I am: ME! (PWD, Republitarian, writer, musician, insulin-pumper, EMT, nursing student, retailer,etc.)
I want: a happy, healthy family. (hopefully without my lousy genetics)
I wish: for a continuous glucose moniter
I hate: cooking. I'd rather clean..
I miss: spontainialty, to just hop in the car without the customary stash of medical supplies/food.
I fear: middle of the night hypos, that I'll never finish my (nursing) degree.
I hear: The neighbor kids, splashing in the pool, enjoying a sunny April afternoon.
I wonder: when there will be a cure.
I regret: Never telling the pediatric CDE she was a wonderful person. Never seeing past the end of my own woes, to see anothers. Funerals are too late for too many things.
I am not: organized.
I dance: to many types of music.
I sing: and I don't care that I sound bad!
I cry: over the sappiest novels/movies, and when I am exausted.
I am not always: a dedicated worker.
I make with my hands: crossstitch, gardens, a sparkling-waxed Nugget, and an interesting blog.
I write: because it is "art" to me
I confuse: words that sound the same
I need: more money...
I should: get a life.
I start: many things
I finish: Finish? What's that?
I tag: You!
Sunday, April 30, 2006
Saturday, April 29, 2006
Famous PWD's
Me....
With the old Cozmo Case:
With the new Cozmo case: (that just came in the mail)
I can't decide which I like better- differance(s) between the cases include:
Old
-Flap cover over screens(accidental bolus protection)
-Doesn't look completely "medical"
-Slightly smaller
New
-No plastic covering menu screen/ buttons (Ease of bolusing)
- Sturdier black clip, pump not so likely to "fall off" waistband
-Stiff, needs breaking in(obviously)
There's a new D-life video on Jason Johnson:
Elliott Yamin- Still in the running for American Idol!I've car-chalked my back windshield, to show my total support (until he wins...or gets kicked off) We're rootin' for you,Elliott! ( I would post a pic, but the rest of my car needs a good wash(it's not very photogenic)
With the old Cozmo Case:
With the new Cozmo case: (that just came in the mail)
I can't decide which I like better- differance(s) between the cases include:
Old
-Flap cover over screens(accidental bolus protection)
-Doesn't look completely "medical"
-Slightly smaller
New
-No plastic covering menu screen/ buttons (Ease of bolusing)
- Sturdier black clip, pump not so likely to "fall off" waistband
-Stiff, needs breaking in(obviously)
There's a new D-life video on Jason Johnson:
Elliott Yamin- Still in the running for American Idol!I've car-chalked my back windshield, to show my total support (until he wins...or gets kicked off) We're rootin' for you,Elliott! ( I would post a pic, but the rest of my car needs a good wash(it's not very photogenic)
Monday, April 24, 2006
Drama in the Workplace
Had one of those truly mortifying lows yesterday, about 45 minutes before the end of work. 30 minutes before, had tested 133, put a temp basal till the end of work.(1.5 hrs) Started to get lightheaded, figured I was probably low, ate/consumed candy-but it wasn't enough. Then my knees buckled, and I was kneeling on the floor. I couldn't get up, after a couple of minutes of trying, I gave up and just sat back down on the floor, leaned against the side of the lane.
"You ok, Heidi?" a coworker in the next lane over asks.
"Fine," I lie, as I drain a bottle of juice. "I just need to sit here awhile, I'm having a low."
"Go right ahead- you look terrible!"
5 minutes pass. Word of the drama in lane #3 has reached the ears of two other coworkers, who pro-offer mini-Butterfingers, Kisses, and hard candies. This is a really weird low, I'm not dizzy now,my legs just won't support my body.
20 minutes later, I'm feeling slightly better. Stand up, and finish the order I'm working on(takes less then five minutes). Clean up work area.
3:30 pm-Quitting bell rings. Phone rings.
I answer.
"Why on earth didn't you let me know you were having problems?What happened?"
The voice of my supivisor jars me back into the realities of the working world.
" I'm fine, just got dizzy and I had to sit down. They gave me candy, I was having a low blood sugar."
"That's good, but if it ever happens again, I need to know about it. Are you ok now?"
"Yes."
It's called Saving-the-Company's Gluteus Maximus- if I would've injured myself on my journey to the floor, the company would be liable for medical costs/employment compensation. This isn't the first time I've had a low blood sugar there, but the last bad one was 4 years ago, I can generally treat/work through my lows. (nobody even knows I'm having them) If I took off for every low I'd ever had, I wouldn't get anything done! (and my supivisor wouldn't either)
I went home, fell into an exausted sleep for 3 hours, and rechecked my blood sugar.
120. (this was 4 hours after I took my pump off)
Now, to figure out what had caused this rapid low. Thought it was a new infusion set prob, on the wise advice of people who know me just a bit too well, (I tend to keep my infusion sets in to long) but an hour post-supper my abdoman began rebelling against my Healthy Choice lunch, now I'm thinking none of it absorbed, hence the rapid drop in bg.
Healthy Choice- the next great way to lose weight, one way or the other. Called in sick today, as its still wracking its way through my system.
The DC Expo was great, despite getting there rather late (1:30 p.m.). I underestimated how long it would take me to get there on the Metro, but fortuantly the Convention Center was right on the Metro line. And there were plenty of helpful folks directing people towards the Expo(on the upper floor) Downstairs, the American Dental Association was having its thing (quite appropriate, actually, I wouldn't have minded listening in on some of those speeches).
I registered, and begun making the rounds.
2 hours later, figured it was time for a blood sugar check. (And why waste a strip...when there was a station set up to do it for free?) So I filled out a couple of permissary forms, got it checked (475, yay) got an a1c done, asked an endo a burning question I had, and completed the rounds.
It was definatly free pedometer day- everyone from NovoNordisk to Blue Cross/Blue Shield was passing them out. I got 5 differant pedometers. (I doubt it will inspire me to exercise more,though) Saw a Cleo sample, (very, very cool-I want some) partook of the various sugar-free-but-still-loaded-carbohydrate samples, and acquired too much stuff.(as usual)
Supper at Union Station, watched Ice Age 2, and back on the Metro.
Then the real fun began. It was raining hard, and I took a wrong turn coming out of the parking garage. Ended up circling Baltimore via the Beltway, for the next 2 hours. Eventually, I made so many wrong turns that I made my way back to DC, saw my "exit" that would put me back on the road I needed to be on, and was fine from there. Got home at 3 AM, extremily glad I don't have to deal with that madness every day.
Gas was $3.07 for a gallon of regular, that night. (vs the $2.87 around here) This isn't a political blog, but the whole situation is getting more +more ridiculous. Its not price gouging, when the supplies of crude oil/refined gasoline are gradually getting used up. And if we're not going to drill for more oil, we can expect those prices to keep going up. We need more efficient cars, and another source of fuel. (sooner or later, we are going to run completely out of gasoline and have to deal with these issues!)
I don't even get mad anymore(over the prices of gasoline), it could be much worse. (and I'm sure it will get much worse!)
"You ok, Heidi?" a coworker in the next lane over asks.
"Fine," I lie, as I drain a bottle of juice. "I just need to sit here awhile, I'm having a low."
"Go right ahead- you look terrible!"
5 minutes pass. Word of the drama in lane #3 has reached the ears of two other coworkers, who pro-offer mini-Butterfingers, Kisses, and hard candies. This is a really weird low, I'm not dizzy now,my legs just won't support my body.
20 minutes later, I'm feeling slightly better. Stand up, and finish the order I'm working on(takes less then five minutes). Clean up work area.
3:30 pm-Quitting bell rings. Phone rings.
I answer.
"Why on earth didn't you let me know you were having problems?What happened?"
The voice of my supivisor jars me back into the realities of the working world.
" I'm fine, just got dizzy and I had to sit down. They gave me candy, I was having a low blood sugar."
"That's good, but if it ever happens again, I need to know about it. Are you ok now?"
"Yes."
It's called Saving-the-Company's Gluteus Maximus- if I would've injured myself on my journey to the floor, the company would be liable for medical costs/employment compensation. This isn't the first time I've had a low blood sugar there, but the last bad one was 4 years ago, I can generally treat/work through my lows. (nobody even knows I'm having them) If I took off for every low I'd ever had, I wouldn't get anything done! (and my supivisor wouldn't either)
I went home, fell into an exausted sleep for 3 hours, and rechecked my blood sugar.
120. (this was 4 hours after I took my pump off)
Now, to figure out what had caused this rapid low. Thought it was a new infusion set prob, on the wise advice of people who know me just a bit too well, (I tend to keep my infusion sets in to long) but an hour post-supper my abdoman began rebelling against my Healthy Choice lunch, now I'm thinking none of it absorbed, hence the rapid drop in bg.
Healthy Choice- the next great way to lose weight, one way or the other. Called in sick today, as its still wracking its way through my system.
The DC Expo was great, despite getting there rather late (1:30 p.m.). I underestimated how long it would take me to get there on the Metro, but fortuantly the Convention Center was right on the Metro line. And there were plenty of helpful folks directing people towards the Expo(on the upper floor) Downstairs, the American Dental Association was having its thing (quite appropriate, actually, I wouldn't have minded listening in on some of those speeches).
