Woke up this morning
counted my toes
slipped on my glasses
lanced my finger
relanced my finger
sighed at the result
bolused a correction
trotted downstairs
devoured two waffles,sunny side brown
checked my email
tripped over the cats
drove to the airport
kissed my husband goodbye
got frisked by a TSA agent
felt the whoosh on the downside of the 3.0-3.5 hour bolus
popped two tabs
squished in an airplane seat
ate half a granola bar
arrived in a hot place
downed a big Mac
drank diet coke #2
rescued my luggage
waited on a shuttle
gave bad advice
arrived to a broken ac
went to a theme park
drank diet coke #3
skyrocketed 200+
ate a salad
drank diet coke #4
walked my legs off
corrected again
ate half a pizza
recounted fingers & toes
bolused madly
smelt the fresh goodness of smashed insulin
conked out
dreaming of a diabetes-less world
until A. I wake up high
or B. I wake up low.
more harm then good?
perhaps,but at least I gave it all I had,& therein lies the victory.
- Posted using BlogPress from my iPhone
Sunday, June 27, 2010
Thursday, June 24, 2010
Diabetes versus Six
Tuesday, June 22, 2010
A Different Type of Hypo
Today,I learned something.I learned that certain things do not mix well in the chemistry lab that is the human body.I learned that labels on products are not there to take up space,& should be read.And I learned that liberal applications of topical lidocaine based ointments(for a rash) will slowely absorb into one's blood stream & hit,like a brick,on a 85+ degree Sunday morning.At which point you will read the back,and freak out,as you've been applying large amounts daily,for the past 3 days.
And I've learned,that because you feel really horrible & shaky (& bg is holding steady) & decide that it might be a good idea to go to the Emergency Room,they tend to take said matter very seriously,despite there being plenty of other sick people there.Near immeadiete EKG,bloodwork,IV line.The technician came back & escorted me to the waiting room..front of the line pass.There must have been something amiss on that EKG because,short of dying,you will always wait several hours,not ten minutes. Heart monitor applied when I got to a room. I learned that there are no blood measurements for lidocaine but enough of it will A.kill you B.make you have a seizure or C.mess up your electrolytes & screw with your EKG which is apparently what it's done to mine,given that I have no cardiac history.I learned that doctors will still throw in a good diabetes lecture while they're lecturing you on the toxicity of lidocaine. I learned that magnesium,given without saline,still burns the entire groin/stomach & gives a buzz.(and not the one from Toy Story)
5 hours later,I'd improved a whopping .2,to .8. They'd maxed out on the amount they could give (outpatient) so they decided to admit me.The new doc came by and asked if I have any cardiac history,my potassium was low too. Finally, I'm wheeled upstairs.It's late at that point so no new orders have been written for more mag,until I get upstairs.I am not having a heart attack,nor do I feel any chest discomfort but the monitor stuff stays on,because low electrolytes mess up the heart rhythm.All I want,is to feel human again,the infusion process cannot go fast enough. Round #2 with the magnesium infusion.(it's mixed with saline that time) Sleep. Get poked by 6 am vampires. Give up on sleep. Eat a tasteless breakfast, wait on the doctor to come by & deliver blood results. Still only 1.1. Eat lunch,swallow more potassium pills,have another round of magnesium, re-wait on the doctor,have more blood drawn-it's now 1.4 & the potassium is 3.8 so it's good for discharge. Eat supper, have paraphenalia removed/etc. discover that you have a tape allergy & you're now a brilliant red from the monitor patches.Won't be treating it with lidocaine,needless to say.Discharged/home/bed.Sleep 12 hours,wake up to a 306 and two units left in the resevour.Change resevour,set. Schedule nephrologist appt. Dip briefly to 200,go right up again to 300-400 where you remain most of the day.(despite boluses,despite everything) Discover that car ac is broken,on one of the hottest days of the year.(and hubby is at work) Discover that driving to the appt anyway is not a good idea as you have a dizzyness attack & turn the appt into a recovery/cold cloth/fluids session. Make it down to the lab,give up more blood. Drive home. Change infusion set,take a shot,collapse into bed-the week can only get better from here, I want to get these levels back on track so I can enjoy myself in Orlando.Had to miss going to pump group & swimming lessons because of all of the above.I am so worn out,both physically and emotionally it's knocked me through the loop.I don't want it to get worse & do anything else,it's done more then enough damage.
But most of all, I've learned that I was lucky,it could have been worse. Dumb luck is my forte.(that,or my guardian angel works overtime)
- Posted using BlogPress from my iPhone
And I've learned,that because you feel really horrible & shaky (& bg is holding steady) & decide that it might be a good idea to go to the Emergency Room,they tend to take said matter very seriously,despite there being plenty of other sick people there.Near immeadiete EKG,bloodwork,IV line.The technician came back & escorted me to the waiting room..front of the line pass.There must have been something amiss on that EKG because,short of dying,you will always wait several hours,not ten minutes. Heart monitor applied when I got to a room. I learned that there are no blood measurements for lidocaine but enough of it will A.kill you B.make you have a seizure or C.mess up your electrolytes & screw with your EKG which is apparently what it's done to mine,given that I have no cardiac history.I learned that doctors will still throw in a good diabetes lecture while they're lecturing you on the toxicity of lidocaine. I learned that magnesium,given without saline,still burns the entire groin/stomach & gives a buzz.(and not the one from Toy Story)
5 hours later,I'd improved a whopping .2,to .8. They'd maxed out on the amount they could give (outpatient) so they decided to admit me.The new doc came by and asked if I have any cardiac history,my potassium was low too. Finally, I'm wheeled upstairs.It's late at that point so no new orders have been written for more mag,until I get upstairs.I am not having a heart attack,nor do I feel any chest discomfort but the monitor stuff stays on,because low electrolytes mess up the heart rhythm.All I want,is to feel human again,the infusion process cannot go fast enough. Round #2 with the magnesium infusion.(it's mixed with saline that time) Sleep. Get poked by 6 am vampires. Give up on sleep. Eat a tasteless breakfast, wait on the doctor to come by & deliver blood results. Still only 1.1. Eat lunch,swallow more potassium pills,have another round of magnesium, re-wait on the doctor,have more blood drawn-it's now 1.4 & the potassium is 3.8 so it's good for discharge. Eat supper, have paraphenalia removed/etc. discover that you have a tape allergy & you're now a brilliant red from the monitor patches.Won't be treating it with lidocaine,needless to say.Discharged/home/bed.Sleep 12 hours,wake up to a 306 and two units left in the resevour.Change resevour,set. Schedule nephrologist appt. Dip briefly to 200,go right up again to 300-400 where you remain most of the day.(despite boluses,despite everything) Discover that car ac is broken,on one of the hottest days of the year.(and hubby is at work) Discover that driving to the appt anyway is not a good idea as you have a dizzyness attack & turn the appt into a recovery/cold cloth/fluids session. Make it down to the lab,give up more blood. Drive home. Change infusion set,take a shot,collapse into bed-the week can only get better from here, I want to get these levels back on track so I can enjoy myself in Orlando.Had to miss going to pump group & swimming lessons because of all of the above.I am so worn out,both physically and emotionally it's knocked me through the loop.I don't want it to get worse & do anything else,it's done more then enough damage.
