Thursday, January 28, 2010

That's Not My Name

(with apologies to the Ting Tings)

Sittin' here, as I'm rhyming my song & it's
Not the best, but don't get me wrong cuz I
Still keep thinking, it'll turn out just fine
I'm still me, not just a disease.
If they could just see beyond the fingersticks
Not just a number,to this name
But it reads high, and alas it ends
as they start right in with all the blame..ame..ame..ame..

They call me Su-guh
They call me Sweet Stuff
They call me Splenda
They call me 'betic
That's not my name
That's not my name
That's not my name
That's not my name
They call me non-compliant
But I'm not on some diet
Betty-Bop-Weirdo
Always some dame
That's not my name
That's not my name
That's not my name
That's not my name


The meter drops, and I don't break it's fall
I'm sure all my friends must be appalled
Pick it up, be a good little D
But there's so much more to this deep complexity.
Don't wanna be defined by something so vague
With a rule book written back in the Dark Age
All I really want them to see
That although it's part of me, it's not all I am..am..am..am..

They call me Su-guh
They call me Sweet Stuff
They call me Splenda
They call me 'betic
That's not my name
That's not my name
That's not my name
That's not my name
They call me non-compliant
But I'm not on some diet
Betty-Bop-Weirdo
Always some dame
That's not my name
That's not my name
That's not my name
That's not my name

Are you calling me Sweetie?
Are you calling me Hon?
Are you calling me Sweetie?
Are you calling me Hon?


They call me Su-guh
They call me Sweet Stuff
They call me Splenda
They call me 'betic
That's not my name
That's not my name
That's not my name
That's not my name
They call me non-compliant
But I'm not on some diet
Betty-Bop-Weirdo
Always some dame
That's not my name
That's not my name
That's not my name
That's not my name

Tuesday, January 26, 2010

Down the Rabbit Hole

Last Saturday, I took the TEAS test. It's a 4-part, pre-nursing entrance exam that's required for one of the programs I'm applying to.(not every program requires it) Why on earth they require pre-nursing exams in the first place beats me,because you more then show you're qualified with the transcript,essay,letters of recommenation,etc. but whatever.I brushed up on the math part with the help of my Phd husband (who eats the stuff alive,in direct contast to me) and got to the campus about an hour early. The campus was pretty confusing, there were about 7-10 buildings & no numbers in sight.(to figure out where you were going) Drove around till I found a building with a fair amount of activity going on outside,& figured it might be the place.And that soon proved to be the case,as I met up with other cluelessly wandering test-takers.At 9,we were all duly ushered into the lecture hall & told there'd be one bathroom break,no exceptions.

Guess whose blood glucose was 265? Yeah, that would be mine. This news is not the greatest tp hear when your bladder is in high blood glucose,PMS'ng,spastic mode.

The first section,reading,was a snap.But predictably,by that point my bladder was sending out strong signals.I asked the moderator and she said no.Not unless I wanted to forfeit the remainder of the test,(and see my nursing career go up in smoke)and thus flunk.

Math was next.I tried to focus,too little avail.Rushed the test,& spent the rest of the time repeating "You are hard-core,"(Greys Anatomy reference,when said person couldn't go to the bathroom for 8 hours because they were doing surgery )to keep from going totally beserk from the uncomfortableness.Somehow,I got through it & rushed off to the facilities.Blood sugar was now..289!Took a strong correction bolus,and went back to the test.

Next was Science.Ugh,it was horrible.Much of the stuff I haven't seen since 10th grade bio.That wax definatly a subject I should have brushed up on. The whole thing was beginning to have the vibes of when a 17 year old me almost got kicked out of the ACT for eating a glucose tablet,very high-schoolish.In both content,& utter control by the moderator.
I have diabetes,why do I have to make excuses for taking care of my body functions? I'm a 28 year old adult,who doesn't particurally relish begging for permission to use the restroom,etc. They aren't my healthcare providor & I haven't just had surgury. I didn't check my bg in the room,that would have been like instant dismassal.These people don't know what a blood glucose meter is,they're always thinking "Cheater!" before anything else.Clearly,I should have gotten an exception w/them pretest.I don't like to do that,it's rarely an issue but when it is..it sucks if you don't have something in place.Diabetes rarely plays by the rules.I have told my profs,if my pump is visible just so they know it's not a cellphone but on a state test they really don't care what you tell them,if it's not a documented exception,you're out of luck.I need to remember that.

Language-Vocab was last.That was easy,save 1 or 2 spelling words.(another subject I've never particurally loved)

Final BG:159. Now it's just wait and see, as to how I do on the exam & whether I should bother submitting the rest of the requirements to that school.

