Wednesday, March 06, 2013

That "C" Word

The Cure is Coming.

Yes, yes, boys and girls...this according to the Diabetes Research Institute. Your days of blood tests & swag carb counts and wonky levels are numbered, according to one in-the-know blogger.

When I heard the "possible" news, I was briefly intrueged. Not because I knew it was a "cure" per say, but because I wanted to hear if their idea made any more sense then all the other ideas out there. Because, in 15 years, I've heard alot of "this is it, this is the CURE!!" hype & yes, I've actually believed that it could lead to the cure. Islet Cells. Some sort of Pancreas Wonder Pills. The Glucowatch. (& others) All promising ideas that fizzled out within a few years. I have always believed that there would be an eventual cure, even though I was fortuanate enough NOT to be fed the "5 Year Plan" at my diagnosis. The intern was a straight shooter, told me I'd have it forever, and I assumed that I would, that it could never be cured. And then I got out of the hospital, out into a world where EVERYONE was trying to cure my incurable diabetes.

It's still here. I'm still here. (despite wild take-out swings on both of us) And I've made my peace with diabetes, I don't need a cure. (not that I don't want one, I just don't need one to be happy in life) I realize that I write all this from the point of view of a person who can afford the meds/etc.needed to have a healthy life, who never had to choose between affording test strips or paying the electricity bill. I'm an adult with type 1 diabetes,and I've had a pretty good life. If diabetes affected my child, or another loved one,I would not be nearly as blase about curing it.

I'd want a cure, yesterday. And therein lies the reason to my non-reaction to this news. I cannot imagine what it must be like to live with someone with this disease, to have your partner or your child have it, to worry about them every day. There are nights that (while I'm complaining about my blood sugars) my husband tells me "Please don't die on me" & I get to see a perspective from the other side. I'm certainly doing my best not to die for a good, good long while..but as a general rule, I don't do much worrying about complications. (apparently I'm still stuck in an adolescent invincibility complex)

And this latest idea, for reasons mentioned elsewhere in the D-blogosphere, certainly sounds nothing like a "cure." It sounds like a really good idea that may or may not pan out. (Get back to me in 20 or so years) Yeah,the same ole, same ole. But what I take issue with is with a blogger, who certainly knows the effect THIS news would likely have on a community that feels so passionately about a cure,went ahead and did everyone's hopes up only to be shattered the next day. He certainly feels passionately that this will be the next cure,but that's no excuse for toying with the emotions of hundreds (perhaps thousands of people). And that is what feels so, so wrong. I respect the DRI and the work that they are doing, but they won't be getting anymore of my monetary donations.

1 comment:

Scott E said...

I love how you say you WANT a cure, but don't NEED one to be happy in life! That message doesn't get out there enough, and it's really necessary to make sure that people, especially the newly-diagnosed, realize that diabetes and happiness are not mutually-exclusive.