But most of all, I've learned that I was lucky,it could have been worse. Dumb luck is my forte.(that,or my guardian angel works overtime)
- Posted using BlogPress from my iPhone
Tuesday, June 15, 2010
Jackpot at the Endo's
Congratulations are in order.
Or not. Depends on which part of the appointment with my endocrinologist you witnessed.
On the one hand, I have broken the 8.0 barrier. (dropped from 8.4 to 7.9) On the other hand, it would have been better if I'd not had (2) 400's and 1 (500's) in the past week. I was sort of dissapointed, because I have had weeks of utterly stellar bgs otherwise and was hoping to have broken the 7.0 barrier. So no dancing on the exam table for me. Lowering an a1c is hard work.(impossible work)
And a recheck of my thyroid levels have turned out normal. Yay,yay! And it's time to get my eyes rechecked.(ugh,ugh)
And here's where I confess to being a slobby, no-good-at-keeping-complete-record-books PWD. Although I generally put in an effort the week before an appt. Add that to the practice of sometimes bolusing for meals/correcting via syringe, and not putting the carb count in my pump & the result is a very frustrated endo so I got the whole "we can't help you if you don't keep complete records," etc. It then turned to,"it's better but an average of 160 doesn't cut it if you want to have an a1c in the 6's and your average should be in the low 100's." And displeasure at my post-meal blood sugar being 310.
All in all, there were two minutes of feeling great about myself and 18 of mentally wishing I was 2,000 miles away. Exhausting doesn't describe it. It all needed to be said, for the purposes of the future plans,but more and more you just feel like your endo has turned into Dr. Jekyll from Dr.O'Awesome. Do, or do not-there is no try. Icing on the proverbial cake..news that I may need to switch from Apidra to Humalog (at some point in the future). What fun that will NOT be.(Humalog sticks around forever)
But coming home to this..
.jpg)
courtesy of Diatribe (signed by the great James Hirsch himself) made the day slightly better. I am a winner.(if not at diabetes, at least at various contests)
Or not. Depends on which part of the appointment with my endocrinologist you witnessed.
On the one hand, I have broken the 8.0 barrier. (dropped from 8.4 to 7.9) On the other hand, it would have been better if I'd not had (2) 400's and 1 (500's) in the past week. I was sort of dissapointed, because I have had weeks of utterly stellar bgs otherwise and was hoping to have broken the 7.0 barrier. So no dancing on the exam table for me. Lowering an a1c is hard work.(impossible work)
And a recheck of my thyroid levels have turned out normal. Yay,yay! And it's time to get my eyes rechecked.(ugh,ugh)
And here's where I confess to being a slobby, no-good-at-keeping-complete-record-books PWD. Although I generally put in an effort the week before an appt. Add that to the practice of sometimes bolusing for meals/correcting via syringe, and not putting the carb count in my pump & the result is a very frustrated endo so I got the whole "we can't help you if you don't keep complete records," etc. It then turned to,"it's better but an average of 160 doesn't cut it if you want to have an a1c in the 6's and your average should be in the low 100's." And displeasure at my post-meal blood sugar being 310.
All in all, there were two minutes of feeling great about myself and 18 of mentally wishing I was 2,000 miles away. Exhausting doesn't describe it. It all needed to be said, for the purposes of the future plans,but more and more you just feel like your endo has turned into Dr. Jekyll from Dr.O'Awesome. Do, or do not-there is no try. Icing on the proverbial cake..news that I may need to switch from Apidra to Humalog (at some point in the future). What fun that will NOT be.(Humalog sticks around forever)
But coming home to this..
.jpg)
courtesy of Diatribe (signed by the great James Hirsch himself) made the day slightly better. I am a winner.(if not at diabetes, at least at various contests)
Friday, June 11, 2010
A Taste of June 15
(the real question is-will it survive drops/dunks in the sink/etc. as well as the le trusty (old) 3G?) The thing looks really, really fragile. Regardless, I'm very excited to get one! (hello,quadruple memory upgrade!!)
Thursday, June 10, 2010
Eye(d)
It's been 11 years since that day. Eleven. (forgive my obsession with sort-of-pointless anniversaries.I don't consider this one to be that,though.)
Eleven years since my mom and I got in a car,in the early predawn hours,for the hour ride to the hospital.We were late,because my mom got a ticket for cutting between the sides of the interstate on the emergency access road. I guess blindness wasn't an emergency to the State Highway patrol.
I was epically high that morning(370) but none of that mattered.All that mattered,was that I couldn't see anything.The world was a 20/400 blur.On the way to the OR,I tripped,banged,and felt my way behind the orderly. And then fell,to the mortification of any modesty I had left. Entire body exposition,as my gown fell off. That's pretty much the experience,in a nutshell.(naked & blind,roomful of opposite sex health care professionals.Sole comfort was not knowing how many people were in there)
I went out.And came back,to a competely white world (no,it wasn't heaven). One eye,bandaged. The other,dysfunctional. Stood up,black dots streaked across the landscape of bad eye.Lay back down again,quickly.
