes angle(12+ daily checks,tripled insulin daily dose,skating the edge of constant hypos,1-2 x/week doctor appointments,1-2x/week emailing blood sugar logs)...or the giving up of alcohol,lunch meat,soft cheeses,any painkiller not beginning with a T,hotdogs,80% of daily Diet Coke intake,caffeine....exercise,any truly comfortable sleeping position( I don't remember the last time I slept for 7 straight hours).And that is a relatively "good" uncomplicated pregnancy. (What it would be like to be bed-bound the entire time I just can't imagine) But even that isn't that much of an issue, if you are fairly certain your kid will turn out ok. I never had that assurance,& for the entire pregnancy it was shoved in my face that if something happened,if anything happened,it was probably due to my sub-par a1c. That is why I didn't enjoy my pregnancy..the overwhelming guilt about everything, 24 hours a day. The fact that my baby doesn't seem to have any residual ill effects is nothing short of a miracle(& boy,do I know it..at no point during my pregnancy did I have an acceptable a1c. Better,yes,but not good.)
This much I know, feeling like you are hurting another human being is the worst feeling ever( I know it's not my fault,& that's just the nature of the disease to fluctuate). And post-pregnancy,it just leaves you really ticked off at the disease(even with excellent control,some babies still have low bgs..& the temperature issues were not due to the diabetes but still I'm ticked off at it) Just gotta get all this out...it's the rantings of someone who still can't quite believe what it was actually like.
- Posted using BlogPress from my iPhone
Monday, March 05, 2012
A Baby Lullaby
Hush, Little Baby, don't you cry
Daddy's gonna buy you a diamond studded rattle
If that rattle goes and gets stolen
Daddy's gonna pay for your entire private school education
If that education leads to being bored
Daddy's gonna buy you a Nintendo Wii
If that Wii doesn't get you sufficient exercise
Daddy's gonna buy you a BMX
If that BMX results in a broken leg
Daddy's gonna buy you a $15,000 surgery
If that surgery is sucessful
Daddy's gonna buy you a Mercedes Bentz.
If that Mercedez Bentz leads to jail
Daddy's gonna spring & pay your bail.
If, by then, you have a gal
Daddy's gonna pay for the wedding
If that marriage produces kids
Daddy's gonna lose what remaining hairs he has.
(Daddy will also have zero of an estate to bestow)
Kids are expensive,even if one isn't a millionaire...which we're not.(FTR) First kid's always get somewhat spoiled anyway,just by virtue of being the first.
Tuesday, February 21, 2012
The Check Up
As addicting as babies are,
I don't plan to repeat the experience for awIhile. Pregnancy was a time of great physical & mental stress & my brain needs healing,as well as my body. I ate,slept,& breathed guilt for 10 months & it didn't magically disappear the minute I delivered. I really appreciate the normal hum/drumness of being not pregnant now,& diabetes wise,my control got much better(funny how that happens,when you're supposed to be in great control DURING,not after). I am much more comfortable with taking huge amounts of insulin/prebolusing then I was pre-pregnancy,& I think that'll work to my advantage on the next a1c. I still have alot of conflicting feelings about said pregnancy..& I know that if I ever have any more,there are things that I'd do very differently. I think that having a baby in the NICU for even a minor reason makes you aware of how much worse things really could have been,& how grateful you are when they get out happy & healthy.And that's what it's all about,even at 3 am when they're crying to be fed & you're dead to the
world but then they smile at you & suddenly the night is not as dark anymore. He's the cutest thing since, well, Sep.1, 1981...
(haha)
- Posted using BlogPress from my iPhone
Saturday, February 18, 2012
Remembering
- Posted using BlogPress from my iPhone
The Story of a Birth: Part 3
NICU's can be scary places. And it does something to one's heart(read:take out,pulverize,put back into chest) to see one's baby in there. You were so little,(7 lbs is little, in my book)had an IV in one arm and a mass of heart leads under your sleeper tracking your heart rhythm and breathing rate. (both of which are pretty variable in a newborn) And by highly variable, I mean that the respirations can go from 20 to 70 over the course of 2 minutes.(it looked like a CGM on steroids) It took some getting used to, not freaking out over that monitor readout.(or the fact that it went off every 10 minutes just about) But your heartbeat is always steady, and true, (in contrast to some of the other babies, who would throw PVC's really frequently)and that was comforting, in that great time of uncertainty.