I registered, and begun making the rounds.
2 hours later, figured it was time for a blood sugar check. (And why waste a strip...when there was a station set up to do it for free?) So I filled out a couple of permissary forms, got it checked (475, yay) got an a1c done, asked an endo a burning question I had, and completed the rounds.
It was definatly free pedometer day- everyone from NovoNordisk to Blue Cross/Blue Shield was passing them out. I got 5 differant pedometers. (I doubt it will inspire me to exercise more,though) Saw a Cleo sample, (very, very cool-I want some) partook of the various sugar-free-but-still-loaded-carbohydrate samples, and acquired too much stuff.(as usual)
Supper at Union Station, watched Ice Age 2, and back on the Metro.
Then the real fun began. It was raining hard, and I took a wrong turn coming out of the parking garage. Ended up circling Baltimore via the Beltway, for the next 2 hours. Eventually, I made so many wrong turns that I made my way back to DC, saw my "exit" that would put me back on the road I needed to be on, and was fine from there. Got home at 3 AM, extremily glad I don't have to deal with that madness every day.
Gas was $3.07 for a gallon of regular, that night. (vs the $2.87 around here) This isn't a political blog, but the whole situation is getting more +more ridiculous. Its not price gouging, when the supplies of crude oil/refined gasoline are gradually getting used up. And if we're not going to drill for more oil, we can expect those prices to keep going up. We need more efficient cars, and another source of fuel. (sooner or later, we are going to run completely out of gasoline and have to deal with these issues!)
I don't even get mad anymore(over the prices of gasoline), it could be much worse. (and I'm sure it will get much worse!)
Thursday, April 20, 2006
Adventures in Bolusing
I don't like Coke, Cherry Coke, Vanilla Cherry Coke, or any other carbonated, highly sugared, beverage.
But pretty much anything Diet, I'll drink- be it Coke, Pepsi, or Brand X. It isn't the sugar angle(that has me discomforted), it just tastes WEIRD. I never treat my lows with soda, unless its the absolute only thing available. I'd sooner eat glucose paste( another totally yucky thing, in my humble opinion) then drink coke. Apparently, some PWD's don't feel this way- they'll actually drink regular, and bolus for it. There is nothing whatsoever wrong with this. (heck, I will happily bolus for a mixed drink) So it must be the sugar-carbonation combo ( take either one seperatly, and my taste buds have no problem with it) that throws my taste buds in a whirl.
So what could induce me to voluntarily drink a 20 oz bottle of Cherry Coke?
Coke's newest promo.
In every Coke-Pepsi-Mt.Dew promo, the coded caps come out first on the regular drinks. (As that's good marketing sense, most people drink regular) Several weeks later, the diet drinks get them. (Except the Diet Pepsi movie ticket promo-that's exclusively Diet)
But the updated Diet Coke products are at least a week away, from making their grand appearance. And I wanted to start saving points NOW.
So I bought a Cherry Coke, did a split combo(1/2 then, 1/2 over course of 2 hours, I drank it over 2.5 hrs) and checked my blood sugar every hour. I am not used to bolusing for soda, since I rarely drink it.
1 hr later- 209
2 hours later- 213
3 hours later- 210
Very consistant, at least. I did a corrective bolus, (as my stomach rapidly churned up acid) sucked on hard candies/bolused for hard candies, and swore I'd never do that again. Not even for a bottle cap. Not worth it.
There's been some changes with the BGAT study, I've got to do some more follow-up paperwork soon(instead of in a year). I'm really not that fond of paperwork... but they sent me another E-gift Certificate, ($50) so its ok.
But pretty much anything Diet, I'll drink- be it Coke, Pepsi, or Brand X. It isn't the sugar angle(that has me discomforted), it just tastes WEIRD. I never treat my lows with soda, unless its the absolute only thing available. I'd sooner eat glucose paste( another totally yucky thing, in my humble opinion) then drink coke. Apparently, some PWD's don't feel this way- they'll actually drink regular, and bolus for it. There is nothing whatsoever wrong with this. (heck, I will happily bolus for a mixed drink) So it must be the sugar-carbonation combo ( take either one seperatly, and my taste buds have no problem with it) that throws my taste buds in a whirl.
So what could induce me to voluntarily drink a 20 oz bottle of Cherry Coke?
Coke's newest promo.
In every Coke-Pepsi-Mt.Dew promo, the coded caps come out first on the regular drinks. (As that's good marketing sense, most people drink regular) Several weeks later, the diet drinks get them. (Except the Diet Pepsi movie ticket promo-that's exclusively Diet)
But the updated Diet Coke products are at least a week away, from making their grand appearance. And I wanted to start saving points NOW.
So I bought a Cherry Coke, did a split combo(1/2 then, 1/2 over course of 2 hours, I drank it over 2.5 hrs) and checked my blood sugar every hour. I am not used to bolusing for soda, since I rarely drink it.
1 hr later- 209
2 hours later- 213
3 hours later- 210
Very consistant, at least. I did a corrective bolus, (as my stomach rapidly churned up acid) sucked on hard candies/bolused for hard candies, and swore I'd never do that again. Not even for a bottle cap. Not worth it.
There's been some changes with the BGAT study, I've got to do some more follow-up paperwork soon(instead of in a year). I'm really not that fond of paperwork... but they sent me another E-gift Certificate, ($50) so its ok.
Tuesday, April 18, 2006
Five Years on Sunday
I'd better just post this now...because I don't know if I'll be back (or awake enough) to post Sunday. The ADA Expo is Sat, and I may turn it into a weekend deal.
7.5 years with diabetes. Five, on the pump. Five year (increments) anniversaries always feel like big ones.
There's the "1" year (diabetes for one year, pumping for one year) anniversary- you think you know everything.
5 years- You bemoan the fact that there STILL isn't a cure, or a decent continuous glucose monitering system.
10 years- I expect to feel old, but I hope diabetes technology will have GREATLY improved. Always knowing what your bg is, would be so wonderful.
15 years- By then, a cure. Period. End of discussion.
But back to that day...
Monday, April 23, 2001 dawned clean and clear. I was more then ready- I'd been waiting months for this day.
6 A.M. (knock on parents' door)
"Dad, can we leave now?"
"NO-it's 6 AM. We don't have to be there till 9:30. Go back to bed."
7 AM (knock on parents' door)
"Can we leave NOW?"
"No, we're leaving at 8- we're not getting there really early!"
8 AM (knock on parents' door)
"Can we puh-lease leave now?"
"Ok. (sigh) Got all your stuff?"
"Daddd, of COURSE." (teenage indignation)
9:30 A.M.- Sitting in the CDE's office, impateintly waiting for the other trainee to show up. My dad, after talking to the CDE, leaves. (I'm a big girl, I'll pretend to be fine for the next 30 hrs.)
10:15 A.M. - Still no other trainee. I've bounced around, triple-checked my new pump + supplies, visited the restroom and read the the too numerous journal articles lining the walls of the room. Things need to start, before I go nuts.
10:30 A.M.- 12 year old trainee shows up, with her mom. It's re-training for her, she's already on a Disetronic.
Carb Counting. Basals/Boluses. Infusion sets. A brand new world.
And a brand new meter- the One Touch Ultra has hit the market. Pediatric CDE gives us both one, along with strips/lancets/ Minimed sets.
Blood Sugar Check- its time to put the training in action. 5,4,3, 2,1- I'm never going back to the 45 second Accucheck. This meter is so unbelievable.
236.
My fellow trainee smirks from across the table. "Ha ha, I'm 186."
Brief irratation at this immature juvenile. "Big deal, that's not a great number either."
Mom isn't watching. "Andi (CDE)- can I get you to look at her stomach sites? I'm really concerned about them."
CDE looks at them, studies them, analyzes them to the nth degree. Leaves room.
"She's got a rash- better stop using the stomach for awhile, put lotion on them. Talk to Dr. (X)
if they don't clear up."
CDE is busy quizzing me on what to do next. "How much insulin would you take for a corrective bolus?"
3 units, ok. Knew I'd be high anyway, I'd skipped the prior evening's Lente. (as per instructions)
12 year old is punching in her bolus like a pro. Well, she has been pumping 7 months. I try not to gape. Someday I'll be doing that.
Stuff all my new stuff into my supply box, self-consciously adjust the pump onto my jeans waistband, and prepare to move on out.
Next Step: Admission.
"Here, I can take that." My CDE relieves me of the supply box, I've only got my duffel bag and backpack to take care of now.
Past the Medical School Auditorium. Down the elevator. Down more hallways.
I see a sign for the Morgue.
"Are we near the morgue?!?"
"Yes, this is the basement."
I wish I hadn't asked. Probably lots of people who didn't take to pumping, ended up down here.
Up another elevator. Around to the cafeteria.
"Hon, I can take your stuff up. You can eat lunch with (the dietician), and she'll bring you up when you're done."
I hand over the rest of my stuff. "OK, thanks."
We have a very healthy lunch- which the dietician payed for. I couldn't eat anything sweet, until boluses were figured out, but I wasn't hungry anyway. Dieticians can be nice people- despite the intial awkwardness. She made sure I bolused appropriatly, for every bite.
