Thursday, April 23, 2009

Have Pump, Will Travel

8 years, today.(pumpiversary, whoo hoo!)

And I'm traveling to another country this summer, for the first time ever.

England, for about a week.

And Denmark, for another week.

I'm marginally worried about having a serious hypo because I don't know a word of Danish but my hubby's relatives know quite a bit of English,and my hubby knows some Danish so that's really an unfounded fear. Besides, Danes are very intelligent, most speak several languages, of which English is certainly one of them. From a diabetes standpoint, I don't have much to worry about. It will be quite odd, being in another country where I can't understand anybody...unless they take pity on me and switch back to English. I'm trying to learn a few phrases, just because I really need to. My other concern, healthwise, is how I'm going to arrange to get a magnesium tank-up over there. Because going without, is not an option. Nor can I get a double dose prior to the trip, at the max I'm only good for 9 days between them and I start turning into a complete electrolyte mess and doing that in Denmark would be an unmitigated disaster bar none. They are both civilized countries but in the UK, someone is more likely to know what the heck is going on=better communication=solving in an orderly,efficient manner. We all speak English, after all. And making the timing of infusion such that it could be done on the "off" day,we're going through a tour group(while in the UK),and then on to Denmark.

If you think our system is a grand and glorious mess, try cross-country-ing it-I think there is no greater headache. I'm just a clueless American,not knowing as to how to go about this, so first step was to contact a London nephrologist who I'd heard about on a mailing list.
Emailed said London neph, he actually responded and said it was virtually impossible to have arranged via any sort of NHS facility unless it were an emergency.(aka person actively dying) Recommended a private facility.

Which begs the question...people who have to arrange for needed medical services, such as dialysis-how the heck do they pull it off, getting medical care in another country?

The answer came, in the form of another email reply...stating how X hospital would be happy to accommodate my need for haemodialysis (they took the "nephrology services" to mean I needed dialysis) and could I please fill out the 12 page medical report( prescription from physician, Certificate of MRSA/Virology Report medical clearance form,blahblahblah), sign, and MAIL it(faxes= a nono). That's what dialysis patients have to go through. I don't have the energy for that and I'm not on dialysis,I can see why they really wouldn't want to do much traveling(on top of feeling like crud)

Next step, was to the insurance company. That went surprisingly well,services out of country are covered just like in network(country) with the exception of having to shell out the entire cost up front and then be reimbursed. I really hope they don't charge like they charge in the States...a 4.5 hr session at the infusion center costs about $1,800. Of which, 80% is covered until you hit the deductible, then 100% is. Maybe I will have hit my deductible by then. Regardless, it will be expensive. It doesn't matter where you have it, you just have to find a doctor/facility willing to do it. Except the public (aka, what the masses go to because it is free or nearly so) hospitals don't want to do it unless you show up on death's doorstep, in their emergency room, having convulsions. Even if you could pay, apparently.

I still don't know as to whether any other type of physician(over there) came prescribe magnesium infusions, GP's (or endos) over here will not touch that issue with a ten foot pole and instantly refer you to a nephrologist or simply ignore the issue entirely. That is the situation I found myself in, in the middle of last year and I wish never to be in that boat again. You could have convulsions,funky arrhythmias,and collapse on the ground and they wouldn't care. It's a nephro thing and out of their scope of practice=not their problem. Maybe its not quite as stringent over in the UK, since they don't get sued by patients. So I asked him a few more questions regarding it, I hope he responds. While waiting on that,emailed most of the private London hospitals and most of them have responded with stony,dead-end silence(not knowing what to make of this American oddball). But money talks,and I don't see why it couldn't be arranged, why it even matters whether its NHS or private beats me. They get their money,(I get reimbursed) they're happy,all is well with the world. Unless the NHS is like some sort of Veterans Hospital,club members only,all others need not apply.

This is one time when handling diabetes will be the proverbial cakewalk...compared to the other medical issue. Regardless,I'm not going to let either one stand in my way of having a great time-I'm really looking forward to my time abroad!

Monday, April 20, 2009

The Square Root of Genius

Things have a tendency to level out, in the end.

Highs and lows, toward the perfect(or not so perfect) a1c.

The ingredients in a recipe, toward the sweet,salty,sour or bitter primary taste/sensation.

