Sunday, September 16, 2007

CGMS & ME ( Part II)

The piece of black leather lies lifeless before me, waiting to be cut, shaped, and sewn into some useful accessory.

"Think of what features you'd like to have, and incorporate those impulses. Experiment, have fun!" the group leader's voice inflects wildly, attempting
to channel her excessive charisma into group spirit.

I sigh heavily- the materials I have aren't sparking any creative genius.(as of yet)
Perhaps I should check out what other people are doing, it may give me a few ideas.

To my left, a teenager has ditched Project #1 entirely and is now meticulously arranging minuscule red and white sequins in an American Flag pattern.(to be applied to Project #2) Cute, but I think I'm a little old for decorations of that nature. And across the table, an engineer dad is building his pre-teen son the best sample pump case I've ever seen-ever bit as good as the real thing.(side packs,able to stand up on the table by itself) None of us can match that, least of all me. This session(in Friends 4 Life,2007) is not exactly the most popular, only about 15 people in the room. We are the ones who chose this class by process of elimination(Carb Counting 101, "Strike the Spike", and Managing Diabetes During Sick Days were not really something we'd wanted to sleep through for the next 2 hours). Few of us have much of an idea of what we're actually supposed to be doing. In the absence of inspiration, I leave Project #1 and go to Project #2(decorating the provided nylon clip-on case) I boldly apply red and green fabric paint, and leave it to dry.5 minutes later, I knock the case on the floor and it smears together into a Impressionalistic, Picasso wanna-be creation. Rather then start over, I just back to Project #1- decorating obviously just isn't my thing.

The teenager, 3/4's done with applying the decorations on her own case, looks over at mine.
"Can I see yours?"
"I dropped it on the floor," I reply, showing it to her."Not going to do it over."
Predictably, she isn't impressed, and returns to her own work.

Now to think of what I want in a pump case...
Material: Leather. Gotta be durable.

Color: Black. I don't like wild stuff.

Style: Waist-pouch. I don't have any, and on certain occasions it would come in
handy.

Other features: Clear plastic over the case, so I can see through to bolus/change
basils.Zippered pull. Monogrammed.

I can't design, and I can't draw, but between the sheet of paper and crudely constructed prototype, I manage to convey my wishes. I include my phone # though(just in case they have questions).


Several months later..

Tues., Sep.4. I return from my holiday travels to find a large package from Pump Wear sitting on my front porch. Rip it open, and there it, the case I designed! Not exactly(no monogram) but I'm pleased that A. they sent it and B. it looks pretty good, for something I created. Just what I want. The case, slides around on the belt. And it will come in really handy for the below scenario.It's functional, and that's precisely what I want.














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Friday, was the initial meeting at the RC(Research Center), about 3:30 pm. Stuff was winding down for the weekend, and I was the last scheduled patient. The nurse took all the standard vital signs and EKG and then, the research coordinator came in to go over the entire consent form. Since they changed the amount of blood drawn from 18, to 19 tablespoons they have to make up an ENTIRELY new consent form(also to be signed). Seems pretty stupid to me,but I don't make the rules. Well, I discovered that graduate students are going to be suggesting my insulin doses based on their algorithmic models-which will either be accepted/rejected by the study physician, I'm still not to enthralled by the whole idea. She'll probably be pressured to accept at least some of their calculations,(part of the point of the study) and I'll go low and have to chug juice. Whereas, last time I was in blissful ignorance of my blood sugars/insulin doses, this time I will not be.(CGMS will tell all) Still, I can't make my own adjustments, the study doc will be doing that(someone else fiddling with the pump, weird concept)based on the grad students calculations. My new case will make it easy for her to access the pump.
Also discovered I have to do another blood draw since I'm not on Humalog.(and have to be on it 24 hours prior. Which means, getting up at an insanely early hour(3:30-4 pm) to be able to get there and back before work begins.(Tues.morning) Ugh.(I'm not a morning person)
The study doc came in, rehashed a few things, checked feet, etc. I don't particularly enjoy peeling off my (usually cotton) socks-weird white fuzzies
always fall out and I'm embarrassed. I'm sure endos don't enjoy the process either.

Then we got down to the #1 concern on both of ours' minds.
"You know, you can't be in it if your magnesium or potassium is to low."

Yeah, I know.Ever since she walked through that door,I've been expecting this.

"How's that been?"

"Ok, I haven't had it checked recently. I do have to take the supplements periodically but I've not had a bad dip in the levels in a long time.You know I've
got that leak, like Bartter's Syndrome.I guess I never told you that officially, since the end of that study."

"Last time, the real problem with the sudden drop in your levels was from the IV insulin clamp-with the pump, that won't be so much of an issue. I want you to really load up on those supplements, to further minimalize those chances. Also, your iron levels were a bit low last month so we need to recheck that, you can't be in the study if those are too low either."

CGMS alarms will be off, so I guess I won't know if I'm low/high from any of the alarms..The bg goal is 130 all morning, and 100 all afternoon. She said their next study will be with the Navigator/Cozmo- a closed loop system.(no time frame on when that would be) I bet that will be interesting.

Levels came back acceptable, so I'm on for Thursday night at 6 pm!

2 comments:

type1emt said...

testing

Anonymous said...

^^ nice blog!! ^@^

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