Lunch being over, we headed up to the pediatric ward, where the nurse/intern on duty were waiting.
First, its the nurse's turn. Tons of paperwork. A blood sugar check, revealing a number deep into the 400's.
She freaks, and goes to tell the intern.
The intern shuffles in. Tall, skinny, shaved head. Facial complexion a chalkish white-green. Either an Ex-Member of the Grateful Dead, or having some serious medical issues himself.
"What're you in for?"
Brief confusion- aren't they supposed to already know this stuff?
"Starting an insulin pump."
"Ok. What's that?"
"Ummmmm, its a pager type thing, and it goes through a tube to my skin," I reply, wishing I could explain it better.
"Ok." Nothing on his face reveals whether he gets what I'm talking about. Suddenly, I wish very strongly that my own endocrinologist would show up + prevent an ensuing disaster. I don't feel confident that this guy knows squat about type 1 diabetes.
"Ok. Let's talk about your current medical history."
Yes/No/Yes/No.
Diagnosis: Perfectly healthy in every regard, except the D.
He reads the nurse's note. "Checked ketones?"
"Yeah, I'm moderate."
"Ok. Let me check on something." Leaves room. Comes back in. "Take 8 units."
I remember how to bolus, and I do so. Take nap, drink fluids, feel rather nauseus.
6 pm- Supper arrives, on the dot. I eat half of it, bolus for the whole thing.(still feel high)
8:30- 121.
Hourly blood sugar checks, all night. Study for final exam, watch movies, fall asleep.
7:30 AM- Ped. Endo checks in.
"Your overnight basals are great...you were between 110-121 ALL NIGHT. Still have to adjust the daytime. Couple of hours, we can discharge you."
8:30 AM- I eat breakfast, bolus, and promptly skyrocket to the mid 300's. Not so simple, this pumping thing.
9 AM- Intern pops back in, medical student in tow. "Wanna show my student your pump?"
I do so(while the intern scribbles in the chart). Medical student is duly impressed.
9:30 AM- Ped CDE pops in again, reviews various things. I still feel incredibly dumb, but figure eventually I'll know it all.
12 PM- Lunch time. Unfortuantly, I'm still mid 300's, and I have got ketones (yet again). Ketones= no discharge, and I'm in panic mode (thinking I won't get discharged in time to make my final exam, and if I don't make it to that class, I flunk). Of course, the more I worry about it, the higher my bg goes. I bolus well, skip lunch, and pray to get discharged quickly.
2:30 pm- Mid 300's, but ketone free.
"Ok, we can discharge you."
I'm packed, and ready to go in a matter of minutes. I call my parents, and my mom starts out to come get me.
3 pm- Still waiting on discharge paperwork. I may have to start walking, if these people don't hurry up. Can't be late for class!
3:15 pm- Admit to the other side of the room. Chat briefly with the mom, think how lucky I am that I just have diabetes.
3:30 pm- Nurse arrives with discharge paperwork. I sign, grab belongings, and make a beeline for the elevator.
3:35 pm- Mom arrives, picks me up.
5:30 pm- Deliver speech on childhood diabetes, (final exam) get an "A."
6:00 pm- Classmate gives speech on kids with diabetes/insulin pumps, looks in my general direction, and tells me I might want to consider getting one. I am too incensed/embarressed to merit an intelligent reply, I hunker down in my seat and glower darkly.(A. It was a really bad speech, and B. I'd wanted the topic) And I see her Disetronic, for the first time that semester. Never knew she even had diabetes, thought she just knew someone with it.
I mutter something to the effect of "Maybe" and long for class to end. (Never told her I'd just gotten a pump)
Every "Pumpversery", I go out to eat (pump anniversaries are much more fun then dx anniversaries!) Don't know where yet- as I still may be in DC.
7.5 years with diabetes. Five, on the pump. Five year (increments) anniversaries always feel like big ones.
There's the "1" year (diabetes for one year, pumping for one year) anniversary- you think you know everything.
5 years- You bemoan the fact that there STILL isn't a cure, or a decent continuous glucose monitering system.
10 years- I expect to feel old, but I hope diabetes technology will have GREATLY improved. Always knowing what your bg is, would be so wonderful.
15 years- By then, a cure. Period. End of discussion.
But back to that day...
Monday, April 23, 2001 dawned clean and clear. I was more then ready- I'd been waiting months for this day.
6 A.M. (knock on parents' door)
"Dad, can we leave now?"
"NO-it's 6 AM. We don't have to be there till 9:30. Go back to bed."
7 AM (knock on parents' door)
"Can we leave NOW?"
"No, we're leaving at 8- we're not getting there really early!"
8 AM (knock on parents' door)
"Can we puh-lease leave now?"
"Ok. (sigh) Got all your stuff?"
"Daddd, of COURSE." (teenage indignation)
9:30 A.M.- Sitting in the CDE's office, impateintly waiting for the other trainee to show up. My dad, after talking to the CDE, leaves. (I'm a big girl, I'll pretend to be fine for the next 30 hrs.)
10:15 A.M. - Still no other trainee. I've bounced around, triple-checked my new pump + supplies, visited the restroom and read the the too numerous journal articles lining the walls of the room. Things need to start, before I go nuts.
10:30 A.M.- 12 year old trainee shows up, with her mom. It's re-training for her, she's already on a Disetronic.
Carb Counting. Basals/Boluses. Infusion sets. A brand new world.
And a brand new meter- the One Touch Ultra has hit the market. Pediatric CDE gives us both one, along with strips/lancets/ Minimed sets.
Blood Sugar Check- its time to put the training in action. 5,4,3, 2,1- I'm never going back to the 45 second Accucheck. This meter is so unbelievable.
236.
My fellow trainee smirks from across the table. "Ha ha, I'm 186."
Brief irratation at this immature juvenile. "Big deal, that's not a great number either."
Mom isn't watching. "Andi (CDE)- can I get you to look at her stomach sites? I'm really concerned about them."
CDE looks at them, studies them, analyzes them to the nth degree. Leaves room.
"She's got a rash- better stop using the stomach for awhile, put lotion on them. Talk to Dr. (X)
if they don't clear up."
CDE is busy quizzing me on what to do next. "How much insulin would you take for a corrective bolus?"
3 units, ok. Knew I'd be high anyway, I'd skipped the prior evening's Lente. (as per instructions)
12 year old is punching in her bolus like a pro. Well, she has been pumping 7 months. I try not to gape. Someday I'll be doing that.
Stuff all my new stuff into my supply box, self-consciously adjust the pump onto my jeans waistband, and prepare to move on out.
Next Step: Admission.
"Here, I can take that." My CDE relieves me of the supply box, I've only got my duffel bag and backpack to take care of now.
Past the Medical School Auditorium. Down the elevator. Down more hallways.
I see a sign for the Morgue.
"Are we near the morgue?!?"
"Yes, this is the basement."
I wish I hadn't asked. Probably lots of people who didn't take to pumping, ended up down here.
Up another elevator. Around to the cafeteria.
"Hon, I can take your stuff up. You can eat lunch with (the dietician), and she'll bring you up when you're done."
I hand over the rest of my stuff. "OK, thanks."
We have a very healthy lunch- which the dietician payed for. I couldn't eat anything sweet, until boluses were figured out, but I wasn't hungry anyway. Dieticians can be nice people- despite the intial awkwardness. She made sure I bolused appropriatly, for every bite.
Lunch being over, we headed up to the pediatric ward, where the nurse/intern on duty were waiting.
First, its the nurse's turn. Tons of paperwork. A blood sugar check, revealing a number deep into the 400's.
She freaks, and goes to tell the intern.
The intern shuffles in. Tall, skinny, shaved head. Facial complexion a chalkish white-green. Either an Ex-Member of the Grateful Dead, or having some serious medical issues himself.
"What're you in for?"
Brief confusion- aren't they supposed to already know this stuff?
"Starting an insulin pump."
"Ok. What's that?"
"Ummmmm, its a pager type thing, and it goes through a tube to my skin," I reply, wishing I could explain it better.
"Ok." Nothing on his face reveals whether he gets what I'm talking about. Suddenly, I wish very strongly that my own endocrinologist would show up + prevent an ensuing disaster. I don't feel confident that this guy knows squat about type 1 diabetes.
"Ok. Let's talk about your current medical history."
Yes/No/Yes/No.
Diagnosis: Perfectly healthy in every regard, except the D.
He reads the nurse's note. "Checked ketones?"
"Yeah, I'm moderate."
"Ok. Let me check on something." Leaves room. Comes back in. "Take 8 units."
I remember how to bolus, and I do so. Take nap, drink fluids, feel rather nauseus.
6 pm- Supper arrives, on the dot. I eat half of it, bolus for the whole thing.(still feel high)
8:30- 121.
Hourly blood sugar checks, all night. Study for final exam, watch movies, fall asleep.
7:30 AM- Ped. Endo checks in.
"Your overnight basals are great...you were between 110-121 ALL NIGHT. Still have to adjust the daytime. Couple of hours, we can discharge you."
8:30 AM- I eat breakfast, bolus, and promptly skyrocket to the mid 300's. Not so simple, this pumping thing.
9 AM- Intern pops back in, medical student in tow. "Wanna show my student your pump?"
I do so(while the intern scribbles in the chart). Medical student is duly impressed.