And the next day,felt the joy of restored vision & the gratitude of a 2nd chance. I cried,profusely.(probably everyone does) 2.5 weeks of worry melted away like a cloaked nightmare. I will always have to wear reading glasses(they hadn't perfected to whole near-far lens implants yet) but to me it is a small price to pay. I will do whatever it takes to keep my vision. Diabetes was to blame(months of high blood sugars wracked havoc,pre-diagnosis) ,but modern medicine does win occasionally, & when it does,there's a sense of stickin' it to the D. I'd have a considerably different life,if it weren't for those surgeries. To me,they meant everything.
- Posted using BlogPress from my iPhone
Eleven years since my mom and I got in a car,in the early predawn hours,for the hour ride to the hospital.We were late,because my mom got a ticket for cutting between the sides of the interstate on the emergency access road. I guess blindness wasn't an emergency to the State Highway patrol.
I was epically high that morning(370) but none of that mattered.All that mattered,was that I couldn't see anything.The world was a 20/400 blur.On the way to the OR,I tripped,banged,and felt my way behind the orderly. And then fell,to the mortification of any modesty I had left. Entire body exposition,as my gown fell off. That's pretty much the experience,in a nutshell.(naked & blind,roomful of opposite sex health care professionals.Sole comfort was not knowing how many people were in there)
I went out.And came back,to a competely white world (no,it wasn't heaven). One eye,bandaged. The other,dysfunctional. Stood up,black dots streaked across the landscape of bad eye.Lay back down again,quickly.
And the next day,felt the joy of restored vision & the gratitude of a 2nd chance. I cried,profusely.(probably everyone does) 2.5 weeks of worry melted away like a cloaked nightmare. I will always have to wear reading glasses(they hadn't perfected to whole near-far lens implants yet) but to me it is a small price to pay. I will do whatever it takes to keep my vision. Diabetes was to blame(months of high blood sugars wracked havoc,pre-diagnosis) ,but modern medicine does win occasionally, & when it does,there's a sense of stickin' it to the D. I'd have a considerably different life,if it weren't for those surgeries. To me,they meant everything.
- Posted using BlogPress from my iPhone
Monday, June 07, 2010
Veni, Vidi, Visa
(I came, I saw, I bought)
Diabetes is very expensive.Even if you have really good insurance,even if you can afford the latest & best.
Last year, I had the not-so-enviable experience of throwing my Dexcom transmitter into a Danish trashcan,which eventually made it's way to a Danish landfill. I usually put a layer of Opsite first(and then insert the sensor,snap the transmitter in place,good to go for the next two weeks) and when it's finished,I rip it off & put it all near a new sensor for the next insertion.Fine if you're not on vacation,rushed for time,and feel like crud from respiratory crud.In a fevered moment,I must have ripped it off and threw it in a trashcan(not the suitcase)5 days later(and on the other side of the Atlantic)as I'm systematically searching & triple-checking my suitcase, said transmitter was no where to be found. Dexcom,unfortuantly,does not replace them as a one time courtesy..it was $375 for a new one.It's one of those situations where you can't say no,because you NEED the darn thing.Whip out the VISA and watch the money dissapeir.(and never,ever,ever lose another one)The major mistakes of my diabetic existance usually lead to my actually learning to prevent from doing them in the future,but the list of future mistakes is endless. Diabetes is fun that way.
And so,I have baked insulin & test strips,had to buy a temporary meter(because the one you bring on vacation just has to die), drowned a pump in Betadine, and done many other things to add to the existing cost of diabetes. It just seems that there is no room for being human, in any of it.Insurance companies are so strict,& most limit you to the bare necessities.Beyond that,you can spend any amount of money on D-stuff.
- Posted using BlogPress from my iPhone
Diabetes is very expensive.Even if you have really good insurance,even if you can afford the latest & best.
Last year, I had the not-so-enviable experience of throwing my Dexcom transmitter into a Danish trashcan,which eventually made it's way to a Danish landfill. I usually put a layer of Opsite first(and then insert the sensor,snap the transmitter in place,good to go for the next two weeks) and when it's finished,I rip it off & put it all near a new sensor for the next insertion.Fine if you're not on vacation,rushed for time,and feel like crud from respiratory crud.In a fevered moment,I must have ripped it off and threw it in a trashcan(not the suitcase)5 days later(and on the other side of the Atlantic)as I'm systematically searching & triple-checking my suitcase, said transmitter was no where to be found. Dexcom,unfortuantly,does not replace them as a one time courtesy..it was $375 for a new one.It's one of those situations where you can't say no,because you NEED the darn thing.Whip out the VISA and watch the money dissapeir.(and never,ever,ever lose another one)The major mistakes of my diabetic existance usually lead to my actually learning to prevent from doing them in the future,but the list of future mistakes is endless. Diabetes is fun that way.
And so,I have baked insulin & test strips,had to buy a temporary meter(because the one you bring on vacation just has to die), drowned a pump in Betadine, and done many other things to add to the existing cost of diabetes. It just seems that there is no room for being human, in any of it.Insurance companies are so strict,& most limit you to the bare necessities.Beyond that,you can spend any amount of money on D-stuff.
- Posted using BlogPress from my iPhone
Wednesday, June 02, 2010
The Top Five 'Betic (& not) June Deals
#1. MEDCO.
MHS10, tenoff,MHS20,10off, gets you $10 (or $20 off) your purchase of $10+. New accounts only. Shipping is only .99, so you can get a boatload of cheap glucose tablets. Or whatsoever else your heart desires. And if Medco allows it, you can use another code for another cheap order. (its very YMMV with these codes)
#2. Nationwide FREE a1c test, courtesy of CVS pharmacy. This is pretty awesome for the uninsured/underinsured folks out there, it raises some level of awareness that something might need changing. And you can do it anytime,at any Minute Clinic CVS pharmacy. As luck would have it, Massachusetts,Maryland, Pennsylvania, and Nevada are the only four non-participating states,and of course, I live in one of those states. Way to go, CVS!
#3 Odwalla.com FREE tree(in your honor) planted.(when you vote for your favorite national park)Because generating a small city's worth of medical waste(yearly) should be offset somehow.
#4 Friendly's FREE ICE CREAM,Sat. June 5 (12 pm-5 pm) Just in time to ruin my a1c.(just kidding,it is what it is,and a serving of ice cream will not change that)
#5 FREE admission to any museum, Sat. Sept. 25,2010.(must preregister) It has nothing to do with diabetes,unless you're visiting a urological museum...but it's a good deal!