And it stands to perfect reason, that in a class of about 24 individuals, the only two type 1’s will end up at the same table, the same half of the same table, the same lab group of 4. They’ll have the same insulin pump, have gotten diabetes at the same age, but their the similarities come to grinding halt. Then the other two people in the lab group will drop the class so its only its only the type one’s. (I am a type 1 magnet,some people say they've gone their entire lives without meeting another one..I met my "first" about 4 days after diagnosis,in the ER room next to mine she heard that I was newly diagnosed and came in to offer her condolences/reassurances.Since then,I've probably known hundreds of D's,both type 1 and 2.)

Because there’s the smart(best grades in the class) one, with an a1c in the mid 6’s.

And there’s the doing-just-better-then-surviving one, with an a1c in the low 8’s.

Some people have an easier time with their diabetes, and are geniuses to boot. Somehow, I always tend to end up at the lab table where they stress endlessly over the 1 or 2 measly questions they got wrong on the exam(s). I am not that person; knowledge does not penetrate and soak into my gray matter very easily.(I cherish any and every good grade) So it works out ok, she supplies the right answers and I keep my mouth shut + try to learn something. And we average out perfectly, with the rest of the class. As it applies to diabetes,I am the veteran but this isn't a Diabetes 101 course.I know too much about too little.

Wednesday, April 15, 2009

Celebrating the Lowly Lipid

Give me steak, lots of steak, with the gooey stuff I love
Chol-es-ter-ol
If 200 is normal, I know mine is way above
Chol-es-ter-ol
Let me eat lots of milk,eggs, and hunks of cheese
I eat what I want, and what I want is grease
Load me up with bacon, pass the gravy please
Chol-es-ter-ol.


Just turn me loose, keep the skillet good and greasy
Honey, where's my Lipitor..
And if I eat all the steak that I shouldn't,
What the heck are these pills for?
Let me eat what I want till I'm stuffed or through
Do the bypass, do what you have to do
I want my steak, and I want to eat it too
Chol-es-ter-ol.


Oh, give me pepperoni pizza, french fries and two Big Macs
Chol-es-ter-ol
Let my arteries fill up, with many a roll of plaques
Chol-es-ter-ol
I won't eat nothin' lest its grilled or fried
My tastebuds rule, my hands are tied
My doctor had low cholesterol and then he died..
Chol-es-ter-ol...Chol-es-ter-ol...Chol-es-ter-ol...

-Glick and Philips, Volume 1(2005)

And speaking of bloodwork, mine has come back. TSH in range. Microalbumin clear. Magnesium inching up, for the first time in 5 months.
HDL-63
LDL- 77
Triglycerides: 43
Personally, I thought it was a report worthy of a A++, but my doctor thought otherwise. Scribbled "ok for now" on the report. I'm not sure if he expects all his D's to have an HDL in the 90's and non-existent triglycerides,(or just wanted to rain all over my parade) how much better can it be? Granted, the a1c=needs lots of work, but the rest of it is looking pretty great in my book. And for the record,I love cholesterol...and ridiculously saturated hydrogenated everything but I try not to eat much of it,it doesn't love my weight(or improve the action of insulin!)

Monday, April 13, 2009

A New Twist on "Edelweiss"



And in case you haven't heard, a grand-kid on the way.America loves the Duggars!