9:30 AM- Ped CDE pops in again, reviews various things. I still feel incredibly dumb, but figure eventually I'll know it all.
12 PM- Lunch time. Unfortuantly, I'm still mid 300's, and I have got ketones (yet again). Ketones= no discharge, and I'm in panic mode (thinking I won't get discharged in time to make my final exam, and if I don't make it to that class, I flunk). Of course, the more I worry about it, the higher my bg goes. I bolus well, skip lunch, and pray to get discharged quickly.
2:30 pm- Mid 300's, but ketone free.
"Ok, we can discharge you."
I'm packed, and ready to go in a matter of minutes. I call my parents, and my mom starts out to come get me.
3 pm- Still waiting on discharge paperwork. I may have to start walking, if these people don't hurry up. Can't be late for class!
3:15 pm- Admit to the other side of the room. Chat briefly with the mom, think how lucky I am that I just have diabetes.
3:30 pm- Nurse arrives with discharge paperwork. I sign, grab belongings, and make a beeline for the elevator.
3:35 pm- Mom arrives, picks me up.
5:30 pm- Deliver speech on childhood diabetes, (final exam) get an "A."
6:00 pm- Classmate gives speech on kids with diabetes/insulin pumps, looks in my general direction, and tells me I might want to consider getting one. I am too incensed/embarressed to merit an intelligent reply, I hunker down in my seat and glower darkly.(A. It was a really bad speech, and B. I'd wanted the topic) And I see her Disetronic, for the first time that semester. Never knew she even had diabetes, thought she just knew someone with it.
I mutter something to the effect of "Maybe" and long for class to end. (Never told her I'd just gotten a pump)
Every "Pumpversery", I go out to eat (pump anniversaries are much more fun then dx anniversaries!) Don't know where yet- as I still may be in DC.
Friday, April 14, 2006
A Bunny a Day...
Keeps the glucose hoppin'!
I was fully intending to eat this 1-lb chunk of heaven on earth, before my youngest brother showed up, bearing gifts:
A complete 31 inch tv, dvd , and vhs system with an impressive sound system. It took some rearranging of my (already cramped) living room to get it all in.
Nice.
Of course, there's a reason he is getting rid of it- end of summer, he's going to Naval boot camp (so he's getting rid of stuff now)
Then, he cleaned out my refridgerator (what he didn't eat, he threw away), discovered the chocolate bunny, and the rest is history. Oh well- there's always Post-Easter specials. (I'll find another one)
And then my sweetie sent this over:
Flowers for Easter!:-)
My insurance company has denied coverage for infusion sets, period. (and they are still holding to their 400 strip/3 month policy)
I am so frustrated- and confused. Who on earth do I appeal to? I can't appeal to my insurance company, they don't do prescription services anymore. Can't appeal to the prescription supplier- because they don't make the policies, they follow them.
So I called up Corporate Headquarters HR yesterday. They told me I had to file appeals with my local HR manager.
Hmmm, this is amazingly difficult. (even for an insurance fiasco)
Have a wonderful Easter, all.
I was fully intending to eat this 1-lb chunk of heaven on earth, before my youngest brother showed up, bearing gifts:
A complete 31 inch tv, dvd , and vhs system with an impressive sound system. It took some rearranging of my (already cramped) living room to get it all in.
Nice.
Of course, there's a reason he is getting rid of it- end of summer, he's going to Naval boot camp (so he's getting rid of stuff now)
Then, he cleaned out my refridgerator (what he didn't eat, he threw away), discovered the chocolate bunny, and the rest is history. Oh well- there's always Post-Easter specials. (I'll find another one)
And then my sweetie sent this over:
Flowers for Easter!:-)
My insurance company has denied coverage for infusion sets, period. (and they are still holding to their 400 strip/3 month policy)
I am so frustrated- and confused. Who on earth do I appeal to? I can't appeal to my insurance company, they don't do prescription services anymore. Can't appeal to the prescription supplier- because they don't make the policies, they follow them.
So I called up Corporate Headquarters HR yesterday. They told me I had to file appeals with my local HR manager.
Hmmm, this is amazingly difficult. (even for an insurance fiasco)
Have a wonderful Easter, all.
Monday, April 10, 2006
The Great Cake-Off (and other matters)
126, 321, 221, 298, 213, 245.
Basically, my attempts at "Playing Pancreas" suck. I'd rather have my old one back.(functioning at full capacity)
Its springtime- the birds are singing, the flowers blooming, and the grass/weeds growing. (like mad) My landlady kindly reminded me of that fact, she stopped by at 9:30 pm last night, scared the living dickens out of me. (thought it was a robber) I assured her that the lawn WOULD get mowed this week,(putting her mind at rest) and she happily drove off. Now all I need, is a mower. (I'll borrow one from someone) Got my work cut out for me, this weekend!
The Great Cake-Off is in 19 days. Its not a very diabetes friendly event, but I don't believe in letting diabetes dictate every action of my life.
Contestants bake two cakes- one for the judging, one for the auction. (proceeds from auction go to a worthy cause) As for the judging...well, after the judges get done with it, its open season for anyone to taste.
Tons of cakes- carb count all unknown- even with a pump, it sounds like a formidable bolusing challenge.
I'm don't expect to win, but it sounds like a worthy cause to contribute to. Maybe someone would actually eat something that I baked...(without keeling over dead) I'm not a great cook.
Went to a doctors appointment, waited 2.5 hrs on the doc. Seemed like he was getting paged every 20 minutes, in between his scheduledees. It is not the longest I've ever waited in a doc's office, but it definatly felt more like the ER then a doc's office! By the time he came in, it was 4:45, almost quitting time so he didn't go through the usual "how's your sugar" 30 minute lecture. (one good thing) Poked around my stomach/back, checked a urine sample, and dashed off a quick scrip for an antibiotic. I like this doc, he does a through job of things but sometimes I think he prescribes antibiotics for everything, just because I have diabetes. Just because I have diabetes, doesn't mean my immune system doesn't function fine. (most of the time) I hate being different.
By then, it was 5:30 pm and the regular pharmacy had closed. Drove down the road to a Walmart,
where they transferred my info(from another store) and filled the prescription. Unfortuantly, they didn't have an updated prescription card, so it was either pay out of pocket or come back.
I comprimised, bought enough pills for a couple of days, and decided to come back later, (w/card and rest of copay) for the rest.
Saw a One Touch Ultra 2, (while waiting at the pharmacy). It's Lifescan's newest attempt at combining Ultrasmart features(graphs, etc) into an Ultra. It looks a little bigger then an Ultra- but it has the same shape. Looked interesting, I may get one (if it's smaller then an Ultrasmart). Before the Ultrasmart research studies begun, I was a Ultra fan(and I will go back to them, at the end of the studies, if nothing better comes along)
Basically, my attempts at "Playing Pancreas" suck. I'd rather have my old one back.(functioning at full capacity)
Its springtime- the birds are singing, the flowers blooming, and the grass/weeds growing. (like mad) My landlady kindly reminded me of that fact, she stopped by at 9:30 pm last night, scared the living dickens out of me. (thought it was a robber) I assured her that the lawn WOULD get mowed this week,(putting her mind at rest) and she happily drove off. Now all I need, is a mower. (I'll borrow one from someone) Got my work cut out for me, this weekend!
The Great Cake-Off is in 19 days. Its not a very diabetes friendly event, but I don't believe in letting diabetes dictate every action of my life.
Contestants bake two cakes- one for the judging, one for the auction. (proceeds from auction go to a worthy cause) As for the judging...well, after the judges get done with it, its open season for anyone to taste.
Tons of cakes- carb count all unknown- even with a pump, it sounds like a formidable bolusing challenge.
I'm don't expect to win, but it sounds like a worthy cause to contribute to. Maybe someone would actually eat something that I baked...(without keeling over dead) I'm not a great cook.
Went to a doctors appointment, waited 2.5 hrs on the doc. Seemed like he was getting paged every 20 minutes, in between his scheduledees. It is not the longest I've ever waited in a doc's office, but it definatly felt more like the ER then a doc's office! By the time he came in, it was 4:45, almost quitting time so he didn't go through the usual "how's your sugar" 30 minute lecture. (one good thing) Poked around my stomach/back, checked a urine sample, and dashed off a quick scrip for an antibiotic. I like this doc, he does a through job of things but sometimes I think he prescribes antibiotics for everything, just because I have diabetes. Just because I have diabetes, doesn't mean my immune system doesn't function fine. (most of the time) I hate being different.
By then, it was 5:30 pm and the regular pharmacy had closed. Drove down the road to a Walmart,
where they transferred my info(from another store) and filled the prescription. Unfortuantly, they didn't have an updated prescription card, so it was either pay out of pocket or come back.
I comprimised, bought enough pills for a couple of days, and decided to come back later, (w/card and rest of copay) for the rest.
Saw a One Touch Ultra 2, (while waiting at the pharmacy). It's Lifescan's newest attempt at combining Ultrasmart features(graphs, etc) into an Ultra. It looks a little bigger then an Ultra- but it has the same shape. Looked interesting, I may get one (if it's smaller then an Ultrasmart). Before the Ultrasmart research studies begun, I was a Ultra fan(and I will go back to them, at the end of the studies, if nothing better comes along)
Saturday, April 08, 2006
Family Ties
Age, environment, viruses, genetics. All important triggers, in type 1 diabetes.