- Posted using BlogPress from my iPhone

Wednesday, January 20, 2010

Stick(ing) Designs

In the early days of diabetes,there's a sort of bliss naivite about what it truly entails.A lifetime of pricks,math,and everything else.Like everyone else,you get your fancy new meter,diet log,and commence to stabbing yourself (dramatically) with a syringe to prove to your friends that it really doesn't hurt.(the truth is,it can&will but you aren't allowed to show weakness,without being thought of as a wimp,or pitied)

Time passes,the novelty wears off.Soon,you could care less what number The Great Grey/Black/Pink Meter will spit back at you.You'll be doing this again in a few hours anyway.It's just a meter,despite the 5 second countdowns&tiny blood samples&wireless Beam Me Up (to the pump)Scotty technology.Yes,we've come along way from even 1998(45 second countdowns,huge blood sample sizes) but we have a long way to go.I have given more gallons of blood to the vampire machines then I have to the Red Cross.(&that would be 35 pints)Blood that could mean something,beyond the next insulin dose.Blood that could help me live life my way,not dictated by some disease.

But I continue to bleed,like every other D(who attempts management of the disease) on this planet.Because I bleed,I don't get squeemish about seeing it like I do other body substances.This came in handy,when I was a practicing EMT.Ask me to assist w/the bleeding patient,& I was ok with that.(asking me to help with the vomiting patient was another story.Especially beer vomit. The very combination made me want to double vomit) Blood is one of those substances you want to take proper precautions against,should it be someone else's,but so are other body secretions.It's very archaic that in the 21st century we still have to bleed,to manage our disease,it should be history by now.CGM's should be as accurate as meters.

I received my new D-Kit from StickMe Designs(for winning the Diabetes Mine contest) & while I gotta say,testing is still a drag it helps ALOT to have a fun new case.You can see what I mean below.

Old:




New:


This thing has CLASS.3 inside zippered pouches,3 elastic bands for meter/tester/glucose tabs,logbook flap,outside zippered pouch & a carrying strap.Versus the 1 mesh,1 logbook flap,huge vast space of my old carrier.I still have diabetes,but tonight,it sucks a little less.It's brilliancy in a white/pink canvas.

- Posted using BlogPress from my iPhone

Monday, January 18, 2010

Little Grey Transmitter

Friday night,my Dexcom reading cut off, cold.(after about 5 minutes of ??? marks) I looked down at my site, and the tape was still there...undisturbed. It's like my transmitter jumped up out of skin and went AWOL. It was really strange,as I'd felt nothing being jerked out. I figured I'd look for it later.

5 AM, I get up and start turning the room upside down looking for it. An hour later, no transmitter. I knew I hadn't gone out of the room and it MUST be in the room, unless it fell in the toilet & if that were the case, I'd be royally screwed.($350 literally down the drain)Went back to bed.

9 AM, I got up again, and resumed my search. And found it.

Under a rug!
























It's odd how emotionally dependent we can be, on technology.(that can fail on us anytime, anywhere. We really don't "need" this stuff to survive..and yet, we feel that we do.) And it can get lost.(I estimate I've lost every piece of D-related stuff I've owned at least twice) Few invoke any sort of panic though.(only the pump,or a piece of CGM gear) Losing a meter is no big deal(I have many), losing a receiver or transmitter is a huge, expensive, deal. It's kind of like (I imagine) losing a kid would be..first you panic, go a bit crazy, find the kid, and are mad/relieved/keyed up all over again.It's an emotional roller coaster.

Thursday, January 14, 2010

Home, Home on the Range

Home, Home on the Range
Where the glucose never doth change
Where never is seen
A Four-hundred-fourteen
And a ketone is something quite strange..

Back to the D.E. again today. I am the type of person/patient that requires accountability..and a periodic good (mental) kick-in-the-pants to stay
on the control bandwagon. With my Endo's maternity leave looming ever nearer,she'll
shortly be out of the picture & I'll have to adjust to someone new. The DE, I know though,and it's a more comfortable situation. I need intervention,or bad habits soon creep back in and my a1c marches steadily upwards.

We discussed my horrific post-meal swings,& possible solutions to them. Now that I'm finally back to the normal insanity(vs the 400+ insanity), I'm trying to get re-used to normal blood sugars & that's just not pleasant at all. At 110, I'm shoving everything into my mouth & at 90, I'm catatonic. I need to be lower, but where's the good of being 100 (or 90) if you can't prevent yourself from eating everything in sight and becoming 220 again? DE says just eat a small snack..that's not happening.(I'm starving to death below a certain number) In my mind, I need to adjust to being 160...130..100 (in increments) not seesawing madly from one extreme to the next.(Steady is a good thing) I'm willing to try pre-bolusing though.(I have a Dexcom..I can do this. I will (hopefully) not end up on the floor. Pre-bolusing should help those post-meal numbers. (and the a1c) Pre-meal numbers are looking pretty good, but the post-meal swings aren't.