Thursday, April 09, 2009

The Summer of Sixteen

Reading Kerri's post about LADA's, childhood onset, and all assorted in between made me think back to that summer of 1998(pre-diabetes). I have alot of prediagnosis memories,diet (anything)was a four letter word and something I never even considered following. I ate what I wanted,at regular meal times and in-between "snacks"wasn't something we did, if you were hungry you just tanked up at the meal.Rarely got sick,rarely went to a doctor, was pretty healthy. Chicken pox at 6(it was en vogue,we all had to go get infected and get it over with), Shingles at 14...and 2 years later my immune system kicked into high gear and the first insidious symptoms appeared. Thirst.Hunger. Moodyness. Ah, that moodyness, which my parents attributed to being a teenager, turned a sweet naive child into a raging hormonal, door-slamming maniac. I was ready for adulthood.(at least, in my mind) Adulthood=drivers lisence and piercings, so I took Drivers Ed and got the piercings.Ironically,the piercings were the only thing not to get infected(as I took good care of them). The summer progressed,along with the number of gray hairs on my parents head and my symptoms, which they could only see the outside forms of.I really don't think they understood how living with undiagnosed diabetes can make you act, nor would they still. It was an entire summer,fall,and beginning of winter before it would be diagnosed as diabetes.(May-December) That was the summer I started to grow up,people diagnosed younger must still have a partial responsibility but at that age you must take immeadiete ownership of it and not depend on your parents. My parents never gave me a shot, although they occasionally drew up doses/provided the carb counts at meals. It always felt like my disease, and not their responsibility. I am not saying that parents should not take care of their kids,but when the kid is almost an adult it needs to be the kid doing most/all of the management. So it is always prediabetes....and postdiabetes,a childhood that ended at 16. Before, when the functions of my body were not of mortal concern, and after, when everything had to be watched, monitored, and recorded. I was not the best teenager with diabetes(probably a fact of little surprise) but I survived,and now I think that when I got it,wasn't really such a bad time to get it. It is hard for parents to let go...and especially where diabetes is concerned. The best time to get it would probably be at age 86, when one has about 2 months remaining of life but rarely do things work out that way. Diabetes feels like a part of me but it doesn't feel like something that I've known forever because I haven't. I remember summer days with ice cream trucks and slurpees and winter sledding parties with hot cocoa/marshmallows galore/cookies/snacks with no carb counts/calories/dietary restrictions.I'm glad for those memories,not just for me but for my parents/those who know me because its harder on them sometimes then it is for the PWD. I still had to adjust to alot of things-food restriction was the biggest of them. For an adult with newly diagnosed diabetes,it must be very tough to change everything you've ever known.For a child, its really hard but it eventually becomes the norm.Thats why many older type 2's just don't get it...they are so used to their eating habits that changing them is unthinkable. As a teenager I fought food restriction tooth and nail but eventually came to terms with it(getting a pump really, REALLY helped). Now it is all so normal that if there were to be a cure for diabetes tomorrow,I think it would take decades of therapy to stop thinking like a PWD.(if there is a cure, the support group meetings will no doubt turn into that!)

Friday, April 03, 2009

Goodbye, ER

Parting is such sweet sorrow...you were the(at one time) best. At least the finale was a knock-your-socks off affair. I'll miss it, the newer shows just haven't withstood the test of time like this classic.
(And now, it belongs to the ages)

Thursday, April 02, 2009

Out of the Blue

There are places in this world that clearly, are a very bad idea to go low at.

In the middle of a lake....(one example)

It's been a week of firsts, I've gotten low at two brand-new places. First, at the movie theater. I have never gotten low there and I've been to quite a few movies in the 10.5 years I've had diabetes. (usually high, or barely not high)Bolused too aggressively for the popcorn. Fortuantly, I had juice and gel and was able avoid stumbling down the stairs in search of a sugary drink.It was an emotional low too, and as soon as the theater cleared I let it all out as I'd also lost my hat and it was all too much to handle.We were with some friends, so by the time my husband came back to see where I was, the glucose was back up to 73, the hat was found, and I was ready to be drug off the the Food Court to drown my sorrows in Diet Coke/Chinese food. Thankfully, nothing involving strangers and 911 calls.

The second, was at my dentists. Novocaine is another one of those drugs that pretty solidly seals the 200+ mg/dl post-session numbers but...

"Aheeock?"

"Yes, Heidi?"

(theme music from Karate Kid I is playing softly in the background while the dentist debates his assistant on whether or not Michael J.Fox's wife is really going to leave him.I like my dentist's office + my dentist(just not being there)

"Ahedoheckaheudoooah!"

"What?" he inquires, withdrawing a tortuous looking implement from my mouth.

"I think I'm low and I need to check my blood sugar."

"Go ahead." He patiently waits.

68.

"Yes I'm low I gotta drink juice, sorry!!"

"It's ok, do what you have to do."

Down goes the juice, here comes another cavity! (but I guess dentists have seen it all)

It really goes to show you can't ever just mentally check out and assume you're safe from a low, those lows can come from anywhere and everywhere and you've always got to be on the lookout, check/treat promptly, so they don't turn into major affairs.

Tuesday, March 31, 2009

Stalking the Wild Blood Sugar

In the medical field, the common diseases are referred to as "horses" and the not-so-common-ones, "zebras". Diabetes is of course, about as as equine as you can possibly get- but the lines do blur sometimes.

Is it type 1?

Is it type 2?

