The Facebook Rant

Facebook is an interesting animal.


Especially when you join any sort of health related "group." The larger diabetes related ones, bleed despair and rotten infected dropping off toes and and people who cannot afford their supplies and people for whom the wall of ignorance will never be penetrated.

"help, my blood sugar is HI what do I do"

"help, my leg is streaking red what do I do"

"how do I get my blood sugar down without going to the doctor"

"GMO's are bad, diet coke is bad, sugar is bad,yadayadayada"


When you look at these posts, its very obvious that the biggest problem in America is not diabetes...its the ignorance that millions live with. I am not a perfect PWD...that doesn't exist but how very lonely and isolating must it be to A. not be given the BASICS and the RESOURCES that you need or B.not be involved at all in your care, preferring to "let the doctors handle it" when diabetes is a disease that demands involvement? The beauty of the internet is that it lets patients become more empowered/connected, but the danger of the internet is that comes with just as many opinions on what you should do.(and many people would rather take their neighbor's advice then their doctor's advice)

People need (accurate) basics. People need support. People need a scare-free zone, a place where there are no pictures to make you lose your lunch. People need to take ownership of their own disease, and realize that no doctor can tell you how to get it perfect-perfect doesn't exist. (I also think that some basic diabetes knowledge "files"(from reputable websites)on FB could steer people in the right direction,right off the bat)


In short, people don't need most of the FB groups out there.

Gym Rat

This is my power shirt.



As stupid as it may sound, when I'm wearing my Diabetes Exercise and Sports Association t-shirt, I am mentally ready to hit the gym, and face whatever wrench diabetes may throw in the works.

Meter,strips,lancing device? check
Dexcom? check
Medical ID on body, in case I collapse? check
Extra money, just in case I run out of glucose/food? check
Juice, gel, and tabs? check
Iphone/earphones? double check
water bottle, for regular hydration? check
change of clothes/other sundries? check

And then, after all of that, there's the actual process of managing blood sugars. I'm usually high going in...so I have to correct for that, while keeping in mind how the exercise in question will affect my bgs. Weight lifting, hello stratosphere.
Anything cardiovascular, it goes in the opposite direction.

176 going in, remove pump. Eat 20 carbs.
108, 15 minutes later. Eat another 15 carbs.
109, 10 minutes later. Eat another 15 carbs.
94, 10 minutes later.Reconnect, and am starving so polish off another 40 carbs/protein, bolusing significantly less then I think I'll need.

While all this is going on, there are usually odd glances being thrown in my direction(like what the heck is this girl doing?). I am not training for a marathon,I'm simply trying to make it through a rather mild(!) workout, alive. Generally, my blood sugars are great, as long as I keep consuming vast amounts of carbohydrates. I have not yet reached the goal of being semi-in-shape, so what I want to know is...if you are, do your blood sugars not drop as much as they did in the beginning? Having to eat a lot is probably the #1 reason I hate exercise. As for the reducing insulin part, I could take my pump off, exercise/eat/have great blood sugars for several hours, at which point I'm sure I'd need a slight amount (but I've not yet been able to exercise for hours so that's not really an issue right now). I eat lots more then I actually burn off. Your input is welcome.

Attack of the Carbs

I luuvvveee the Doughboy, my first vlog is probably going to be some drama about the PD, the plateful of evil carbohydrates + the powerless PWD. Which, now that its spring break, I have time to work on. Stay tuned!

Signs of the New Semester

#1 My A&P prof(don't ask, the first go around was not a transfer worthy grade) is a Hungarian MD- PHD with a NIPRO insulin pump. Be still, my heart, life is so much weirder then fiction. I haven't told her yet of our unusual teacher-student bond, but she'll think its cool too,she's very much a people person.

#2 My psych class is ok, basically a repeat of everything I learned over the summer. It's going to be mind-numbingly boring(and easy). Thank goodness it's only going to be 2 hours,because if it went 3 I'd be psychotic. The instructor is not scintillating, or funny, or original. If it weren't for the required attendance policy(as in, you miss, your grade goes down) I would not be there.