Still, if you don't have a family history of it, you wonder. What REALLY pushed things over the edge?
I was raised on the healthiest of diets. Farm girl- went to the doc extremily rarely, blah blah blah. When I got diabetes, I knew I couldn’t have gotten it from eating too much sugar ( that was eaten extremily rarely, anyway).
Sitting in the ICU room (at diagnosis) they asked if there was any family history of diabetes. I had no clue, I looked at my mom, and she said yes.
Two cousins, one diagnosed at 11, one at 17. None of them too keen on the concept of pumping, apparently. Another cousin passed away of DKA, in 1963. (At age 11)
And then there’s my cousin’s wife. Every complication in the book. Shortly after diagnosis, my mom took me to see her( to put the urge for good control in my heart) in the hospital. It hardly worked, I was as uncomfortable as anything (and just wanted to get out of there). Now, I hope I am more approachable(then I was then), I know it wasn’t all “her fault” for all the complications she sustained. I feel bad for her.
Nothing on my dad’s side. (other then one or two type 2's) Type 1, seems to be the maternal "touch" in our family tree. Every single case seems to have been inherited from the maternal side.
My one cousin(married, no kids) is in unbelievably great control. If ever there was a “poster child” for a perfect D pregnancy, she is it. (I haven’t seen her in years, she lives in CA) Sometimes I wonder- are my chances of having a kid with diabetes considerably higher then 4%? I wish my cousin would have some healthy kids, it would make me feel better about my (future-kids will still be a longggggg time off) chances. Having diabetes yourself is easier then your child having it. (My hats off to you moms and dads, I would be a nutcase) I’d have to rewire my thinking- start being very responsible about diabetes care!
But maybe T.C. (aka Thomas Crapper- the guy who got rich off the water toilet) had a premonition that one day, one of his relations would get diabetes and need one. Yes, on my dad’s side I am related to him. T.C. had no kids, thus no descendants. It goes to show- you can’t pick your relatives!(Especially those of such notorious, embarressing fame) I just wonder how many other type 1's were in the family tree, and died from diabetes.
I am glad to have diabetes in the 21st century (vs the 19th-20th) - and have the tools necessary to treat/live with it.
Still, if you don't have a family history of it, you wonder. What REALLY pushed things over the edge?
I was raised on the healthiest of diets. Farm girl- went to the doc extremily rarely, blah blah blah. When I got diabetes, I knew I couldn’t have gotten it from eating too much sugar ( that was eaten extremily rarely, anyway).
Sitting in the ICU room (at diagnosis) they asked if there was any family history of diabetes. I had no clue, I looked at my mom, and she said yes.
Two cousins, one diagnosed at 11, one at 17. None of them too keen on the concept of pumping, apparently. Another cousin passed away of DKA, in 1963. (At age 11)
And then there’s my cousin’s wife. Every complication in the book. Shortly after diagnosis, my mom took me to see her( to put the urge for good control in my heart) in the hospital. It hardly worked, I was as uncomfortable as anything (and just wanted to get out of there). Now, I hope I am more approachable(then I was then), I know it wasn’t all “her fault” for all the complications she sustained. I feel bad for her.
Nothing on my dad’s side. (other then one or two type 2's) Type 1, seems to be the maternal "touch" in our family tree. Every single case seems to have been inherited from the maternal side.
My one cousin(married, no kids) is in unbelievably great control. If ever there was a “poster child” for a perfect D pregnancy, she is it. (I haven’t seen her in years, she lives in CA) Sometimes I wonder- are my chances of having a kid with diabetes considerably higher then 4%? I wish my cousin would have some healthy kids, it would make me feel better about my (future-kids will still be a longggggg time off) chances. Having diabetes yourself is easier then your child having it. (My hats off to you moms and dads, I would be a nutcase) I’d have to rewire my thinking- start being very responsible about diabetes care!
But maybe T.C. (aka Thomas Crapper- the guy who got rich off the water toilet) had a premonition that one day, one of his relations would get diabetes and need one. Yes, on my dad’s side I am related to him. T.C. had no kids, thus no descendants. It goes to show- you can’t pick your relatives!(Especially those of such notorious, embarressing fame) I just wonder how many other type 1's were in the family tree, and died from diabetes.
I am glad to have diabetes in the 21st century (vs the 19th-20th) - and have the tools necessary to treat/live with it.
Tuesday, April 04, 2006
Daylight Savings Time
Without exception, I always wake up low, when the time changes.
Doesn't have anything to do with extra basal/whatever. Its just a particular Heidi quirk.
Anyway, Sunday 8 am my Low Alarm went off. I was awake just enough to disconnect from my infusion set, and resume sleeping.
At 9:30, I was 124. (so it worked)
Saturday,hit the road by 8 am....
Add 45 minutes on the Metro.
Destination- Smithsonian!
Boyfriend and I had a quick lunch(hotdogs, drinks) before visiting:
Washington Monument:
Jefferson Memorial:
WW2 Memorial:
Holocaust Museum. Unfortuantly, taking photographs wasn't allowed (inside), and the main
show was sold out for the day...but it was still
interesting.
Supper was a tres multi-culteral learning experience (cafe near the museum)- I had something,
I don't recall the name of, but it was quite good. Like a cheese bread( outside) and a mashed
potato-brocculi filling.
My rating- 7 stars out of ten. It'd have been better with chicken in it.
Boyfriend stuck with a tuna fish sandwich and fruit smoothie. (there is safety, in familiarity)
A quick visit to the Gift Shop....
The Tulip Library: (yeah, its really called that. Pretty funky name, if you ask me)
And back to the metro. (it was INSANE) Everyone was going home, or at least it appeared that way. To a country girl, its always a tad overwhelming (being crushed in a pile of folks just waiting to enter the Metro Station!) Standing room only (on Metro), until outside the DC limits. By then, I thought I was going to collapse from exaustion. Slightly nauseus. Sat down, checked blood sugar. (157)
It was a great day, anyway. Had alot of fun.
Monday was very uneventful at work. We had all these cases(same brand sold by Fifty-50) and it made me want to get some...
Then it was off to the dentist for some fillings.
Pre-dentist: 157
Post-dentist: 407
I was shocked to see that 400 number- I've never gone up like that before. Maybe they gave me some ephinephrine with that novocaine!
Friday, March 31, 2006
Walk the Line
Positive news on the glucose front- the "Streak" is over. Beautiful numbers. Life back to normal, in Diabetesville.
And then I woke up Thursday morning.
Apparently, last weekends' Eat-A-Thon had unforeseen effects. (beyond the instant lowering of my a1c, whooo hooo) This became immeadiedly apparent, during the mad rush to prepare for work.
None of my pants fit.
I briefly considered taking a "Fat Day", before remembering that my employment doesn't offer such benefits. In fact, if I tried it, I'd probably be forever immortilized in the Dumbest Excuse Ever Heard Hall of Fame, + get laughed at by security every time I walked through the door. Best not risk it.
Sucking it up, in, and under, I found the least offensive pair, selected an extra baggy sweater, packed my ultra healthy lunch, and waddled off to work.
Unfortuantly, the yogurt I'd packed for breakfast had gone spoiled, so I was "forced" to eat my back-up chocolate bar. I do much better if I eat something early in the morning, it doesn't have much to do with blood sugar levels. I just need that food in my stomach.
Lunch, was a Grilled Chicken Salad with a 85 blood sugar. Something finally going right...
At 2:30 pm, the floor manager held a meeting.
"Ok people, listen up. Everyone here?Are you SURE? We just got word that we've recieved another bomb threat (late last year we got one) and management has decided that we're going to let the authorities check this place out tonight. If they find anything, work is a no-go tomarrow. I want a complete update of everyone's phone numbers- let your supivisors know.
If you don't hear from us, work is still on. Now you're all adults- and capable of making your own decisions, I'm not going to tell you to not come tomarrow. You make that call. But if you don't, you'll be working Sat."
Suddenly, that morning's clothing woes seemed woefully insignificant.
Pandemonium ensued.
Last year, when we had the first bomb threat, they shut down for the weekend. 11 am, Friday morning they held the meeting- in five minutes, that place was emptier then the day before Christmas.
I made up my mind I'd come in today, if they didn't find anything. No way was I coming in Sat.
Approximently 1/2 my collegues didn't feel that way, however- the parking lot was pretty empty this morning! There was absolutely no problems, nothing blew up, and no trucks driving in. I was nervous, just like everyone else..but beyond that, the day was ok. I wore my medic alert today, if there was a problem, I needed the assurement of some sort of indentification on my body. Call it weird, but I needed it.(for peace of mind)
WEEKEND IN DC(Apple Blossom Festival)!!!!!!!!!!!:-) (maybe I'll find some shorts that fit..I need to do some serious exercising!)
And then I woke up Thursday morning.
Apparently, last weekends' Eat-A-Thon had unforeseen effects. (beyond the instant lowering of my a1c, whooo hooo) This became immeadiedly apparent, during the mad rush to prepare for work.