Is it type Halle Berry?

Is it gestational?

Or is it secondary to something else, and transiet?

Periodically, my blood sugars go off on a wild tangent, and nothing gets them up. Nothing. Everyone gets this sometimes(due to exercise, illness, etc)but I've yet to figure out exactly what prompts mine to go off. The last time, lasted two weeks. Two weeks of averaging about 5-8 units a day and still having lows.(usually use between 20-27U/day) It hasn't ever lasted that long so I asked my endo about it, their response was type 1's can periodically produce some insulin and studies really haven't been done to see why sets that off but glucose is very toxic/supressing to the islets and thats probably why it doesn't happen more often.(with me,given my less then perfect control) So I asked about checking my cpeptide the next time it happens and they said they could do that. It'll be interesting to see what exactly this pancreas of mine is up to.
If I understood that...what makes it go off,maybe there is something I can do to help those little spurts of whackyness toward excellent control. I would love to take so little insulin on a regular basis,it makes hypos less likely, the a1c better,life so much better. I do not think they have type 1's with residual insulin production take pills(thats for type 1's/2's with insulin resistance)and I wouldn't want to take them even if offered. But having a steady cpeptide would be a great thing.(every bit helps) This occasional zebra of mine might be unpredictable, but I'd take that over the regular horse (fill in the blank) any day.

Saturday, March 28, 2009

A V-Log of Three Insulin Pumps


And if it sounds like I've got a bug in my throat, its because I do. Strep throat, to be more precise. Hopefully I will get better at this vlog thing,thoughts more collected + not sounding like an adolescent squawker.(and hopefully the drugs will start doing their thing soon)Strep sucks.

Tuesday, March 24, 2009

Dancing with the Stars

(3/22/09)


Ebay star color changes are neat, here's the scale:

Yellow star () = 10 to 49 ratings
Blue star () = 50 to 99 ratings
Turquoise star () = 100 to 499 ratings
Purple star () = 500 to 999 ratings
Red star () = 1,000 to 4,999 ratings
Green star () = 5,000 to 9,999 ratings
Yellow shooting star () = 10,000 to 24,999 ratings
Turquoise shooting star () = 25,000 to 49,999 ratings
Purple shooting star () = 50,000 to 99,999 ratings
Red shooting star () = 100,000 to 499,000 ratings
Green shooting star () = 500,000 to 999,999 ratings
Silver shooting star () = 1,000,000 ratings or more

Fairly certain I will never get to a shooting star-it took me 7.5 years just to get to 1000 feedback. And most of the transactions you do, you have to beg for and still don't receive any fb. Which makes any fb you do get twice as valuable.
My feedback score is excellent, only 1 negative. For as much as I may complain about certain individuals who have no business owning a credit card much less being let loose with one on Ebay, I've gotten a good many wonderful deals over the years.
(like a roundtrip ticket that would have cost me over $900,for only $50 and it was at the local airport only a mile from my house, thus saving me 5 hours of driving time and lots of sleep!)

Thursday, March 19, 2009

Attack of the Carbs



I luuvvveee the Doughboy, my first vlog is probably going to be some drama about the PD, the plateful of evil carbohydrates + the powerless PWD. Which, now that its spring break, I have time to work on. Stay tuned!

Tuesday, March 17, 2009

Planet Diabetes: Survival: Hospital

(a Dlife video on this subject)

Monday evening the husband and I went to a D-talk entitled "Being Insulin Dependent in the Hospital." Not that unusual,I mean, there are many such topics of conversation being revisited all around the country, ad nauseum, at various pump group meetings. This place...was at a location I've never been to(some other D-group, not pump specific) and the guest speaker was a type 1 endocrinologist himself. With such a resume I could hardly NOT go, it was like being written a blank check to the secrets of the universe. (or at least to the hospital) I needed the hubby to come with me because #1 he was interested and #2 he's been to the general location and can therefore find the place much better then myself. Finding out what makes a hospital + the rulers therein tick would be more then beneficial in the future. Plus I figured I could get some questions of my own answered...beyond the generic "you may want to change x-y-z" material.

The meeting room was small..and decidedly packed with PWD of all sorts and sizes. After the "Hi, I'm x and I've had diabetes for x years"(personally referring to myself as a diabetic still leaves an incredibly sour taste in my mouth and I rarely do it) intros the endocrinologist, sporting a Dexcom and Ping pump(bonus points for him!) launched right into the discussion.