Monday, January 11, 2010

Towards 2011

Here's a list of goals/resolutions for 2010:

-In so far as it is up to me, avoid maxing out said deductible with horrendous copays. It isn't the getting of subsequent services free that is disturbing, its the amount spent getting there, that's disturbing.I need to get my docs to write for the max amount allowed, and utilize those supplies better. Of course, the cost of supplies has gone up..so that'll skyrocket me towards my deductible as well.

-Get my a1c under 7. Things aren't off to a real great start, failed sets and sickness and stress and blah-blah-blah helping my collective average be more like 300.(I don't even want to think of what that translates to,a1c wise) I need to aggressively treat my highs,& stop worrying so much about lows.(because clearly, that is not a problem right now. Haven't had any since the last decade!)

-Get organized, beyond just being able to find important papers,etc. The "Junk Room" must rival the orginization of the "Lincoln Bedroom"...a place that I could actually let a non-family member in there.(without dying of shame)

-Get genetically tested for my subset of Bartter's Syndrome, learn exact chances of passing it on. Get things regulated with pumping magnesium-I want to be as knowledgable/proficient in that, as I am (not) in my diabetes management. I want to get to the point where bloodwork ever so often, is the only medical intervention I'd require.

-Go to a diabetes conferance. (or two or three)

-Meet more DOC bloggers.

-Finish off my last prereq, get into a nursing school program in the fall!

-Publish my book.(hahahahaha)

-Update my blog(lmk if you'd like your blog to be in the bloglines)..and get at least 1 new follower!

-Get tickets to, and attend a Doctor's TV taping. We're out there in SoCal several times a year anyway...its all a matter of matching up the dates.(considerably more difficult on their end, then mine)

-Exercise more.(of course, which ensures that I probably won't because I'm not going to commit to going 3+ times a week.I'm going to do it when I can. That's being realistic.)

Friday, January 08, 2010

My (Diet) Coke Rewards







For three years running, Coke has had a promotion going. It's called My Coke Rewards...and it's (yet)another excellent way to waste time on the internet.

It's no secret that I drink alot of Diet Coke. It's an addiction, yet I have no desire to quit(everyone has to have SOME bad habit) Diet Coke bottles...diet Coke cans, all generate a fortune of Coke codes(might as well get something out of the deal, right?)
But like everything else, the recession has taken a bit hit on the program & they've imposed all kinds of rules and regulations. In the beginning, there was a 10 code(per day) limit and you could get an $120 PlayStation 2 for 800 measly points. And you could buy points on Ebay, to boot.(no more!)

Which I took full advantage of. I have gotten a PS2,blockbuster gift cards, movie tickets,free coke products,a best buy gift card,pass to Universal Studios,passes to other theme parks,TGIF gift cards,etc.etc.etc. Honestly, I can't remember what all I've gotten..it's been three years. But every year, they impose stricter limits(last year, it was the 120 point cap entry/week and 2000 total points). And a $50 gift card now goes for 2000 points.(which takes 15 weeks to save up for!) That made alot of people most unhappy.(me, I was thrilled..since you can now input all your points per the the week at one time. I don't have time to be doing that on a daily basis) Some limits are good, it leaves something for everyone.(the max points and inflation isn't good)

Change has struck again, this time it pertains to instant win game entries. I have never been lucky when it comes to winning that kind of stuff, so once again, I'm happy that the users with 5,000 credits in their accounts can't steamroll their way to a vacation in Bermuda. They'll lose all those (banked) entries, come January 10. I don't like to spend my points on entries for contests that I'll lose, so I can only play five entries at one time.(put that in the jackpot of millions of users trying to win that prize and chances that I'd win are non-existent)

I'd just like to win one major prize..that's all I'm asking for, out of this promotion. And then I'll feel some sort of closure, with this program.(and I really hope this is the LAST year they have it)I would feel better,after all the time(and money) I've invested.(consumption & inputting all those codes) Then, I can give it an A++ instead of the C(blah,blah-used to be much better) it currently is. I will always be a loyal(diet) Coke drinker, but if they're going to have a program like this, there are alot of things that could be better. I wouldn't base my loyalty off the excellence of this program.

Tuesday, January 05, 2010

Nintendo Power!