MHS10, tenoff,MHS20,10off, gets you $10 (or $20 off) your purchase of $10+. New accounts only. Shipping is only .99, so you can get a boatload of cheap glucose tablets. Or whatsoever else your heart desires. And if Medco allows it, you can use another code for another cheap order. (its very YMMV with these codes)
#2. Nationwide FREE a1c test, courtesy of CVS pharmacy. This is pretty awesome for the uninsured/underinsured folks out there, it raises some level of awareness that something might need changing. And you can do it anytime,at any Minute Clinic CVS pharmacy. As luck would have it, Massachusetts,Maryland, Pennsylvania, and Nevada are the only four non-participating states,and of course, I live in one of those states. Way to go, CVS!
#3 Odwalla.com FREE tree(in your honor) planted.(when you vote for your favorite national park)Because generating a small city's worth of medical waste(yearly) should be offset somehow.
#4 Friendly's FREE ICE CREAM,Sat. June 5 (12 pm-5 pm) Just in time to ruin my a1c.(just kidding,it is what it is,and a serving of ice cream will not change that)
#5 FREE admission to any museum, Sat. Sept. 25,2010.(must preregister) It has nothing to do with diabetes,unless you're visiting a urological museum...but it's a good deal!
Thursday, May 27, 2010
The American Finale
Dear Fox,(aka American Idol)
You had us all captive last night, what with an unexpected Brett Michael's appearance and a literal Pants on the Ground rendition. To be honest, it was a bit overkill(hurry up with the results already!) but I guess you wanted to make Simon's last night memorable.
I can now see why Simon really,really wants to get out-American Idol has degenerated into a "tween girl appeal" vote. You can be the best,but unless you're appealing to the younger set,you will not win American Idol.
And Crystal Bowersox was, quite simply, the best. The judges can't say so but the real champion last night walked away without the title. Crystal-you've inspired a nation & helped bring awareness to type 1 diabetes(in addition to being an amazing singer). And my hope for you, is that you get a record deal & outsell Lee DeWyze into obscurity. I hope you have only the best diabetes care from here on out,no one should have to beg for a medicine that keeps them alive. I hope you know that you are the REAL CHAMPION.
As for you, Fox,I hope that someday A.I. will be more then a popularity contest. Perhaps you should consider having two champions..a male, and a female. Until you do, the hearttrobs will continue to take the title & the really good singers will never win.
Signed,
A-sometimes-watcher-of-American-Idol-when-the-mood-and-the-circumstances-align
You had us all captive last night, what with an unexpected Brett Michael's appearance and a literal Pants on the Ground rendition. To be honest, it was a bit overkill(hurry up with the results already!) but I guess you wanted to make Simon's last night memorable.
I can now see why Simon really,really wants to get out-American Idol has degenerated into a "tween girl appeal" vote. You can be the best,but unless you're appealing to the younger set,you will not win American Idol.
And Crystal Bowersox was, quite simply, the best. The judges can't say so but the real champion last night walked away without the title. Crystal-you've inspired a nation & helped bring awareness to type 1 diabetes(in addition to being an amazing singer). And my hope for you, is that you get a record deal & outsell Lee DeWyze into obscurity. I hope you have only the best diabetes care from here on out,no one should have to beg for a medicine that keeps them alive. I hope you know that you are the REAL CHAMPION.
As for you, Fox,I hope that someday A.I. will be more then a popularity contest. Perhaps you should consider having two champions..a male, and a female. Until you do, the hearttrobs will continue to take the title & the really good singers will never win.
Signed,
A-sometimes-watcher-of-American-Idol-when-the-mood-and-the-circumstances-align
Monday, May 24, 2010
Fear Factor, x 100
What is it like?

It's like strapping on a jumpsuit and doing things out of anyone's comfort zone each and every day of our lives. We all have things that take us there..a brutal gym workout, an exhaustive medication regimen,an evening with the Food Nazi's. What scares me might not scare you, and vice versa. For me, it's bolusing for carbs. Each and every day of my life, I jump off that (alligorical) building, trusting that everything will work out..the parachute(aka carbs) will slow the descent, the Dexcom will navigate me to a good postmeal,and that other things won't pop up to complicate the whole landing process. Most times it works, sometimes, I crash and burn. The fact that you've done it a million times without incident doesn't make up for the hundreds of times you haven't. Because the bad thing is knowing that you may not get it right, and it's not like practice makes perfect, diabetes can change on a whim.You just have to trust there is a ground,and the risks are quite low that anything will happen.The goal is to try to minimize those times you crash and burn.(double-checking carb counts,glucose & extra supplies on hand) Diabetes is one heck of alot scarier then even skydiving.

It's like strapping on a jumpsuit and doing things out of anyone's comfort zone each and every day of our lives. We all have things that take us there..a brutal gym workout, an exhaustive medication regimen,an evening with the Food Nazi's. What scares me might not scare you, and vice versa. For me, it's bolusing for carbs. Each and every day of my life, I jump off that (alligorical) building, trusting that everything will work out..the parachute(aka carbs) will slow the descent, the Dexcom will navigate me to a good postmeal,and that other things won't pop up to complicate the whole landing process. Most times it works, sometimes, I crash and burn. The fact that you've done it a million times without incident doesn't make up for the hundreds of times you haven't. Because the bad thing is knowing that you may not get it right, and it's not like practice makes perfect, diabetes can change on a whim.You just have to trust there is a ground,and the risks are quite low that anything will happen.The goal is to try to minimize those times you crash and burn.(double-checking carb counts,glucose & extra supplies on hand) Diabetes is one heck of alot scarier then even skydiving.
Saturday, May 22, 2010
The Waiting Game
Waiting.
Wishing the email would come & put me out of my wondering misery.
I am really glad there are people like Ellen Ullman,tireless advocates for the rights(and needs) of not just kids with diabetes,their families,and adults with diabetes.I've known Ellen since forever(through CWD for 10 years,& met her for the first time in 2005) she is just amazing.(both in person & online) She is an article guru, sent me an article,name & email info for this guy at Yale who is big in the world of Bartter's research,suggesting I inquire about DNA research.I didn't have anything to lose,it's not like the NIH has anything (that I can find)going on in terms of research into the disease.To hope that they might give me a $2000 genetics test (for free) is a hope I didn't want to let myself feel.(yeah,I'm good at getting freebies but not that good) The researcher promptly emailed me back with all these questions,namely to determine if it was just a pointless exercise,if it was Classic Bartter's you don't need a genetics test to confirm that. Then he wanted a boatload of medical records,which (because of vacation & school & doctor's offices being a typical PITA) took 1.2 months to acquire,sort,fax relative info to him.