The meeting lasted about 2 hours and was not boring at all. Riveting talk/discussion, despite one or two individuals periodically launching off on some completely irrelevant topic then the one on hand which one couldn't exactly prevent/say something about because we're all there to support each other and sit through 10 minute rants on insurance not covering lancets.(for real-who complains about that??there are so much more worthy things to complain about) If you have a guest speaker, I think its pretty rude NOT to keep the questions to the topic of discussion. But anytime you have a physician and laypeople you are going to get
someone reciting their entire medical history as they ask their question. Everyone suffers through it.
And I managed to learn some stuff:

-you always have the right to refuse the sliding scale and stay on the pump but if you're going into emergency surgery just give it up and resume when able. Emergency surgery, you should just shut up and be grateful if you make it out alive.(plus they tend to give some real whack-you-out drugs in emergency surgery) Elective surgeries...ALWAYS insist on pumping and if the surgeon doesn't like it find a new surgeon. In the ICU they check bgs so often that being on a insulin drip is the best way to go because you're drugged up and not able to make insulin decisions. Sliding scale anywhere=EVIL and under no circumstances should you be on one because its given according to the staff's schedule, not to your needs. People die of hypoglycemia IN THE HOSPITAL on a regular basis, and you sure don't want to be that person. Give insulin, recheck patient 6 hours later and they are dead because lunch was an hour late and they were too out of it to eat their lunch. Get the doc to write testing orders every 2-4 hours,or whenever necessary.

-most surgeons are not sadistic hellions intent on inflecting as much inconvenience as possible, they are just uninformed. So says an endocrinologist. Um-I think I'll have to take a rain check on that one, guess I haven't yet met the "nice" type of surgeon.

-Always bring your own lancing device(+ meter) ,never consent to their gullitine near your fingers. Much less painful with own lancing device.

-saw several graphs documenting the 6x rate of complications/death from 200+ post operative bgs, even in people who don't have diabetes. (steroids can do marvelous things to the bg) Freaky scary.


Bolused about five times that evening, bgs remained stuck in the mid 200's.It always makes me feel guilty, being at a D meeting and being high(as a pumper you should have the problem licked in about 1.5 hours) Definably need a basal overhaul. He also talked about all the changes they've made to their program and I was impressed(the power of a type 1 endo in bringing about REAL change for all the PWD in the hospital. They are going to have studies of intravenous CGM's in ICU patients.(since that is the most frequent setting for extreme hypoglycemia). The takeaway message was...communicate with the caregivers, call your endo if need be(doesn't work, but nice in theory),advocate for the basics of care. Because you're worth it.

Monday, March 09, 2009

The Melanoma

Sometimes, it's just a mole on your back.

(I have a couple...let's just leave it at that. You don't want to see them)

And sometimes, it's a Melanoma.

(from:http://www.dermatology.org/)

Diabetes is my melanoma right now. Spreading into every waking and non-waking moment. Always there, silently demanding, yet giving back nothing in return.
I have never had cancer, thank goodness, but I have seen what it can do to people's spirits as well as their bodies. Psychologically it is really hard.(worse then D,I think)
I have to say, running to the CDE/Endo for fresh ideas makes the lag even worse sometimes. Let's get even MORE intense about something you're already 100% (immersed/sick and tired of) in!

Growing, growing,growing until the weight of the world is on your shoulders. As much as I'd like to obtain that stellar a1c instantly there are issues that will not be solved immeadiently(it took 10 years to make them and its not going to take 3 months to unmake them) and sometimes its too much. I need to feel like something other then a diabetic. I need to let it just be the mole on the back again...and not read,breathe,talk,sleep,live diabetes 24/7. And that might take the form of not posting on this blog or other D-sites as often. I cannot "stop" the basics of care but I can slack off in other areas to regain that "I'm something other then a collection of pancreatic cells run amuck" sense of well being.

Wednesday, March 04, 2009

Change


Twenty dollars and eight-four cents.

That's the cost of diabetes on a daily, preventative basis.(supplies, low treatments, etc,ballpark figure for me...)

I got this bottle in January, as part of our church's fund drive to assist a pregnancy center. Coming off a raw recent emotional high of that very subject I wasn't sure if I could look at it without bawling so I put my spare change in another jar and planned to transfer it to the bottle when the time came.