On Wednesday of that week, you had your IV removed..after it was clear that you didn't have an infection/blood glucose was holding steady. You didn't much like that,& I can't blame you(IV's aren't fun for anybody). You cried.(and I think I did too) Your two little heels had both been pricked(multiple times) for blood sugars,& I know it was necessary but seeing those little scars just made me hate diabetes all over again for putting you through it.
On Friday, your temperature finally began to come up...so they started turning the temperature down on the incubator/warmer. It was a long, long weekend full of advances/setbacks...to be able to turn the temp down by one degree,the underarm temperature had to measure at least 98.6. If it was 97.5 or below,they had to turn up the temp again.(they measured temp every 4 hours) Your temperature bounced up and down (despite wearing two layers,and 1-2 blankets) so the settings on the warmer simerally bounced up and down and I had doubts that you'd ever be warm enough. But you finally did,and by Monday afternoon you were all the way down to room temperature & ready for the 24 hour crib test (maintaining a 98.6 temp in an open crib for 24 hours).And by Tuesday afternoon,you could be discharged/come home. That was a little bit scary,bringing you home for the first time but the staff assured me that you would likely have no problem with future temp regulation, at that point.
So we took you home,and by that evening my feeling blah's had progressed to chest pain& an 103 degree fever.Fortuantly,my mom was there for the week (two babies to take care of) or I'm not sure I'd still be here. Whatever I had fortuantly wasn't contagious,(chest Xray was negative for pneumonia but the pulse oximetry reading was at 95%,earning me a round with the doctor's office nebulizer and a prescription for antibiotics and albuterol) but put me out of commission for the next 5 days. You,fortuantly, were unaffected...you continued to eat,sleep,poop,and grow. (as it should be) You had your first appointment with the pediatrician & clocked in another 9 oz weight gain. (and thumbs up on the pediatrician,I love her to death) And, as of 2 days ago...you now weigh over 9 lbs. I really hope you can stay healthy for a long,long time because the pediatrician also scared the socks off of me talking about what happens if a baby under 3 months old gets a fever (it is a huge deal),to that end,I've turned into the overprotective,do not want to take you out of the house at all,mother.(trying to protect you from all the nasty germs)
Parenthood is a work in progress...please be patient with us.
Love,
your Mommy
Thursday, February 09, 2012
The Story of a Birth: Part 2

Minus the baby. Because a half-hour after moving in, a rechecked blood sugar was a 32 (normal, for a baby, is above 40) and a formula feeding only resulted in a 28, so the baby was whisked off to the NICU for blood sugar observation. (and a subsequent Dextrose IV) I couldn't go anywhere, because I was tied to the bed (literally) with compression leg thingies and that urinary catheter (for the first 24 hours). In my mind, I didn't expect him to be there that long and it was somewhat relieving that they were monitoring him while I could get a few hours of sleep. And sleep was odd, because for the first time in 7 months, I could do it on my back & do so with the aid of painkillers that actually worked. Attempting any sort of movement was just as difficult as during the later part of pregnancy. I was plenty hungry but only got soft liquid-ish stuff for the first 24 hours(per protocol). In the afternoon, they took my IV out & I re-inserted my Ominipod system after another doctor showed up,poked around,and said that she trusted I knew what I was doing in that regard. (not really,but I could see that she didn't, so I figured strict blood sugar management was not a priority anymore) I cut my basals by about 66% across the board,and my bolus ratios by 50-75%. I didn't want to be either too aggressive or too passive,but clearly diabetes was still there, it hadn't gone anywhere.(some people are lucky enough not to need any insulin at all,after delivery) That worked well, for the most part.
The next morning, they removed the urinary catheter/compression thingies and told me to get out of bed. So I got out of bed,took a shower,and crawled right back into bed.(moving was very painful) My parents visited,and we went down to the NICU where they said that although the baby's blood glucose was now normal,his temperature was now too low so he'd have to stay in the NICU to be monitored for that.