Now I wait, and try not to be impatient.(but with every "ding" to my email inbox,it just intensifies the feeling)Perhaps they should just scrap the whole mess & name a disease after me so no one will have to scratch their heads any longer.I'm still afraid to hope for the genetics test(although if anyone could afford it to give 'em out,it would be Yale),but the input will (regardless) be invaluable to me,whatever he says.Cross fingers & toes. In the meantime,I wait...be it a week,a month,or a year.
- Posted using BlogPress from my iPhone
Wishing the email would come & put me out of my wondering misery.
I am really glad there are people like Ellen Ullman,tireless advocates for the rights(and needs) of not just kids with diabetes,their families,and adults with diabetes.I've known Ellen since forever(through CWD for 10 years,& met her for the first time in 2005) she is just amazing.(both in person & online) She is an article guru, sent me an article,name & email info for this guy at Yale who is big in the world of Bartter's research,suggesting I inquire about DNA research.I didn't have anything to lose,it's not like the NIH has anything (that I can find)going on in terms of research into the disease.To hope that they might give me a $2000 genetics test (for free) is a hope I didn't want to let myself feel.(yeah,I'm good at getting freebies but not that good) The researcher promptly emailed me back with all these questions,namely to determine if it was just a pointless exercise,if it was Classic Bartter's you don't need a genetics test to confirm that. Then he wanted a boatload of medical records,which (because of vacation & school & doctor's offices being a typical PITA) took 1.2 months to acquire,sort,fax relative info to him.
Now I wait, and try not to be impatient.(but with every "ding" to my email inbox,it just intensifies the feeling)Perhaps they should just scrap the whole mess & name a disease after me so no one will have to scratch their heads any longer.I'm still afraid to hope for the genetics test(although if anyone could afford it to give 'em out,it would be Yale),but the input will (regardless) be invaluable to me,whatever he says.Cross fingers & toes. In the meantime,I wait...be it a week,a month,or a year.
- Posted using BlogPress from my iPhone
Tuesday, May 18, 2010
The Top Fourteen Lisence Plate Ideas
The Top Fourteen Diabetic License Plates
1. TYP WERD (type weird)
2. CURE 4ME
3.A1C ROCS
4. MY IPUMP
5. SUGR LOW
6. DM SUCKS
7.GR8 ENDO
8. DRV HYPO
9. THE OC
10.BLEED RD
11.5MOR YRS
12. NO SHOTS
13. BETA BUM
14. DKA PRO
And plates I have actually seen..
1. ISLET TX
2.MINIMED
3. NSLN PMP
4. SWET PEE.
I love trying to figure out what the abbreviations on lisence plates mean.
1. TYP WERD (type weird)
2. CURE 4ME
3.A1C ROCS
4. MY IPUMP
5. SUGR LOW
6. DM SUCKS
7.GR8 ENDO
8. DRV HYPO
9. THE OC
10.BLEED RD
11.5MOR YRS
12. NO SHOTS
13. BETA BUM
14. DKA PRO
And plates I have actually seen..
1. ISLET TX
2.MINIMED
3. NSLN PMP
4. SWET PEE.
I love trying to figure out what the abbreviations on lisence plates mean.
Sunday, May 16, 2010
Day 7: Wishin' for Bliss
There are many things that would
make up the day of a just-cured PWD. Freedom...from absolotuly everything D-related, dropped on one like a bomb.I'm not sure I would fully grasp the utter magnitude of such an occasion until it actually occured.But the biggest thing,for me, would go beyond the disengagement from food restrictions.(any food and in any quantity at any time of day,with no worry about blood sugars,amount of carbohydrate,etc. would still be awesome, don't get me wrong) It would be the freedom NOT to have to do ( a multitude of) diabetes tasks.
For over 11 years(since Day #1) diabetes care has been my responsibility, a 24/7/365 proposition.As you know,most docs don't even know anything about it & so you're just flying solo,no one can take that from you.Even if you're really sick,you can never stop the responsibility.They'll treat you for the other stuff,but the D is up to you.But for 32 hours in my life,it was not my responsibility,it was not my concern,& I kind of liken the feeling to being cured. My diabetes care(all of it) was in the hands of an endocrinologist & I was not permitted to even know my blood sugar for a 10 hour stretch. Weirdest experience of my life.She'd read the blood sugar that the lab tech would hand her,& tweak basals or bolus or make me eat and otherwise attempt reasonable control & I'd just sit/lie there,wondering what my blood sugar was & what I was really doing there.( besides watching bad tv,earning $12/hour and being completely useless) It really didn't feel like my diabetes,it felt like I was her human science experiment.It's like forced disengagement from something you cannot ever forget,& while being incredibly difficult it was kind of nice.(not to have to worry) It's just hard,giving up all that "gotta know" patient perogitive.(FTR,she did such a good job of it you'd think it was her diabetes;after the study ended she informed me of my bgs) And so,I think that first day without diabetes would probably be spent carbogorging & checking once or twice anyway,just to be sure I really didn't have diabetes anymore! I would need that reassurance.
I also think that I'd want to stay up for the full 24 hour stretch...to just enjoy the awesomeness of an entire day without diabetes. No highs,no lows,no food restrictions,party till the beta cells come home. Perhaps basking on a beach somewhere,Margarita(s) in hand,without a care in the world.That'd be glorious.(and man,I cannot WAIT.) I want it to be right now.
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make up the day of a just-cured PWD. Freedom...from absolotuly everything D-related, dropped on one like a bomb.I'm not sure I would fully grasp the utter magnitude of such an occasion until it actually occured.But the biggest thing,for me, would go beyond the disengagement from food restrictions.(any food and in any quantity at any time of day,with no worry about blood sugars,amount of carbohydrate,etc. would still be awesome, don't get me wrong) It would be the freedom NOT to have to do ( a multitude of) diabetes tasks.