But something happened in a month and a half. The bottle came to mean more then what could have been. It came to represent what can be.(maybe there's a chance for even me)

Change. I can change, I can do battle with my a1c to knock it down under 7. I can drag myself to the gym on a regular basis, I can stop inhaling junk food for breakfast/lunch/and supper and make it more of the exception, rather then the rule. Its still hard but when I look at that baby bottle sitting on my dresser I'm reminded that it's oh-so-worth-it. I couldn't give up that bottle now for anything, I wrote a check to the pregnancy center. They helped me without even knowing they did so.

It's not to large a price to pay for the rest of one's life...change can be a good thing. Every bit helps.

Saturday, February 28, 2009

Of iPhones and iApprovals

Final day of the month...and I feel the need to write something, however unprofound that something might be. Finally got to go on the grandest of sprees Wednesday, ending up with this:


Of course, they don't sell Iphones at Office Depot but they do sell $200 Amex gcs...and Itunes gcs. OD reward certificates can be used to purchase any type of gift card. Best Buy was running a deal(of sorts-$50 off for Reward Zone members) and the prepaid mastercards can be used for anything.(actual purchase plus bills)Signing another 2 year commitment(just did one for the gym..ugh) was not a particular joyous occasion, but I have wanted an iphone forever...and my current cellphone contract will soon expire. I am rather attached to my old number, I've had it ever since I've had a cellphone and giving it up is going to be a very painful grieving process. But having 2 running contracts makes no sense whatsoever.(even if the iphone and the first two bills are free!) And I've got another cellphone that's prepaid(it was a gift) so I'm like rolling in cellphones right now!

I'm not sorry I did it...the iphone rocks, on so many levels. Not having to find a wifi hotspot, being able to use any application at any time is just great. I love my iphone!

D-wise, its been low after low after low. Got my approval letter from my insurance(sensors) and the sensors were mailed out Thurs. of this week. Haven't gotten them yet...hopefully will be here Monday. I'm of the opinion that taking in more fast-acting carbs and getting the bg down later(if you overshoot the mark) is better then eating/drinking 15 carbs...eating another 15 carbs..eating yet another 15 carbs...I could spend my entire life waiting for my bg to come up, with that method. Since I'm having so many I just go for the big guns(40-60 carbs) right away,and it works well. Until the next low. I need to majorly overhaul everything (basals and boluses),day and night they're causing lows. It's not really because of the exercise...because I only work out about 3 hours a week. Hopefully bgs will go back to normal soon.

Tuesday, February 24, 2009

Signs of the Times

Dear idiot student(s):

So its over. I'm over that. I wish nothing but the best for our new president, and I hope my feelings of doom/and gloom don't turn out to be the case.

But I still have a right to MY own personal political views and if I want to have a bumper sticker that says 1/20/2013- Change We Can Believe In- it is my personal right as an American. You may not like it, but there was no need to put that displeasure into action and decorate my car in such a immature manner.

Ice, coke, and ketchup. Wow- you really take the cake. Forgive me for not finding it funny (maybe one day I will). Right now it just feels like an invasion of the freedoms I took for granted. Luckily for you, the only thing right now handy to take it out on is my meter(I think I'll try Joe S's trick of running over one).

Sincerely,

A fellow (more intelligent, tolerant) student

Friday, February 20, 2009

Circle of Willies

Disclaimer:

I am a control freak. Or at least,I try to be. Not in the sense of my blood sugar never goes above 150 post-meal..more like, I don't trust anyone else besides my cde/endocrinologist to be making suggestions about my D-care. Especially not the local community hospital, and even at University hospitals it can be touch and go as to whether you'll get good care. Unless you have a pumper doc/nurse or someone who knows about pumps.(not very likely)

There's something I haven't quite figured out yet, and its a subject that's discussed even less frequently among doctor/patients then "How's your sex life?" (which is a question I'm not likely to be getting for 30+ more years anyway)

What you have the rights to, D-wise, in surgery or in the hospital. Some surgeons literally demand that you must go off your pump and onto whatever system they've got and some are ok with you staying on your pump. And I've done it both ways, scared stiff to refuse. Because, well, the last general surgeon intent on slicing into my intestinal blockage probably wouldn't have understood if I'd have talked myself blue and though they're quite good at what they're doing they tend to have a mindset that one insulin regimen fits all. Between the language barrier and that,I didn't dare refuse. (fortunately it didn't come to that)On the other hand, the vascular surgeon(port surgery) was ok with me being on the pump. It's a surgeon lottery. I can understand during long, complex surgeries the need to have some control over the situation but with an IV in there anyway they could have access to sending it up or down if the numbers strayed too far. I am easily correctable.