Tuesday passed,and Wednesday as well.By Wednesday evening,it became obvious that I was going to be discharged & the baby wouldn't..his temperature just wasn't coming up. To add to this, his bilirubin levels rose (so they did about a day of photo therapy),and his platelet count dropped,so they were concerned about infection & started him on antibiotics. The blood culture from that was negative for infection.(but they tend to give antibiotics when there is any risk at all for infection)
Wednesday,my post-lunch bg was 276 and my OB nurse freaked out, calling in a CDE. This CDE was exceptionally short on bedside manners as well & the resulting conversation was a waste of both mine, and hers, time. I don't think she quite understood the concept of a POD (like an infusion set) going bad. And she sprinkled in too many examples of other patient's "brittle diabetes" horror stories. (I don't like that term,and I don't believe in it)Five minutes in, she answered a phone call from a doctor
(dealing with someone's very high bg)and neither one of them treated the patient with much respect.This lasted for about 15 minutes,during which time she didn't go off/handle it privately...it was all in front of me.
Fun times.(I needed another pain med dose after that conversation) I demonstrated to my nurse how to change a POD, she'd never seen one before.(just regular insulin pumps) And that was pretty neat, because she asked lots of questions/was genuinely interested in it all.(her husband is a type 2)
Thursday was a black,black morning..for I knew that my 4-day stay in Paradise was coming to a close, the insurance company sure wasn't going to let me stay anymore $2000+ days. Things were healing well,& I had no problem moving around/walking at this point, so it meant that I'd be discharged(probably before 10 AM). At 4:30 am, I woke up & started bawling..and that went on through the 5:30 AM vampire blood draw. At 6, Dr. Tired-OB-Of-the-Week-Before showed up.
"Why is your blood glucose so high?!" (my pre,and post lunch bgs had been hanging out in the mid-200's)
I shrugged,trying to hold it all in.
"Because you're eating Crap Food-what is that,Cheetos and Pepsi?" he poked at a lone bag on the bedside table.
Charming doctor.
"That's DIET Pepsi." (thank you very much!!!!and that's not Cheetos, that's a bag of candy, which I'm using for low blood sugars. Not that you care.)
"So how are you doing today?"
I burst into tears.
"What's wrong?"
"My baby's still in the NICU & I just can't go home today."
"He won't be there for long-he just needs a little extra time,the low blood sugars probably set off the temperature issues. He's not seriously ill,he'll be out soon."
(I knew that,but just the fact that he's in the NICU at all has made me a basket case & you're just not getting it, are you? And there's no "OUT" in sight.)
"I'll discharge you later today-not by 10 AM, so you can stay with him longer,ok?"
(yeah,thank goodness for that small favor)
Therapy time over, he moved on to the next victim/patient. And I resumed crying, until at 8:30 AM my nurse showed up, fed me painkillers and hot tea,and had a lovely 3 hour therapy-cry-a-thon session with my post-pregnancy hormones. After that,I was a bit more ready to deal with the situation as I could see that it wouldn't do my baby any good if I didn't get well myself. It still wasn't ok that he was still in the hospital, but I could at least walk out the door myself without constantly sobbing.I still felt like crying(at the drop of hat,and would do so,quite frequently) Other babies crying (on the floor) also made me feel that way. My job was to get better,and their's was to make him better.
At 4:30, I was discharged,my husband & I went down to the NICU...fed him,held him,etc. ate some dinner, and then went home, where I crashed into bed,exhausted beyond exhausted. Coming home (from the hospital) without your baby never feels right.
Wednesday, February 08, 2012
Saturday, February 04, 2012
Musings of the 3 AM Brain
Would life, as we know it, be easier or harder? (since the theories for managing diabetes are almost as plentiful as the number of cases) Would the Type 1: Type 2 ratio matter...since they are different,& can be treated thus. If there were more type 1 cases, would people get more education:be better informed? (and inform others)
Would we be healthier-would we take matters into our own hands,implement exercise programs, various incentives, etc...or would the vast majority of us continue to ignore what should be done & eat ourselves into a state of morbid obesity? And would insurance companies be any better about covering the supplies needed to TREAT and prevent complications from occuring? And would Congress/etc. get serious about funding various entities to make a cure happen sometime in this lifetime? I mean, we'd all be just one big happy D-family...all of us would want that cure.