For over 11 years(since Day #1) diabetes care has been my responsibility, a 24/7/365 proposition.As you know,most docs don't even know anything about it & so you're just flying solo,no one can take that from you.Even if you're really sick,you can never stop the responsibility.They'll treat you for the other stuff,but the D is up to you.But for 32 hours in my life,it was not my responsibility,it was not my concern,& I kind of liken the feeling to being cured. My diabetes care(all of it) was in the hands of an endocrinologist & I was not permitted to even know my blood sugar for a 10 hour stretch. Weirdest experience of my life.She'd read the blood sugar that the lab tech would hand her,& tweak basals or bolus or make me eat and otherwise attempt reasonable control & I'd just sit/lie there,wondering what my blood sugar was & what I was really doing there.( besides watching bad tv,earning $12/hour and being completely useless) It really didn't feel like my diabetes,it felt like I was her human science experiment.It's like forced disengagement from something you cannot ever forget,& while being incredibly difficult it was kind of nice.(not to have to worry) It's just hard,giving up all that "gotta know" patient perogitive.(FTR,she did such a good job of it you'd think it was her diabetes;after the study ended she informed me of my bgs) And so,I think that first day without diabetes would probably be spent carbogorging & checking once or twice anyway,just to be sure I really didn't have diabetes anymore! I would need that reassurance.
I also think that I'd want to stay up for the full 24 hour stretch...to just enjoy the awesomeness of an entire day without diabetes. No highs,no lows,no food restrictions,party till the beta cells come home. Perhaps basking on a beach somewhere,Margarita(s) in hand,without a care in the world.That'd be glorious.(and man,I cannot WAIT.) I want it to be right now.
- Posted using BlogPress from my iPhone
Saturday, May 15, 2010
Day 6: Snapshots of a D-Life,part II
Day 6:Snapshots of a D-Life(part 1)
(BlogPress is not cooperating,so this will be in two parts until I can make it to a real computer to combo it)

(about two days worth,boy do they accumulate rapidly)

My insulin holder.(necessity is the mother of invention)

Supplies!(for the next 6 months)

Extra,Extra-read ALL about it!(another reason to attend FFL,it's a really funny newspaper)

Case in point.
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(about two days worth,boy do they accumulate rapidly)

My insulin holder.(necessity is the mother of invention)

Supplies!(for the next 6 months)

Extra,Extra-read ALL about it!(another reason to attend FFL,it's a really funny newspaper)

Case in point.
Posted using BlogPress from my iPhone
Friday, May 14, 2010
The Exorcisest
Somewhere on the East Coast...
It's 4 pm, and a PWD is preparing to go to the gym.But first comes the mental checklist:
-pump?(check)
-Dexcom?( check)
-workout gear?( check)
-money?(check)
-iPhone/music player?(check)
-glucose tabs/juice?(check)
-syringe/insulin?(check)
Moderatly satisfied that she's covered every possible scenario,she heads out,first stopping at the fast food place for a salad. She checks her blood sugar(167),boluses for the salad, and waltzes into the gym,intent on a productive workout.All goes well,until she snags her tubing on the door to the locker room & yelps in pain as the infusion set rips itself out. Guess what-no backup set.She decides to keep an eye on it,& just keep the workout short.
First Stop,weights.That goes well,but the line on the Dexcom soon skyrockets.(stupid anaerobic activity) Ends at 238 mg/dl.
Takes a correction,via shot.Does 15 minutes of running.Feels like it's going nowhere, so ends early.Dexcom dips slightly.
Gets home,starving & proceeds to eat most of everything in the refridgerater,& invariably goes low anyway.
That's why I hate exercise,it makes me twice as hungry (no matter what I eat before,or during) ,sends my bg all over the map,and makes me ache all over. I don't go to the gym as often as I should,but I do get exercise around the house with housework,etc.(and walking to my classes 2x a week)I want to learn to swim this summer,that would be alot more fun the sweat-a-thon that the gym is.Exercise is too much work for very little reward.(or so it feels like)
- Posted using BlogPress from my iPhone
It's 4 pm, and a PWD is preparing to go to the gym.But first comes the mental checklist:
-pump?(check)
-Dexcom?( check)
-workout gear?( check)
-money?(check)
-iPhone/music player?(check)
-glucose tabs/juice?(check)
-syringe/insulin?(check)
Moderatly satisfied that she's covered every possible scenario,she heads out,first stopping at the fast food place for a salad. She checks her blood sugar(167),boluses for the salad, and waltzes into the gym,intent on a productive workout.All goes well,until she snags her tubing on the door to the locker room & yelps in pain as the infusion set rips itself out. Guess what-no backup set.She decides to keep an eye on it,& just keep the workout short.
First Stop,weights.That goes well,but the line on the Dexcom soon skyrockets.(stupid anaerobic activity) Ends at 238 mg/dl.
Takes a correction,via shot.Does 15 minutes of running.Feels like it's going nowhere, so ends early.Dexcom dips slightly.
Gets home,starving & proceeds to eat most of everything in the refridgerater,& invariably goes low anyway.
That's why I hate exercise,it makes me twice as hungry (no matter what I eat before,or during) ,sends my bg all over the map,and makes me ache all over. I don't go to the gym as often as I should,but I do get exercise around the house with housework,etc.(and walking to my classes 2x a week)I want to learn to swim this summer,that would be alot more fun the sweat-a-thon that the gym is.Exercise is too much work for very little reward.(or so it feels like)
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Thursday, May 13, 2010
Carb-o-nation
"I never met a carb I didn't like."(Author unknown)
"Food, glorious food!" -Oliver Twist
I love food, but it doesn't love me. Anything beyond 40 grams of carbs has immediate and disastrous effects upon my blood sugar..but I still love carbs. Doughnuts(with the cream filling), spaghetti,cereal waffles,bagels,Twinkies,chips n'dip, ice cream with decadent dripping chocolate syrup,all variety of pasta dishes,pizza,subs,biscuits 'n gravy, mashed potatos, breads,you get the general idea. I cannot live on egg whites and celery sticks. I can generally do pretty well with reducing the after-meal spikes(especially thanks to help of Le Symlin)but there are still foods that are really, really, disastrous and I fail every time.
Like cereal. Any kind or brand, hello 400 mg/dl.
And Chinese food. Not quite a 400, more like 260 for 3-4 hours while I bolus repeatedly and wonder if it will ever come down.