So I think I need some sort of plan. Something that can be given to any future physician who doesn't know much about pumping. I think that would help them see that I'm not the type of patient who will go low on just the basal rate if not doing anything(more like high). (to alleviate fears) I still don't know whether I've got the rights to refuse without them refusing to keep me as a patient. I have hopes that one day..when I'm around 40 or so insulin pumps will be more accepted and the young physicians of today will be the older, experienced physicians who know all about it. The younger physicians, they speak Pumpese "What's your ISF? TDD? Insulin/carb ratio?" while the older ones could care less. As a patient, I feel more connected to someone who shows knowledge about D rather then someone who skirts around the issue. I have D, it is a part of me and it needs to enter the conversation at some point.

The hospital is enough of a place for med mixups/infections/nervous breakdowns as it is. Bright lights. Loud noises. Demented, agitated roommates. Uncomfortable beds. Food menus that make no sense(lots of carbs but no "sugar") and have no nutrional information. Constant streams of people, day and night. Blood leechings. Tests that take forever on cold hard tables and make you miss meals. Endless reruns of "MASH". Waiting all day for the doc to come in to tell you you can't go home that day. Friend/relative visits that awkwardly end as you fall facefirst into your cream of wheat on a medication trip. Lots of decisions, much of which won't happen because its all relative to what the doctor decides when he gets around to it. As for diabetes control, good luck with that, you are on your own. At least on the pump you are not hypoing constantly, you have some control over the situation. Whereas with sliding scales you are pretty much stuck.(haven't been on one in 9 years and don't intend to be)

Some more thoughts on the situation...(Dec.2006)

I wish there were a facility in which only D's(or friends, family members) worked..everything would be done with the D taken into consideration and pumps would be the rule, rather then the exception. Better attention to D translates to better bgs equals shorter stays and improved outcomes.

Wednesday, February 18, 2009

The One on the Right

There once was a musical troupe
A swinging, rhyming folk group
They sang non-traditional ballads
In a never-ending loop
They were great with alliterative allegories
And charming,mildly interesting stories
But diabetical incompatibilitys
Led to their downfall.

Well, the one on the right was
Tight with Animas
And the one in the middle was
Not in any "pumping" rush
While the one on the left was
Having a major Medtronic crush
And the guy in the rear...Burned his Medical Alert.

This musical aggravation
Toured the D-Life communes
Singing non-traditional ballads
In the oddest, weirdest tunes.

They performed with great virtuosity
And soon, they were a hit(surpassing even the Jonas Brothers!)
But diabetical incompatibilities
Finally made them split.

Cuz' the one on the right had a
5.5 a1c while the one in the middle was 8.4
the one on the left was 7.2
and the guy in the rear...could care less.

When the curtain finally rose
On their season's biggest show
The D-folk watched in anticipation
To see their latest, weird creation.
But they all forgot their meters
And that led to quite a scene
No longer friendly greeters
These charming folks turned mean.

The one on the right was
Really high, while the one in the middle was
Feeding him pie.
The one on the left was the one who
Really needed that pie
While the guy in the rear...was dialing 911.

Now this should be a lesson
If you plan to PWD messin'
Don't go mixing pumpers
With the politics of the D
Just work on getting along
No more messy spiels
And if they're slightly in the wrong
It's not a major deal.

Now the one on the left
writes a blog while the one in the middle
Went back to Lantus.
the one on the right just ran a marathon
And the guy in the rear..went back to school and became a CDE.
(there's always hope for the rebels)

Tuesday, February 17, 2009

A Valentine's Weekend Dozen

#1
(gift from my very sweet husband)

#2 A workout at the Love Triangle. I call it that, because it has my doctor's office, the gym, and CVS in the same general area so whatever you need, you're covered! (injured, hop on over to docs and pick up RX at CVS). Only I always end up going across the street to McDonalds and stuffing my face because workouts make me incredibly hungry and there's just no way I'm going to pay $5.99 for a "Rejuvenating Fruit Smoothie."