And would we finally get rid of this stupid "diabetes blame game" where if you have diabetes (any type) you must have eaten too much sugar or not have exercised enough or been dropped on your head as an infant...etc. Would we stop blaming the patient,& would people stop blaming themselves enough to work towards a state of health?
(In conclusion, I don't think more people getting diabetes is going to improve either the public perception of it/chances of a cure/or anything else. It's just going to cause more suffering. And some days,you just feel like a paper towel against the flood of stupidity,ignorance, etc...nothing you say is making much of a difference)
Wednesday, February 01, 2012
Sunday, January 29, 2012
One Wonderful Day:24 Hours on the L&D Ward
It was the night. The night my life would change forever. (I just didn't know it yet) After eating dinner out (Chipotle & Coldstone Creamery were the winning combo) with friends, I went to bed and ignored my shrieking POD all night till it died for realz at 3 AM. (before it died, I bolused for several hours of basal so I wouldn't have to get up and change it out until 6-7 AM)
And then, the nausea began. Couldn't get back to sleep. About an hour and a half later, at 4:30 AM on the dot, my amniotic sac burst (but not like a water balloon...there was plenty more to come) and the floodwaters gushed forth, over bed, down to the carpet, etc. leaving no doubt that that's what THAT was. Urine doesn't come forth in those quantities.
I looked over at my husband. "That was amniotic fluid, I gotta call the OB-GYN!"
Which I did. Shortly thereafter, the contractions began. And by the time we'd loaded up the car and got to the L&D ward (5:55 AM), another gush of amniotic fluid spewed out, soaking me from head to toe (right through any so called "protection") It was hardcore, this stuff. The nurse gave me a gown, cleaned things up, put pads down on a table, and hooked me up to the monitors while waiting on the doctor. Meanwhile, amniotic fluid just kept gushing a mile a minute. Very tired looking OB-GYN came in, checked, and said I was 4 CM dilated.
"You are in labor." (no kidding?)
Contractions, regular contractions, sped by on the monitor. And not that I ever doubted it (amniotic fluid gushing forth is a pretty good sign) but it was now official, coming from the mouth of the MD. Progressed 2 CM in 2 days.(after staying at 2 cm for about 1.5 weeks)
"Would you like to take a shower?"
I tried, and the nurse tried to help, but the nausea & the fact that I just about broke my kneck slipping on on the water made it a really, really bad idea. In the meantime, two nurses changed the table again and commented on how much fluid I had in me. (great news, it will just keep gushing out of you till the very end) Weight loss from that had to be a good 5 lbs. It just boggled the mind,over the course of seven hours I'd soak the bed 6 times. (setting some sort of record, I'm sure) By 12, I'd been in a L&D room for a few hours, they'd started an insulin/dextrose/saline/penicillin/and pitocin drips, and contractions were getting extremily painful.
(the ever-so-lovely IV cocktail. Regular Insulin, Dextrose, pitocin, and penicillin. Why on earth they needed to have both dextrose and insulin running simultaniously is beyond me, they tripled my basal rate to 3 units an hour because they were also giving about 15 grams of glucose per hour. But it worked out pretty well.)
L&D nurse #1 turned out to be an OB instructor at my college (I've had her for one lecture). So that was pretty interesting, it's a small world. She monitored me for awhile, checking my bg every couple of hours & admininistering several injections of Apidra (via pen) when my bg was 150-170.) going off a sliding scale. Made me nervous as all get out trusting said "sliding scale" but I didn't have much basal on board at the time, so it worked out ok. She also put in the catheter (I was the guinea pig, it was a new type) and said it was a shame I couldn't see how it was done. I dryly agreed "Yeah, really". That was a new experience, because in lab it looked extremily painful, but I was so numb from the epidural that it didn't feel like anything. The anesthesiologist put the epidural in about 1 pm (by 12:15, I was begging for one), and oh sweet relief, just like that the pain was 100% gone. I'm really not sure how people ever go through labor without one. (I became an instant fan of the epidural) My new OB waddled in, (a good 36.5 weeks along herself) and proclaimed me 5 cm dilated. Increased the pit drip.