So I restrict those,(as in, eat once or twice a year)and I try to not eat humongous carbohydrate meals.(not just for the aftermeal spike, but because all that insulin catches up and makes me plummet. And its not just a matter of poor timing,it's when I take a good deal of insulin for a meal,the action of it gets pushed out several more hours(for some bizarre reason),it's like Superbolus and it takes forever to out of the system. I guess that's good if you plan to eat again anyway,but sometimes I'm simply not hungry and there's no freedom in being married to your insulin. I guess I could get the cereal bolus down(with some experimentation)but anything involving a pre-meal bolus of 30+ minutes has me more then a little leery. There are other breakfast foods that are more predictable(that don't require pre-bolusing) & I'd rather stick with them.
I eat alot of protein,to help smooth the spikes(sometimes too much and that has bg effects too) And multiple snacks throughout the course of day-like cottage cheese, graham crackers w/pb, soyjoy bars,popcorn w/cheese,ham sandwiches.All carbs are fine(in moderation) and if 3 chocolate bars equaled 45 carbohydrates you can bet I'd eat 'em all. Unfortunately,that's not the case.(and that's not to say that I don't go carb wild and eat like I haven't, for a week) It all depends on whether or not you can get(and keep) those numbers where you want them. For me, small meals and frequent snacks work better.
Sometimes it may appear that PWD don't have any freedom in their diet..but in reality,we're like most of the rest of the non-pancreotically challenged crowd.It's a matter of intake vs.outtake,& the rest of America has to deal with that issue too.
(if you eat too many calories, whether from fat,protein, or carbs, you will gain weight)As a nation, we eat too many calories(and carbs are a major contributor to that)But carbs aren't evil if you can handle the calories/bg rise.(it's the diabetes that's evil) Although, if you're type 2..it may be a whole other ballgame,I'm writing this from a type 1 perspective. If I don't have carbs, I just cannot function. That's my take on the whole issue.
"Food, glorious food!" -Oliver Twist
I love food, but it doesn't love me. Anything beyond 40 grams of carbs has immediate and disastrous effects upon my blood sugar..but I still love carbs. Doughnuts(with the cream filling), spaghetti,cereal waffles,bagels,Twinkies,chips n'dip, ice cream with decadent dripping chocolate syrup,all variety of pasta dishes,pizza,subs,biscuits 'n gravy, mashed potatos, breads,you get the general idea. I cannot live on egg whites and celery sticks. I can generally do pretty well with reducing the after-meal spikes(especially thanks to help of Le Symlin)but there are still foods that are really, really, disastrous and I fail every time.
Like cereal. Any kind or brand, hello 400 mg/dl.
And Chinese food. Not quite a 400, more like 260 for 3-4 hours while I bolus repeatedly and wonder if it will ever come down.
So I restrict those,(as in, eat once or twice a year)and I try to not eat humongous carbohydrate meals.(not just for the aftermeal spike, but because all that insulin catches up and makes me plummet. And its not just a matter of poor timing,it's when I take a good deal of insulin for a meal,the action of it gets pushed out several more hours(for some bizarre reason),it's like Superbolus and it takes forever to out of the system. I guess that's good if you plan to eat again anyway,but sometimes I'm simply not hungry and there's no freedom in being married to your insulin. I guess I could get the cereal bolus down(with some experimentation)but anything involving a pre-meal bolus of 30+ minutes has me more then a little leery. There are other breakfast foods that are more predictable(that don't require pre-bolusing) & I'd rather stick with them.
I eat alot of protein,to help smooth the spikes(sometimes too much and that has bg effects too) And multiple snacks throughout the course of day-like cottage cheese, graham crackers w/pb, soyjoy bars,popcorn w/cheese,ham sandwiches.All carbs are fine(in moderation) and if 3 chocolate bars equaled 45 carbohydrates you can bet I'd eat 'em all. Unfortunately,that's not the case.(and that's not to say that I don't go carb wild and eat like I haven't, for a week) It all depends on whether or not you can get(and keep) those numbers where you want them. For me, small meals and frequent snacks work better.
Sometimes it may appear that PWD don't have any freedom in their diet..but in reality,we're like most of the rest of the non-pancreotically challenged crowd.It's a matter of intake vs.outtake,& the rest of America has to deal with that issue too.
(if you eat too many calories, whether from fat,protein, or carbs, you will gain weight)As a nation, we eat too many calories(and carbs are a major contributor to that)But carbs aren't evil if you can handle the calories/bg rise.(it's the diabetes that's evil) Although, if you're type 2..it may be a whole other ballgame,I'm writing this from a type 1 perspective. If I don't have carbs, I just cannot function. That's my take on the whole issue.
Wednesday, May 12, 2010
My Type Three
I had planned a better post then this,but A.I'm drop-dead exhausted from school exam stuff B.I have a massive stabbing pain in my lungs and C.Its raining cats and dogs.My biggest supportor is my husband,& he deserves all a better post then this.If I survive another day,I want to give that to him.
- Posted using BlogPress from my iPhone
- Posted using BlogPress from my iPhone
Tuesday, May 11, 2010
GoGo, Mr. Low
My favorite way to treat a low(besides not having one in the first place) is juice or glucose tabs. If I'm 50-70,I drink a 25 carb juice box. If I'm 60+, I drink half the juice box. And if I'm below 50, out come the big guns(3 tabs, plus the juice). Or glucose liquid, which is the fastest thing short of glucagon in me.(and has saved my butt on multiple occasions) It just depends on how fast I am dropping, how much IOB is on board, and & whether or not CVS just ran a sale on post-holiday candy. (like peeps,sweettarts,smarties,Airheads,jellybeans, candy corn,cotton candy,and similarly fast-acting carbs)I like them all, but usually don't crave them when I'm not low.(so it's not a great temptation) There are a few things I don't like at all(low or not)-orange juice,any type of coke,and orange glucose tablets.(everything else is fair game)I drop very quickly,the last assisted low I had,(Halloween '08) despite drinking two juice boxes I went out of it 20 minutes later(fortunately it was at the infusion center,so all they had to do was swap out the magnesium bag with D50 & ship me down to the ER,if a low could be termed convenient, that would be it. Consequently, I would rather overeat(and be at least 100+ mg/dl). It's not the best thing for my a1c,but it's best for my peace of mind.(and the pocketbook,who wants to spend hundreds of dollars on ER copays)
Then there are the times when the hungry gene just doesn't turn itself off & after treating the low, I just eat and eat and eat myself into a massive high blood sugar.Anything and everything goes down the hatch.(you know you're hungry when you eat week old beet salad,ewwww) Moderation is the key..you just have to find something that works for you,and be comfortable in that knowledge. Sometimes that's easy, and sometimes it's not,but that's the goal.