None of my pants fit.
I briefly considered taking a "Fat Day", before remembering that my employment doesn't offer such benefits. In fact, if I tried it, I'd probably be forever immortilized in the Dumbest Excuse Ever Heard Hall of Fame, + get laughed at by security every time I walked through the door. Best not risk it.
Sucking it up, in, and under, I found the least offensive pair, selected an extra baggy sweater, packed my ultra healthy lunch, and waddled off to work.
Unfortuantly, the yogurt I'd packed for breakfast had gone spoiled, so I was "forced" to eat my back-up chocolate bar. I do much better if I eat something early in the morning, it doesn't have much to do with blood sugar levels. I just need that food in my stomach.
Lunch, was a Grilled Chicken Salad with a 85 blood sugar. Something finally going right...
At 2:30 pm, the floor manager held a meeting.
"Ok people, listen up. Everyone here?Are you SURE? We just got word that we've recieved another bomb threat (late last year we got one) and management has decided that we're going to let the authorities check this place out tonight. If they find anything, work is a no-go tomarrow. I want a complete update of everyone's phone numbers- let your supivisors know.
If you don't hear from us, work is still on. Now you're all adults- and capable of making your own decisions, I'm not going to tell you to not come tomarrow. You make that call. But if you don't, you'll be working Sat."
Suddenly, that morning's clothing woes seemed woefully insignificant.
Pandemonium ensued.
Last year, when we had the first bomb threat, they shut down for the weekend. 11 am, Friday morning they held the meeting- in five minutes, that place was emptier then the day before Christmas.
I made up my mind I'd come in today, if they didn't find anything. No way was I coming in Sat.
Approximently 1/2 my collegues didn't feel that way, however- the parking lot was pretty empty this morning! There was absolutely no problems, nothing blew up, and no trucks driving in. I was nervous, just like everyone else..but beyond that, the day was ok. I wore my medic alert today, if there was a problem, I needed the assurement of some sort of indentification on my body. Call it weird, but I needed it.(for peace of mind)
WEEKEND IN DC(Apple Blossom Festival)!!!!!!!!!!!:-) (maybe I'll find some shorts that fit..I need to do some serious exercising!)
Friday, March 24, 2006
Feeding time at the Zoo
Some days, it feels like feeding time at the zoo. You aren't hungry. You never want to see a bloody juice box again. But you have too, the insulin demands it.
And it goes on and on and on and on...
Many things can spark this off, extra activity, illness, various meds. But in my case, I'm fortuatate to know- once you know, you can adjust things, right?
Wrong.
Friday, March 24
12 pm- wake up, 65. Drink juice.
5:30 pm- 135.
7:30 AM- 72. Cut breakfast bolus in half.
8:30 AM- 224. Cut basal to 0.0 for next 3 hours.
11:30 AM- 90.
12:15 PM- 60.
This is the beginning of hypoglycemia extroidenaire (for the next week). I will average 5-7 lows per day, nothing will prevent them. My insulin needs will drop from an average 30 U/day, to under 10. (it has to do with hormones, and it happens several times a year)
Its a mini honeymoon, of sorts. During the daytime, I need no basal. At meals, my insulin/carb ratio quadruples, (1/40, vs.1/10) a "dangerous bolus" is anything over 2 U.
Every time it happens, I have no clue what I'm doing.
2:25 pm- 135 Cut basal to 0.0, for next 5 hours.
5:30- 150
7:30- 180
9:30-90
10:30- 55
Bedtime snack.
Saturday, March 24
4:30- 320. Bolus 4.5 units.
7:30- 62. Nothing like waking up low, on a Saturday morning.
Juice, fruit bar, granola. No holds barred. If I'm going to be constantly low, I'm going to make it a more pleasurable experience. (New rule- Anything I want, I eat) I will go to the most carb-ish restaurunt in town, and eat my way into an early grave. (just kidding)
Depending on how today goes, I also have glucagon on the stand by. I've never injected mini doses before, but I hear it can be helpful when dealing with prolonged hypoglycemia. Haven't had a glucagon shot in eons, (6 years?) I'm not sure how my body will react to that either but what the hey, I'm testing frequently anyway...(and I need to use 'em up before they expire!)
If that doesn't work, I'll call the endo. (probably will mean a trip to the ER)
And it goes on and on and on and on...
Many things can spark this off, extra activity, illness, various meds. But in my case, I'm fortuatate to know- once you know, you can adjust things, right?
Wrong.
Friday, March 24
12 pm- wake up, 65. Drink juice.
5:30 pm- 135.
7:30 AM- 72. Cut breakfast bolus in half.
8:30 AM- 224. Cut basal to 0.0 for next 3 hours.
11:30 AM- 90.
12:15 PM- 60.
This is the beginning of hypoglycemia extroidenaire (for the next week). I will average 5-7 lows per day, nothing will prevent them. My insulin needs will drop from an average 30 U/day, to under 10. (it has to do with hormones, and it happens several times a year)
Its a mini honeymoon, of sorts. During the daytime, I need no basal. At meals, my insulin/carb ratio quadruples, (1/40, vs.1/10) a "dangerous bolus" is anything over 2 U.
Every time it happens, I have no clue what I'm doing.
2:25 pm- 135 Cut basal to 0.0, for next 5 hours.
5:30- 150
7:30- 180
9:30-90
10:30- 55
Bedtime snack.
Saturday, March 24
4:30- 320. Bolus 4.5 units.
7:30- 62. Nothing like waking up low, on a Saturday morning.
Juice, fruit bar, granola. No holds barred. If I'm going to be constantly low, I'm going to make it a more pleasurable experience. (New rule- Anything I want, I eat) I will go to the most carb-ish restaurunt in town, and eat my way into an early grave. (just kidding)
Depending on how today goes, I also have glucagon on the stand by. I've never injected mini doses before, but I hear it can be helpful when dealing with prolonged hypoglycemia. Haven't had a glucagon shot in eons, (6 years?) I'm not sure how my body will react to that either but what the hey, I'm testing frequently anyway...(and I need to use 'em up before they expire!)
If that doesn't work, I'll call the endo. (probably will mean a trip to the ER)
Wednesday, March 22, 2006
ADA Expos
I've been to one ADA expo. (2004) Didn't make it to last years.
As I recall,
-Chris Smith
wooed everyone with his extra low carb-fat-sodium-everything chocolate-strawberry dessert.
Surprisingly, it was edible. Surprisingly, it was even good. But I still wasn't going to pay $20 for his book.
- Fortuantly, I missed all the type 2 speeches. (they looked incredibly boring) It wasn't planned- I was two hours trying to find the place. Don't get me wrong- it was an incredible bonding experience( I agree with ya, Kerri) but I wasn't going to sit through varying levels of Diabetes 101 (Can I eat sugar? Do I have to take a shot?) if I could possibly NOT. That would be torture.
- Christopher Saudek,MD
was also a speaker. The Future of Diabetes (Type 1 cure) kinda speech. It was interesting, but he talked for over an hour(the convention was closing up shop, by the time he finished)
- The ADA was giving out free books. (any book from their catalog) I chose A Field Guide to Type 1 diabetes, got it a couple months later.
- The Ask the Endo and Ask the CDE booths were especially popular. (there were others- Ask the Podiatrist, Ask the Pharmacist, Ask the Dietician, Ask the Shrink) I got in line. 20 minutes on the CDE one, 45 on the endo. The endo sent his kid to get lunch, he was too busy to get it. There's dedication. I asked the endo if I would go into DKA less quickly then other people, given
I've got this kidney thing(DKA= acidosis. Kidney Thing= Alkolosis) that nicely balances things out. He said nope, I'd probably just get a "mixed-state" acidosis-alkolosis combo. Didn't recommend testing out that theory. As of last August I've learned, that it doesn't slow down DKA one iota, so there are absolutely no benifits to having weird, exotic diseases that clash with diabetes.
I wish they'd have the Expo when the cherry blossoms are in bloom-
I could get more bang for the buck. (DC experience)
I've never been to the Cherry Blossom Festival- I would love to go, this year. (even if I do have to make two trips (in April) to Washington DC)
As I recall,
-Chris Smith
wooed everyone with his extra low carb-fat-sodium-everything chocolate-strawberry dessert.
Surprisingly, it was edible. Surprisingly, it was even good. But I still wasn't going to pay $20 for his book.
- Fortuantly, I missed all the type 2 speeches. (they looked incredibly boring) It wasn't planned- I was two hours trying to find the place. Don't get me wrong- it was an incredible bonding experience( I agree with ya, Kerri) but I wasn't going to sit through varying levels of Diabetes 101 (Can I eat sugar? Do I have to take a shot?) if I could possibly NOT. That would be torture.
- Christopher Saudek,MD
was also a speaker. The Future of Diabetes (Type 1 cure) kinda speech. It was interesting, but he talked for over an hour(the convention was closing up shop, by the time he finished)
- The ADA was giving out free books. (any book from their catalog) I chose A Field Guide to Type 1 diabetes, got it a couple months later.
