Showing posts with label pumpversary. Show all posts
Showing posts with label pumpversary. Show all posts

Friday, April 23, 2010

April 23, 2001

Nine years ago today, my life changed. (for the better)

I don't have my Minimed 508 anymore,lent it to a friend & presumably, they'll probably use it until it dies. I didn't even know they made supplies for it anymore, but I guess they must.(the person does not want to switch,& it's their choice,I'm glad they're getting some usage out of it.)

I had received my 508 in January 2001, but I couldn't open the box until my insurance company actually approved it. And that took another month. Scheduling a start date was another 2 months, the d-clinic was extremely backed up. Insurance finally approved on Feb.26,2001; but (later) Minimed denied my eligibility for an upgrade to the 511(?) , apparently two days too early to get in on that deal. If I wanted the upgrade, I'd have to pay for the new pump.I was so upset at this that I vowed it would be my last MM pump,it was a great pump but the customer service was non-existent at that company. Like I can control when my insurance company approves something. I never won that battle,& its all water under the bridge now,but they lost me as a customer when they did that.

On the morning of April 23,2001, my dad drove me to the diabetes clinic for pump training.(a parent had to be there,though I was an adult,it was a pediatric clinic)I got set up on the pump, received the new Ultra (which I drooled over..making the quantum leap from 45 sec Accuchek to 5 second Ultra was amazing) while the other trainee(a young teen) screamed bloody murder as the Silhouette was inserted.(yes,sils can hurt,but I think it was just nerves,she stopped screaming when it finally got in) I then gathered up all my supplies,etc.and followed the CDE over to the cafeteria where a younger dietician met me & we did practice bolusing for lunch. That finished, I followed her up to the pediatric ward where I spent the next 24 hours on observation status. My blood sugars stayed like a literal rock the entire night,varying by about 6 points,but when morning came they skyrocketed up to the 300's. That was the day of a class final exam,and I had a presentation to give that evening(an hour away). They finally let me out late afternoon and I barely got to my class in time,but proudly sporting my 508 (in public) for the first time. The one thing I never liked about the 508 was its propensity for the cartridge door to pop open and the cartridge to come flying out(it once gave me an accidental bolus). But otherwise,it was a great pump,& it definatly improved my control. It got me off the Lente rollarcoaster..and not having to stuff down carbs every couple hours helped me lose excess weight.

Thursday, April 23, 2009

Have Pump, Will Travel

8 years, today.(pumpiversary, whoo hoo!)

And I'm traveling to another country this summer, for the first time ever.

England, for about a week.

And Denmark, for another week.

I'm marginally worried about having a serious hypo because I don't know a word of Danish but my hubby's relatives know quite a bit of English,and my hubby knows some Danish so that's really an unfounded fear. Besides, Danes are very intelligent, most speak several languages, of which English is certainly one of them. From a diabetes standpoint, I don't have much to worry about. It will be quite odd, being in another country where I can't understand anybody...unless they take pity on me and switch back to English. I'm trying to learn a few phrases, just because I really need to. My other concern, healthwise, is how I'm going to arrange to get a magnesium tank-up over there. Because going without, is not an option. Nor can I get a double dose prior to the trip, at the max I'm only good for 9 days between them and I start turning into a complete electrolyte mess and doing that in Denmark would be an unmitigated disaster bar none. They are both civilized countries but in the UK, someone is more likely to know what the heck is going on=better communication=solving in an orderly,efficient manner. We all speak English, after all. And making the timing of infusion such that it could be done on the "off" day,we're going through a tour group(while in the UK),and then on to Denmark.

If you think our system is a grand and glorious mess, try cross-country-ing it-I think there is no greater headache. I'm just a clueless American,not knowing as to how to go about this, so first step was to contact a London nephrologist who I'd heard about on a mailing list.
Emailed said London neph, he actually responded and said it was virtually impossible to have arranged via any sort of NHS facility unless it were an emergency.(aka person actively dying) Recommended a private facility.

Which begs the question...people who have to arrange for needed medical services, such as dialysis-how the heck do they pull it off, getting medical care in another country?

The answer came, in the form of another email reply...stating how X hospital would be happy to accommodate my need for haemodialysis (they took the "nephrology services" to mean I needed dialysis) and could I please fill out the 12 page medical report( prescription from physician, Certificate of MRSA/Virology Report medical clearance form,blahblahblah), sign, and MAIL it(faxes= a nono). That's what dialysis patients have to go through. I don't have the energy for that and I'm not on dialysis,I can see why they really wouldn't want to do much traveling(on top of feeling like crud)

Next step, was to the insurance company. That went surprisingly well,services out of country are covered just like in network(country) with the exception of having to shell out the entire cost up front and then be reimbursed. I really hope they don't charge like they charge in the States...a 4.5 hr session at the infusion center costs about $1,800. Of which, 80% is covered until you hit the deductible, then 100% is. Maybe I will have hit my deductible by then. Regardless, it will be expensive. It doesn't matter where you have it, you just have to find a doctor/facility willing to do it. Except the public (aka, what the masses go to because it is free or nearly so) hospitals don't want to do it unless you show up on death's doorstep, in their emergency room, having convulsions. Even if you could pay, apparently.

I still don't know as to whether any other type of physician(over there) came prescribe magnesium infusions, GP's (or endos) over here will not touch that issue with a ten foot pole and instantly refer you to a nephrologist or simply ignore the issue entirely. That is the situation I found myself in, in the middle of last year and I wish never to be in that boat again. You could have convulsions,funky arrhythmias,and collapse on the ground and they wouldn't care. It's a nephro thing and out of their scope of practice=not their problem. Maybe its not quite as stringent over in the UK, since they don't get sued by patients. So I asked him a few more questions regarding it, I hope he responds. While waiting on that,emailed most of the private London hospitals and most of them have responded with stony,dead-end silence(not knowing what to make of this American oddball). But money talks,and I don't see why it couldn't be arranged, why it even matters whether its NHS or private beats me. They get their money,(I get reimbursed) they're happy,all is well with the world. Unless the NHS is like some sort of Veterans Hospital,club members only,all others need not apply.

This is one time when handling diabetes will be the proverbial cakewalk...compared to the other medical issue. Regardless,I'm not going to let either one stand in my way of having a great time-I'm really looking forward to my time abroad!