I just got(myself) a dsi for Christmas,(with the money I got) and I gotta say...it's nice. Slick, black, and light years beyond the regular ds.(the camera function is both inner & outer, so you can take a picture of yourself. That's not so easy on an iphone!) I wanted a blue one...but I digress,I can easily put a skin on it and make it blue. The very fact that they had dsi's in stock at all is something to be celebrated.

It's perfect. Except for that the fact that my favorite game, didn't work on it, and works on my old ds. So, I tried another game and that game worked on both systems.

So I called Nintendo, and got placed on hold. Only it wasn't hold, it was speakerphone, so after a few minutes of that, I hung up. And called back again.

And got placed on speakerphone again. I decided to stay, on the wildcard chance that someone might answer.

This is what I heard...

"So it will go out on XX date.."

"Let's go get pizza!"

"Our records indicate..."

"Serial number XXXXXXXXX..."

And credit card numbers. Lots, and lots, of credit card numbers. If I weren't an honest person, I could have had a a field day with them. I'm sure that someone at Nintendo would have gotten fired for that.After half an hour, someone answered the phone.

"Hello?"

"Hi, I'm having a problem with my dsi and would like to talk to someone about it."

Click.

So, I called back. And actually got someone.

"Hello?"

"Yes, I'm having a problem with my new dsi and would like some help with it."

"Certainly."

I didn't have my dsi with me, so I just told her the error code that kept popping up and she informed me that I likely had a bootleg copy of said game.

"But it works on my ds."

"Yes, but with the increased system security measures it won't recognize it on the dsi."

I'd bought the game on Ebay...it figures. Over a year ago,I'm not even sure if it's still in my purchase history.(to inform the seller)

"Are you sure it's not a system problem? This is just so unusual,I don't know what to think."

"I'll switch you over to my colleague.But they aren't supposed to start with the letters NTR, and yours does, which indicates it's fake."

Switched. I explain the problem to him, and he says he can't do anything without the serial number on my dsi,which of course I don't have with me.(call back) And I let him know about the phone rerouting problem.(which shouldn't be happening)

An hour later,I call back..and they're experiencing heavy call volume(everyone off from work), which goes on for the next 3 hours, until they close. Check rest of DS games, and most of them say "NTR" which confuses me even more, because they work on both systems.(and obviously, aren't fakes) And find another game that doesn't work.

Tried again, this morning-got through. Was informed that it's still fake. I think I will call them back and actually send in the games for testing.

Sunday, January 03, 2010

Notes from a Spinning Planet:New York Low

There are moments,in the life of a person with diabetes,that produce pure terror.Those are the moments outside of one's own control.Those are the moments that strike,out of the blue.Those are the moments that too often,have no real explanation.

We'd just come from the Radio City Music Hall & were chillin' on Broadway & (34th?) St.,eating dinner. Because my blood sugar was somewhere over the rainbow(420) & the cgm was confirming the meter(360,and going up) I corrected,and only ate half the fries with my ribs.

7 units. 50 carbs. Usually,I'd need twice that but we were doing alot of walking,and exercise does crazy things to my bgs.

By the time we'd made it to the subway,I was tanking like a train engine.Double arrows down.Not a bad thing,but it was awefully early in the process to be doing that.15 minutes later,270. 10 minutes later,200.Bulk of said insulin still not at it's peak. So I drank a juice box,ate 3 glucose tabs. (39 carbs)It didn't slow down the descent one iota,we got off the subway and I was 110.

By that point,I was getting really freaked out and begun stuffing glucose tabs into my mouth with complete abandon,I didn't much care if I OD'd to 200+ mg/dl. That,I could deal with.This,I could not.I have never in my life dropped 300 points in about 45 minutes & didn't know what in the world was going on.One thing was fairly obvious though...

"Honey,we have to go up & get juice from a store.NOW." Panic filled my voice,though I'd just consumed 10 tabs I was feeling the effects of a low.

So up we went,into the frigid(under 10 degrees Celcius)night air to find the nearest convenience store,where we purchased two bottles of juice and I drained one in short order.

LOW. I was definatly feeling the effects now,and could only hope that the 95 carbs I'd just consumed would do something quick before I became another statistic on a NYC sidewalk.

And it did,the tabs kicked in,the juice kicked in,& the Dexcom line rose to a healthy 150 mg/dl.Eventually,we got back to the hotel & it was still mid 100's. The rest of our trip,I didn't go anywhere without 2 full bottles of juice & a bottle of glucose tabs.(that's what you call being a hyper-hypo-iac)

Diabetes can be pretty scary sometimes..I'm glad I don't live in a big city,because I am not used to walking everywhere.I'd have alot more of that kind of low. And I'm VERY glad I have a Dexcom,it could have been very bad.




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