That afternoon was spent watching John Wayne reruns & waiting for something to happen..and being extremily grateful that I'd eaten so well the night before. Because the next time I'd get real food would be awhile I was confined to bed, so basically I couldn't go anywhere. Ate sugar-free popsickles, jello, and imbibed on ice water & had my blood sugar checked every couple of hours. At 7 pm, I got a new nurse...who surprise, had TYPE 1 DIABETES as well. On a pump, to boot. When she said that, I knew it was going to be a good "rest of labor" experience, she was going to take my diabetes seriously. By 7:30 the contractions were heating up again and I was 8 cm dilated and extremily uncomfortable, yet again. Anesthesiologist came by and gave me another epidural dose and rigged up a pump for me to press, if I felt like I needed more. Which I partook of,quite frequently. Several hours passed,my fabulous Nurse with Diabetes checking my blood sugar (with my lancing device-NOT the hospital one) every hour & tweaking the IV basal and the dextrose flow rate & that annoying blood pressure monitor going off every half hour. By 11:55, my OB was back in (checked, 9 cm dilated, 100% effaced) so she proclaimed,"Let the pushing begin!" So her, NWD, and my husband all hung out in the hospital room (off and on, the OB did have to go off to check on someone else) for the next 2 hours while I huffed, and puffed, and blew the house down. On every single contraction, which came approximently every 1.5 minutes. The thing about pushing, they actually made me lift my legs and put my hands behind the knees and THAT was just as difficult as the actual pushing part (you try doing that when you've had an epidural and your legs are dead the world). There was lots of encouragement "You're doing great! Keep going." but it really didn't feel like I was making any sort of progress, which was confirmed at 2:30 AM. Still only 9 cm dilated. Maxed out on the safe level of pitocin. OB said she suspected the birth canal was too narrow and although I could try pushing for the next hour, if that didn't work I'd need a C-Section. (because my water had broken,there was a 24 hour time limit on delivery) I opted for the C-Section, because I knew that she was right.(and I wasn't going to do another hour of unsuccessful pushing) And then I had my breakdown (being told you have to have a C-Section when you're horrendously sleep deprived & have been in labor for 23 hours is just not fun),a major, major breakdown which the nurse/OB sympathetically dealt with & reassured me that the odds were very low that I'd have an embolism & stroke out on the OR table(etc.) Fear gave way to the pain taking over again & I seriously wished myself dead as the contractions just kept coming a mile a minute. Was prepped for surgery & I just kind of curled into a ball & wished it all over. Was still pretty mad that I had to have a C-Section, so close to the end.
Was wheeled into the OR,rolled over onto the operating table,sat up as the anesthesiologist delivered another epidural dose,& laid back down. The cheerful chatter of the OR staff served as a momentary distraction before the fun began.
"It's a beautiful day for a birthday, it's Elvis Presley's birthday!" (also Steven Hawking's, FTR)
"Really, that's pretty cool!"
"What was her blood sugar?"
"96." (had been between 70-110 for the past 16 hours)
A horizontal slice, and then...
Many hands, twisting my innards like they were playdoh, had me crying out in agony. Lucky for them, my hands and arms were restrained at my sides, because I absolutely would have gone ferral and attempted to rip somebody's head off. I was out of my brain in agony. (they say a C-Section isn't supposed to be painful, & it just feels like "pressure"...well, they are wrong. It was extremely painful,and they can't give you any real pain meds because it will affect the baby's breathing) Anesthesiologist asked if I'd like a general anesthesia but I said no, I didn't want to be all drugged up when the baby was finally born.
An eternity later...I heard him cry.
And then, I cried.
"He's beautiful!"
(which I figured I'd cry, but this was more of the sense of "I cannot believe I actually birthed a live human being" more then anything else)
Little J.B. made his appearence at 3:33 AM on that Sunday morning.(Jan. 8,2012) weighing 7 lb, 3 oz. and 19.75 inches long. They whisked him off, did Apgars, dried/suctioned/whatever, did a blood sugar (50-normal for a newborn) and stuck him over the blue curtain for our viewing pleasure. And then, I cried again (first thought: I hope they can clean him up some more, he looks sort of greyish-blue) and the anesthesiologist whispered sweet words in my ear("I'm going to give you a stronger pain med, now that he's out"). Which I nodded at, but just the fact that they were stitching me up and not yanking on my uturus anymore had improved the pain considerably. Then, it was off to the Post Anesthesia Care Unit where my awesome nurse with diabetes kept tabs on my blood sugar,bleeding,and everything else. I was thirsty as all get out but they would only let me have ice chips.(which I ate a ton of) They put him on my chest & I bonded with him before we all went off to the 3rd floor Post-Partum Unit and darned if I didn't sob again as NWD gave me a hug and told me he was perfect. (It was one of those nights which will live forever in my memory...the kind where you pour out your gut to a total stranger, but they are not "strangers", they are like the twin you never had) I could not have had better care. And I knew that I'd picked the right hospital,THE ONLY HOSPITAL WHERE I COULD HAVE POSSIBLY HAD SUCH AN EXPERIENCE. (sure as certain wouldn't have gone so well at the other hospital) I was at peace.