#3 My Sociology prof, a venerable white haired gentleman, is anti-textbook + rages against them quite frequently(not endearing himself to the faculty, apparently). So he gives out 7+ handouts every class, to discuss next class. By semester's end, I will have a nice little book of handouts but at least I don't have to shell out $50+ for the book! This class will be interesting, but it goes to the very end(9:45 pm)and after almost 3 hours of sitting in class(no breaks) it would take an earthquake to keep me interested/alert at that hour.

Found out today that my SIL(the one who had pancreatitis) has acquired diabetes + is taking insulin. Why insulin(and not pills) I'm not sure. I also don't know whether her type is temporary(caused by the pancreatitis) or developing into type 1? guess I need to do some more reading about it. I'm going to try to help however I can(my vast store of knowledge, inflicted on her) someone else in the immediate family getting diabetes makes me feel a little weird, it's been a lonely (solo) disease for the past 10 years.

Another Role Model

# May 1, 2008 8:27 pm US/Mountain

Jay Cutler Reveals He Has Type 1 Diabetes
CBS4 Broncos Insiders Sign Ups: Get Broncos Email Updates or text 4broncos to 66247 for free wireless text updates
Reporting
Vic Lombardi
DENVER (CBS4/AP) ―

Denver Broncos quarterback Jay Cutler has been diagnosed with Type 1 diabetes, he told CBS4's Vic Lombardi Thursday.

Cutler's business manager Marty Garafalo confirmed the illness Thursday night to the Associated Press.

Cutler told CBS4 he dropped eight to ten of pounds towards the end of the 2007 season and that he was not throwing the ball with as much force as he had in the past.

"I"m just excited about this year now that we know what the problem was," Cutler said. "I'm not the first person to get it and I won't be the last person to get it."

CBS4 medical editor Dr. Dave Hnida said Cutler may actually see improvement in his play now that he has a diagnosis and is getting treatment.

"He should look for a long and healthy [life]," Hnida said. "New things are popping up every day and the disease will one day be curable. It's just a blessing he caught this one early and I bet his advice to you would be to get screened if you have any signs or symptoms. You don't need to be an NFL quarterback to beat diabetes." (Read more in Dr. Dave's Blog)

The 25-year-old Cutler found out about two weeks ago that he was diabetic and needed daily insulin injections, Garafalo told The Associated Press.

He said Cutler was managing his disease and "in no way is his football career jeopardized."

Some 21 million Americans have diabetes, meaning their bodies cannot properly turn blood sugar into energy. Either they don't produce enough insulin or don't use it correctly. With the Type 1 form, the body's immune system attacks insulin-producing pancreatic cells, so that patients require insulin injections to survive.

"It's something that he's dealing with and something a lot of other people have," Garafalo said. "Even though it's a serious condition, it's a condition that can be managed. That's the way he's treating it right now.

"Everything's fine," Garafalo continued. "His condition is fine."

Cutler, entering his third NFL season, threw for 3,497 yards and 20 touchdowns last season after supplanting Jake Plummer with five weeks left in the 2006 season.

The 6-foot-3, 233-pound Cutler was taken by the Broncos with the 11th overall pick of the 2006 draft, becoming the first Vanderbilt player taken in the first round since 1986.

Cutler is expected to hold a news conference Friday.

Three other notable NFL pros have played with Type 1 diabetes. Jay Leeuwenburg played for the University of Colorado Buffaloes and went on to have a 9-year NFL career. Wade Wilson, currently a quarterback coach for the Dallas Cowboys, played in the pros for 17 years. Cornerback Mike Echols of the Tennesse Titans also has the disease.

Other athletes who have competed with diabetes include Hockey Hall of Famer Bobby Clarke, Charlotte Bobcats forward Adam Morrison, golfers Scott Verplank, Michelle McGann and Kelli Kuehne and Olympic swimmer Gary Hall Jr.

(in for the haul..its amazing how upbeat/positive he is just two weeks after diagnosis,when I'm sure it still feels like the end of the world!) it's nice to have role models, but I wouldn't wish anyone that I admire/respect get this disease. It's the toughest.
(my humble opinion, two weeks after my diagnosis I was doing my darnedest to prevent people from learning I had it)