Facebook is an interesting animal.
Especially when you join any sort of health related "group." The larger diabetes related ones, bleed despair and rotten infected dropping off toes and and people who cannot afford their supplies and people for whom the wall of ignorance will never be penetrated.
"help, my blood sugar is HI what do I do"
"help, my leg is streaking red what do I do"
"how do I get my blood sugar down without going to the doctor"
"GMO's are bad, diet coke is bad, sugar is bad,yadayadayada"
When you look at these posts, its very obvious that the biggest problem in America is not diabetes...its the ignorance that millions live with. I am not a perfect PWD...that doesn't exist but how very lonely and isolating must it be to A. not be given the BASICS and the RESOURCES that you need or B.not be involved at all in your care, preferring to "let the doctors handle it" when diabetes is a disease that demands involvement? The beauty of the internet is that it lets patients become more empowered/connected, but the danger of the internet is that comes with just as many opinions on what you should do.(and many people would rather take their neighbor's advice then their doctor's advice)
People need (accurate) basics. People need support. People need a scare-free zone, a place where there are no pictures to make you lose your lunch. People need to take ownership of their own disease, and realize that no doctor can tell you how to get it perfect-perfect doesn't exist. (I also think that some basic diabetes knowledge "files"(from reputable websites)on FB could steer people in the right direction,right off the bat)
In short, people don't need most of the FB groups out there.
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2 comments:
It's hard for me sometimes to look at these types of posts and not blame the person writing it; but we really need to focus on what's wrong. In some places and some cases, the training is just abysmal.
Lovely blog yoou have here
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