- The Ask the Endo and Ask the CDE booths were especially popular. (there were others- Ask the Podiatrist, Ask the Pharmacist, Ask the Dietician, Ask the Shrink) I got in line. 20 minutes on the CDE one, 45 on the endo. The endo sent his kid to get lunch, he was too busy to get it. There's dedication. I asked the endo if I would go into DKA less quickly then other people, given
I've got this kidney thing(DKA= acidosis. Kidney Thing= Alkolosis) that nicely balances things out. He said nope, I'd probably just get a "mixed-state" acidosis-alkolosis combo. Didn't recommend testing out that theory. As of last August I've learned, that it doesn't slow down DKA one iota, so there are absolutely no benifits to having weird, exotic diseases that clash with diabetes.
I wish they'd have the Expo when the cherry blossoms are in bloom-
I could get more bang for the buck. (DC experience)I've never been to the Cherry Blossom Festival- I would love to go, this year. (even if I do have to make two trips (in April) to Washington DC)
Monday, March 20, 2006
Don't Get behind Me at Checkout
Potential is: a quart sized plastic baggie with several hundred skeins of crossstitch floss enclosed.Every single one of those little buggers had a upc, and needless to say-it took FOREVER to get them all scanned. And Add ten more minutes, for the grocery items in my cart.
I felt sorry for the gentleman behind me, having to wait so long. He didn't act like he minded, he was really sweet. (telling me how his wife used to do things of that nature) For him, it was a trip down memory lane. For me, it was embarressing. And for the cashier, it was a pain in the gluteus maximus.
I'm currently working on several major projects(and one minor one). The minor one is a cross-stitch ornament, which I fully expect to have finished in 9 months. The major ones I work at, whenever the urge hits me. One is an EMT cross stitch, one is a JDRF crossstitch, and the other one is on hire from a coworker. All three are slowwwww going. I have to be in the mood, (for precision) and I have to feel like stabbing a piece of cloth ad nauseum. But it is a great stress reducer, particuraly after a doctor appointment.
I think I finally have the problems ironed out with Caremark(RE: the test strip situation). Gotta get a new strip RX faxed over, and see what happens.
Saturday, March 18, 2006
A Dashing Diabetic
A Dashing Diabetic
(to the tune of “Jingle Bells”)
Dashing through the snow
To burn up my glucose
Down the streets I go
I should have upped my dose.
My cheeks are nice and red
My ears and nose are blue
Oh, what fun I’m gonna have
Till I hit 1-0-2!
Ohhhhhhhhh, Sugar Poke, my shoelace broke
My pump just hit the ground
Someone’s laughing at a joke
I wonder at the sound.
I start to shake, I need a break,
I must be getting low
I suddenly wish that they would make
Carbohydrate snow!
I set my basal down
I ate a healthy snack
I set a goal- across the town
I’d run, and then come back.
I had my Med ID
I had my new cellphone
I’d didn’t think I’d missed a thing
(I was being..typical Heidi!)
Ohhhhhhhhh, Sugar Poke, my shoelace broke
My pump just hit the ground
Someone’s laughing a joke
I wonder at the sound.
I start to shake, I need a break,
I must be getting low
I suddenly wish that they would make
Carbohydrate snow!
My Ketostix turned pink
I think I’ve made the link
Not to exercise today, its dangerous, you see.
I’ve got to drink and pee
Stick needles into me
Then I know, its fine to be
Exercising D!
Ohhhhhhhhh, Sugar Poke, my shoelace broke
My pump just hit the ground
Someone’s laughing a joke
I wonder at the sound.
I start to shake, I need a break,
I must be getting low
I suddenly wish that they would make
Carbohydrate snow!
Actually, since I don't live in Rural 101 anymore, I'm less nervous about going out jogging. Stores, restaurunts, shops everywhere. (potential hypo fixes) People who would actually call 911 if they saw me passed out by the side of the road. Living in town does have its advantages.
Friday, March 17, 2006
Guardian RT
The coolness factor of my endo's office just hit an all time high.
It happened this-a-way. While at the research study (a week ago), I noticed a large Medtronic Box peeking out from under the endo's desk.
I took a seat, handed over my meter, and waited as the research coordinator downloaded it. The research coordinator, of course, had her eyes on her computer (and as previously mentioned, the endo was on the telephone.) I scooted closer to the endo's desk, and peeked in the box.
My jaw hit the floor, and I scooted back in shock.
Uhh uhh I need air.. Did I just see what I thought I saw?
The research coordinator asked me a question, and my mind returned to matters at hand.
Later, I thought about it.
Boxes marked Guardian RT- is that Guardian REAL TIME? The REAL DEAL? How in the Sam's Hill did they get that, this isn't one of the select cities or anything like that.
Now dying of curiousity, I called Medtronic. The nice rep told me she couldn't tell me when they'd be available to the common masses, so much more "support-education" systems are needed to be put into place. And she happened to mention how, people go to these cities to get docs to prescribe them.("By the way, the closest one to you is in FL.")
Big whoop. I'll be an old women by the time they come available.
"Whose your doc?"
I mention name,city, state.
"Oh, they're doing a trial of them. You might want to see if he can get you into it. Various docs offices are trialing them..."
Hmmm, trialing. Sounds intruiging. I'd love to play with an RT, even if I couldn't own the thing. Just to see how it works, IF it would work, for me.
I called the Diabetes Education Nurse, left a message. Its a nice, juicy rumor, and I'd like to see if its true.
It happened this-a-way. While at the research study (a week ago), I noticed a large Medtronic Box peeking out from under the endo's desk.
I took a seat, handed over my meter, and waited as the research coordinator downloaded it. The research coordinator, of course, had her eyes on her computer (and as previously mentioned, the endo was on the telephone.) I scooted closer to the endo's desk, and peeked in the box.
My jaw hit the floor, and I scooted back in shock.
Uhh uhh I need air.. Did I just see what I thought I saw?
The research coordinator asked me a question, and my mind returned to matters at hand.
Later, I thought about it.
Boxes marked Guardian RT- is that Guardian REAL TIME? The REAL DEAL? How in the Sam's Hill did they get that, this isn't one of the select cities or anything like that.
Now dying of curiousity, I called Medtronic. The nice rep told me she couldn't tell me when they'd be available to the common masses, so much more "support-education" systems are needed to be put into place. And she happened to mention how, people go to these cities to get docs to prescribe them.("By the way, the closest one to you is in FL.")
Big whoop. I'll be an old women by the time they come available.
"Whose your doc?"
I mention name,city, state.
"Oh, they're doing a trial of them. You might want to see if he can get you into it. Various docs offices are trialing them..."
Hmmm, trialing. Sounds intruiging. I'd love to play with an RT, even if I couldn't own the thing. Just to see how it works, IF it would work, for me.
I called the Diabetes Education Nurse, left a message. Its a nice, juicy rumor, and I'd like to see if its true.
Thursday, March 16, 2006
More Freebies
According to the IP chat log, Cozmo users will be able to get a FREE case when they come out. You call their customer support line (1-800-826-9703 ) or register on their website.
The Cleo looks SO cool, but even if they were available, my insurance would probably not cover them. It's also the HOT new infusion set on the market, everyone is trying to get samples.
BC/BS has just informed me that they’re the wrong people to appeal too. (test strip coverage) Since the prescription benefits are entirely through Caremark, I’m supposed to appeal through them. I am confused, Caremark told me to appeal through BC/BS... I can tell that I'll be spending a lot of time on the telephone with this one.
I'm a stickler for Pepsi/Coke promos, it gives purpose to the $$'s I spend on their products.
FREE RIDE
BOX OFFICE
On one of their former promos, (Every Ten Minutes-XBOX 360 giveaways) on of my codes "won." Only it wasn't MY code anymore, I'd given it to someone else because I figured I'd never win it. Then he told me, and I was like Augh! Why can't I ever win something like that?When he asked for codes for this promo, I asked him if he'd give me half (of the car value) should he win the car, he wasn't too enthralled with that suggestion. The conversation ended there.
I'm a sucker,but oh well- Diet Coke still rocks. (buying it is still worth it)
The Cleo looks SO cool, but even if they were available, my insurance would probably not cover them. It's also the HOT new infusion set on the market, everyone is trying to get samples.
BC/BS has just informed me that they’re the wrong people to appeal too. (test strip coverage) Since the prescription benefits are entirely through Caremark, I’m supposed to appeal through them. I am confused, Caremark told me to appeal through BC/BS... I can tell that I'll be spending a lot of time on the telephone with this one.
I'm a stickler for Pepsi/Coke promos, it gives purpose to the $$'s I spend on their products.
FREE RIDE
BOX OFFICE
On one of their former promos, (Every Ten Minutes-XBOX 360 giveaways) on of my codes "won." Only it wasn't MY code anymore, I'd given it to someone else because I figured I'd never win it. Then he told me, and I was like Augh! Why can't I ever win something like that?When he asked for codes for this promo, I asked him if he'd give me half (of the car value) should he win the car, he wasn't too enthralled with that suggestion. The conversation ended there.
I'm a sucker,but oh well- Diet Coke still rocks. (buying it is still worth it)
Tuesday, March 14, 2006
March Mayhem
Some of my coworkers have begun to affectionately refer to me as "The Germ."
I have the flu. A nose tends to be in Status Elipticus the first few days of a cold/flu, I hope it will soon dry up.