#2 An hour long wait to The Pasta Place because the place didn't take reservations. Sigh. It was good though, awesome Italian carby goodness that was well worth the insulin. No candlelight, but it was dim enough in there to qualify as being in the Twilight Zone anyway.

#3 A Visit to the William Paca House.(signer of the Declaration of Independance) We've visited Montpelier-Monticello-Mt.Vernon but this was quite different from them, this was primarily a show house and living in the city of Annopolis they didn't have to be so self-sufficient as the Virginia hicks did.


#4 Going to meet Cara at a chain restaurant called Eggspectations. She was up here visiting a friend, and her friend and friend's (8 month old? correct me if I'm wrong) kiddo were along. Her godson was having a "Mohawk Hair Day" + was an absolute knock-out, cute as could be. Should work in his favor when he does get to be a teenager! She treated us all to lunch.(that's REAL Tennessean hospitality!) We talked D-stuff, non D-stuff, and walked around in the Artic Blast, visited another shop and then they went home. She's pretty cool.(and we have the same type of camera!)

(and I just noticed the creepy guy staring out the window...weird)

#5 Getting a $25 gc/purchase of a new RX coupon from CVS...because they're incredibly rare and its great timing, the beginning of the year always brings horrendous copays and every little bit helps.

#6 Semi-annual cleaning of the diamond ring...and having the Zales salesperson semi-cuss-me-out. " X-Y-Z, this is so dirty! How did it get that way?" Ok, its dirty, that's why I'm here, to have it cleaned. Neither her language nor her tone was appropriate to lambast a customer with. My husband didn't pay good money to have me treated that way. I was slightly peeved, I don't think I've ever been cussed out by a salesperson before.(not even when I should have been!)

#7 Playing games at Dave & Busters.. its such a fun place and I could totally spend the rest of my life in there.

#8 Studying for microbiology test #1(lecture). Ack, ack, ack.(now behind me)

#9 Wondering if this will be the week that A. my sensor coverage comes through and B. my Office Depot gift card arrives and I'll be able to get my longed-for Iphone.

#10 Reading poems of yesteryear + thinking, wow, was I ever so young and clueless back then,I thought the pump would solve everything.

#11 Semi-Annual Stuffing at the Golden Corral. Every time I go there, I gain five pounds.(hence it is good that we only go 2x a year)

#12 Downloading my Valentine's Day Ipod Playlist:
1. How do I love her-Steven Curtis Chapman
2. I'm yours
3. Sincerely Yours- Petra
4. Head over Heels- 4HIM
5. LOVE-Nat King Cole (?)
6. When You're Loved- Debbie Boone
7. All you need is Love- The Beatles
8. I Walk the Line- Johnny Cash
9. Because of You-Reba McIntire
10. Cleaning this Gun-Rodney Atkins
11. Testify to Love- Avalon
12. I'm not gonna write you a love song- Sara Bareilles

Thursday, February 12, 2009

From Endo, With Love

I'm not sure how it happened, but...

My a1c has gone down. By 0.8. Which puts me exactly where I was last year at this time.
(in the 8's, which is much better then the 9's). I'm feelin' the buzz from that, its moving in the right direction.(at least)

The rest of the appt. was fairly unproductive, my endo doesn't much like Pings(they're rather difficult to get the basals and TDD from + the meters read 40+ higher then the Ultra) and discussing my major hurdle toward better bgs...my fear of humongous boluses even when I know I need it. Because when I crash from one of them,it is a major crash + not pretty. I would rather square wave something then bolus it all up front,and sometimes you need everything up front.(like for cereal)If I have my Dex on,I'm not as afraid to do large boluses but because approval/paperwork for sensors has been stuck in insurance land since the beginning of Jan. I don't have that safety guard. The main reason my a1c has come down is because of my overnights, which have been pretty rock-solid awesome for the past few months.

Paperwork to get yearly bloodwork...a refill rx. Hey insurance, please hurry up with that paperwork, I need those sensors!

And that question, which popped up once again- "When are you planning to have kids?"
I didn't tell her what happened last month, and I'm not sure it would have done any good(not info she needs to know unless A. I stay pregnant or B.it happens more then once) When do I plan to have kids...probably never. Don't want to be told what I already know.(a1c must be in optimal range or that could be a major reason in miscarriages)

But all in all, it wasn't a total disaster + its good that I went.