Then there are the times when the hungry gene just doesn't turn itself off & after treating the low, I just eat and eat and eat myself into a massive high blood sugar.Anything and everything goes down the hatch.(you know you're hungry when you eat week old beet salad,ewwww) Moderation is the key..you just have to find something that works for you,and be comfortable in that knowledge. Sometimes that's easy, and sometimes it's not,but that's the goal.
Sunday, May 09, 2010
Diabetes Blog Week-A Day in the Life
(It's National DBlog Week,(courtesty of Karen at Bittersweet Diabetes),and though my life is generally pretty dull..I'm doing this post regardless. If you haven't committed yet, join in the fun!)
4 AM- My bladder wakes me up,my Dawn Phenomenon has gone to town and jumped from 150(10 pm) to 298. I am not going to waste precious sleep time trying to determine just whats gone wrong here,set,insulin,delayed fat kicking in,other hormones? I whip out a syringe and mainline 3 units of precious liquid into (plenty of)adipose tissue.Need this sucker to come down, quickly.
7:30 AM- Wake up, blood sugar check. Now down to 112. Dexcom confirmed to be in the same ballpark, at 121. Shoot up 15 mcg of Symlin. Eat breakfast(usually 2 waffles w/syrup,1/2 cup cottage cheese,a fig, and Diet Coke)Bolus for breakfast.
9:30 AM- Insert 2nd pump set, prime and fill Deltec for magnesium administration. Hook up, let run.(opposite side of body) Can someone say Bionic Woman?(2 pumps,Dexcom,iphone continuously on/near person)
10 AM- take multitude of other meds(amiloride,claritan,advil,Nasonex,multivitamin).
Wish it wasn't just diabetes to take care of every day. It's a full time job,keeping all these other meds in line.(or it just feels like it-I know it's really not(comparatively,to those individuals who take half the pharmacy on a daily basis)
Study. Check blood sugar again. (176)
12 PM- 101 mg/dl. Eat lunch. (Sandwich, chips,piece of fruit)
1 PM- Call CDE, review recent overnight bgs.
2PM- CDE calls me,to tweak overnight basals.(with Endo input) It's definatly a basal issue...repeated overnight checks show this to be the case. Switch times of when basal #2 starts, to handle dawn phenomenon.
3-6 PM- Class. Check blood sugar,doodle on iphone, and occasionally, yes,learn something.
4 PM-299. Crap. (didn't bolus enough) Bolus for that.
6 PM- 67, and tanking like a log. Treat. Drive across the street to McDonalds and order 100+ worth of carbohydrates from the menu and gorge down every one of them. Another Symlin injection. I have no self-control.
7 PM- Decide not to go to the gym.(claim blood sugar exhaustion) Head home,clean up.
Twitter.Facebook. Watch TV. Do laundry. Put out recycling and next day's trash.
8 PM-155. That's a decent number, postmeal.
9 PM-BRAAAP.(crosses the 180 mg/dl mark,which is my "high"mark on the Dexcom) Bolus correction.
10 PM-BRAAAP. (dips below 180 briefly,heads over it,and sits on 181) Durn delayed fat.
10:30 PM-BRAAAAP.(dips below 180) Finally heads down, for real.
11:30 PM-144. With that, it's off to bed. Looking forward to doing it all over again tomorrow!
4 AM- My bladder wakes me up,my Dawn Phenomenon has gone to town and jumped from 150(10 pm) to 298. I am not going to waste precious sleep time trying to determine just whats gone wrong here,set,insulin,delayed fat kicking in,other hormones? I whip out a syringe and mainline 3 units of precious liquid into (plenty of)adipose tissue.Need this sucker to come down, quickly.
7:30 AM- Wake up, blood sugar check. Now down to 112. Dexcom confirmed to be in the same ballpark, at 121. Shoot up 15 mcg of Symlin. Eat breakfast(usually 2 waffles w/syrup,1/2 cup cottage cheese,a fig, and Diet Coke)Bolus for breakfast.
9:30 AM- Insert 2nd pump set, prime and fill Deltec for magnesium administration. Hook up, let run.(opposite side of body) Can someone say Bionic Woman?(2 pumps,Dexcom,iphone continuously on/near person)
10 AM- take multitude of other meds(amiloride,claritan,advil,Nasonex,multivitamin).
Wish it wasn't just diabetes to take care of every day. It's a full time job,keeping all these other meds in line.(or it just feels like it-I know it's really not(comparatively,to those individuals who take half the pharmacy on a daily basis)
Study. Check blood sugar again. (176)
12 PM- 101 mg/dl. Eat lunch. (Sandwich, chips,piece of fruit)
1 PM- Call CDE, review recent overnight bgs.
2PM- CDE calls me,to tweak overnight basals.(with Endo input) It's definatly a basal issue...repeated overnight checks show this to be the case. Switch times of when basal #2 starts, to handle dawn phenomenon.
3-6 PM- Class. Check blood sugar,doodle on iphone, and occasionally, yes,learn something.
4 PM-299. Crap. (didn't bolus enough) Bolus for that.
6 PM- 67, and tanking like a log. Treat. Drive across the street to McDonalds and order 100+ worth of carbohydrates from the menu and gorge down every one of them. Another Symlin injection. I have no self-control.
7 PM- Decide not to go to the gym.(claim blood sugar exhaustion) Head home,clean up.
Twitter.Facebook. Watch TV. Do laundry. Put out recycling and next day's trash.
8 PM-155. That's a decent number, postmeal.
9 PM-BRAAAP.(crosses the 180 mg/dl mark,which is my "high"mark on the Dexcom) Bolus correction.
10 PM-BRAAAP. (dips below 180 briefly,heads over it,and sits on 181) Durn delayed fat.
10:30 PM-BRAAAAP.(dips below 180) Finally heads down, for real.
11:30 PM-144. With that, it's off to bed. Looking forward to doing it all over again tomorrow!
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