And that was the first 24 (plus 2 hours)... at time where I was at peace with myself, my child, and the Universe. It was enough, for then. (the next few days would be an 180 degree shift from that)
Sunday, January 15, 2012
Thursday, January 05, 2012
Ice & Chocolate: The Final Week
Yep, I know I've said this before...but it is getting closer to the delivery.
I am 38 weeks, & the induction is scheduled for Wed, Jan.11. I have been convinced that labor is immenant for weeks now.(just don't listen to me, because I don't know what I'm talking about)
News Flash: Contractions are not labor. Painful contractions, are not labor. 2 cm dilated & 50% effacement is not labor. Real labor has you on the floor, writhing in pain. We were told thus, on Monday evening.(dry run to the hospital,as it were) Of course,baby chilled down & only popped a couple contractions the instant I was hooked up to a monitor.(& were duly
sent home) I had regular,painful contractions for two hours prior to that & it wasn't anywhere close to being "real labor." Really confusing,if you ask me.
So,given that there are 6 days(or less) till they do an induction,it is kind of weird to have an actual date. Carved in stone. People with diabetes frequently go into preterm labor & I still can't wrap my head around the fact that here it is,38 weeks later & no pre-eclampsia,baby is normal size, etc. I've still got too much amniotic fluid on board but that hasn't made me go into preterm labor. I'm really ok with going into labor at any point now,but the only thing that seems to be happening is more frequent contractions. No progress on the dilation front. I've heard that you shouldn't have your water broken until you're 5-6 cm dilated because once the water breaks, the clock starts ticking & they'll want to drag you into the OR for a C-Section should you not progress fast enough. As I'd like to avoid that, I'm taking that advice. But I don't harbor any notions that I won't have to have one...& I'm ok with that. No one is guaranteed a complication-free birth. (I trust the guys/gals with the medical degrees)
Current Cravings: Ice, Chocolate,& Diet Minute Maid. (lemonade) It's kind of a weird late-pregnancy thing, I didn't crave these way back in the 2nd Trimester! I've had lots of opportunity to stuff my face with chocolate, at 37 weeks my insulin requirements took a sudden dip and it's still like that-lots of hypos. Just about the time that I finally get it right, I'll probably go into labor & really have a nosedive. It's common for that to happen,as progesterone production slacks off but it's somewhat disconcerting until they reassure you that it's normal. As with everything else D-related,it doesn't happen to everyone.
I am so,so,so,so ready. (over-ready!)
Wednesday, January 04, 2012
2011: A Year, Reviewed
It was a year in which I:
Started Nursing School
Found out I was pregnant
Rafted the mighty Colorado River
Met (& remet) old & new friends at the Friends For Life Conference in Florida
Turned 30
Went to 10 billion doctor appointments
Cried for hours over a 6.5 a1c (my best ever,& the best of the pregnancy!)
Saw my diabetes turn 13...
Dropped out of nursing school,to dream another day
Gained 40 lbs (New Years Resolution=you kind of know what!)
Gained a greater sympathy for disabled/handicapped people's challenges because when you can't do hardly anything for yourself,life is pretty difficult. And I'm one of those people who'd rather fall down trying,then ask for help.
Went to a diabetes meetup (SimonPalooza) in NYC...& felt massively better about my sorry DLife (& everything else,in general). It was refreshing.(& seeing my first Broadway Show was pretty cool too!thanks to Cara R.!)
Here's to 2012,& baby coming SOON.




