Basics of Life:
Diet Coke
Bottle of Decongestant
Box of Tissues
Advil
Insulin
Thermometer
Ketostix
Don't want no million bucks- all I want are my taste buds back! :-) (Saner BGs would also be nice)
Weird thing is, although its easier to get ketones with a fever, you don't get the same symptoms of being high. (or at least, I don't) The fever feels worse then the ketones.
I've only had ketones once, though. (testing regurally, just like every good little D should) This morning, I woke up 250, moderate ketones, and 100.2. Quickly got them down. I am trying to avoid going to the doc, I just hope it will blow over soon.
I have the flu. A nose tends to be in Status Elipticus the first few days of a cold/flu, I hope it will soon dry up.
Basics of Life:
Diet Coke
Bottle of Decongestant
Box of Tissues
Advil
Insulin
Thermometer
Ketostix
Don't want no million bucks- all I want are my taste buds back! :-) (Saner BGs would also be nice)
Weird thing is, although its easier to get ketones with a fever, you don't get the same symptoms of being high. (or at least, I don't) The fever feels worse then the ketones.
I've only had ketones once, though. (testing regurally, just like every good little D should) This morning, I woke up 250, moderate ketones, and 100.2. Quickly got them down. I am trying to avoid going to the doc, I just hope it will blow over soon.
Sunday, March 12, 2006
Drugs that cause Hypos and Hypers
Hyper- Hypo Drug Chart
(9th one down, next to Pumping Insulin)
It also has some excellent Addison's info.
Addison's Disease classifies as another autoimmune condition I do NOT want. Along with celiac,
hyper and hypo thyroidism, Vitiligo, Scleroderma, Multiple Sclerosis, Lupus, etc. Diabetes is quite enough, thank you very much. I would not cope well, if I got any of the above.
I thought this was rather interesting. Its handy to know what drugs are gonna do to your blood glucose.
Other biggies...
Symlin. (duh) Down, Down, Downnnnnnnnnnnnn............... Hello, Carpet.
Alpha Lipoic Acid. (Down) I don't have neuropathy, I take it solely for its glucose uptake properties. I figure, since it doesn't seem to have toxic quantities, anything it can do in the insulin sensitivity department is a positive thing. And its an antioxidant, too boot.
Magnesium. I've heard that D's are sometimes deficient in this anyway, sufficient levels of magnesium play a large role in regulating blood glucose levels. I've a kidney leak, (unrelated to D)and must take this and a dieretic to keep my blood levels of magnesium up. I can tell the differance, its harder to manage blood sugar levels when my magnesium levels are scraping bottom (versus when they're nearly normal) Its a good idea to get this checked- doctors don't generally run blood tests for it. (unless you're having other symptoms, like low potassium)
My sister-in-law's Cherry Pie. (definatly an upper!:-)
Anyone know of any other(s)?
(drugs, herbs)
(9th one down, next to Pumping Insulin)
It also has some excellent Addison's info.
Addison's Disease classifies as another autoimmune condition I do NOT want. Along with celiac,
hyper and hypo thyroidism, Vitiligo, Scleroderma, Multiple Sclerosis, Lupus, etc. Diabetes is quite enough, thank you very much. I would not cope well, if I got any of the above.
I thought this was rather interesting. Its handy to know what drugs are gonna do to your blood glucose.
Other biggies...
Symlin. (duh) Down, Down, Downnnnnnnnnnnnn............... Hello, Carpet.
Alpha Lipoic Acid. (Down) I don't have neuropathy, I take it solely for its glucose uptake properties. I figure, since it doesn't seem to have toxic quantities, anything it can do in the insulin sensitivity department is a positive thing. And its an antioxidant, too boot.
Magnesium. I've heard that D's are sometimes deficient in this anyway, sufficient levels of magnesium play a large role in regulating blood glucose levels. I've a kidney leak, (unrelated to D)and must take this and a dieretic to keep my blood levels of magnesium up. I can tell the differance, its harder to manage blood sugar levels when my magnesium levels are scraping bottom (versus when they're nearly normal) Its a good idea to get this checked- doctors don't generally run blood tests for it. (unless you're having other symptoms, like low potassium)
My sister-in-law's Cherry Pie. (definatly an upper!:-)
Anyone know of any other(s)?
(drugs, herbs)
Thursday, March 09, 2006
What (Not) to do with One's Weekend
Our Rescue Squad Chief (also a cop), drove his vehicle smack into an apartment building (during a high speed chase). Injured himself and a person in the apartment. The person being chased, escaped and was caught later on. He's a nice guy- I hope he doesn't get fired! (from the force and as Chief)
I don't know all the details yet, so I don't know who was at fault. They're all in the hospital, with the apartment owner critical.
Behavorial Biofeedback
Today was gorgeous, mid 60's.
Went in for the 3rd study visit, it took about an hour. I confessed to losing the meter, she said it wasn't a huge deal since I'm a control subject. Control subjects can be hugely irresponsible, and nobody will care. (point of referance- Diabetes Complication and Control Trial) I mean, come on. They might not have known the differances would be SO dramatic, but they probably had an idea that the folks in strict control would turn out better then the folks without...
In research studies, I usually get stuck in the "control" group. This time was no exception, all I have to do for the next 4 months is test. (not use the PDA) The other group will make more money.. sigh.
The endocrinologist, meanwhile, was seated across the office, talking up a blue streak on the telephone. I was expecting acnownal of existance, (a "hello" would have been nice) but she didn't say anything(even after she got off the phone). Must have been having a bad day.
Filled out paperwork for the next hour. In a rare twist of irony, since I'm a control patient, I get twice as much paperwork to fill out!
Next, it was off for bloodwork.
When I finally showed up, the tech asked me what took so long!
It took:
-2 minutes to walk down the hall
-1 minute waiting on elevator
-1 minute down the elevator to the 2nd floor
-4 minute hike to the next elevator
- 1 minute wait, down to the first floor
-7 minute hike to Main Hospital
-3 minute(s) to get up to the 8th floor
-And 2 more minutes off wandering around trying to find the RIGHT section of the
research center(there are two sections, stuck admidst the NICU, obstetrics, and several
other impatient units)
Thats what took so long. Blood draw, out in 2 minutes. (just an a1c)
I'm now going to bask in the last sun-shiney hour of this glorious day.
I don't know all the details yet, so I don't know who was at fault. They're all in the hospital, with the apartment owner critical.
Behavorial Biofeedback
Today was gorgeous, mid 60's.
Went in for the 3rd study visit, it took about an hour. I confessed to losing the meter, she said it wasn't a huge deal since I'm a control subject. Control subjects can be hugely irresponsible, and nobody will care. (point of referance- Diabetes Complication and Control Trial) I mean, come on. They might not have known the differances would be SO dramatic, but they probably had an idea that the folks in strict control would turn out better then the folks without...
In research studies, I usually get stuck in the "control" group. This time was no exception, all I have to do for the next 4 months is test. (not use the PDA) The other group will make more money.. sigh.
The endocrinologist, meanwhile, was seated across the office, talking up a blue streak on the telephone. I was expecting acnownal of existance, (a "hello" would have been nice) but she didn't say anything(even after she got off the phone). Must have been having a bad day.
Filled out paperwork for the next hour. In a rare twist of irony, since I'm a control patient, I get twice as much paperwork to fill out!
Next, it was off for bloodwork.
When I finally showed up, the tech asked me what took so long!
It took:
-2 minutes to walk down the hall
-1 minute waiting on elevator
-1 minute down the elevator to the 2nd floor
-4 minute hike to the next elevator
- 1 minute wait, down to the first floor
-7 minute hike to Main Hospital
-3 minute(s) to get up to the 8th floor
-And 2 more minutes off wandering around trying to find the RIGHT section of the
research center(there are two sections, stuck admidst the NICU, obstetrics, and several
other impatient units)
Thats what took so long. Blood draw, out in 2 minutes. (just an a1c)
I'm now going to bask in the last sun-shiney hour of this glorious day.
Tuesday, March 07, 2006
Just another Day
Thursday is the follow-up appt. with neuro-opth.
I had to take my pump off today, and periodically inject Novolog. At work, I was switched to another job, it was very intensive and my pump would have been smashed or worse. Rather then worry about it, I took it off. Towards the end of the day, I got very dizzy and shaky, didn't know whether it was a low, or just my body trying to tell me I'd abused it good and proper that day. (too much caffeine, too much lifting of heavy stuff!) I honestly didn't know- and that was kind of scary. I also didn't have time to take out to check, it was "Crush" time, go-go-go-get-it-finished (or else). As soon as I'd finished, I drank juice. (just to be on the safe side)
Numbers could have been worse...
90,268,70, 347, 135 (hour after work)
That's my day SWAG'ng it!
I had to take my pump off today, and periodically inject Novolog. At work, I was switched to another job, it was very intensive and my pump would have been smashed or worse. Rather then worry about it, I took it off. Towards the end of the day, I got very dizzy and shaky, didn't know whether it was a low, or just my body trying to tell me I'd abused it good and proper that day. (too much caffeine, too much lifting of heavy stuff!) I honestly didn't know- and that was kind of scary. I also didn't have time to take out to check, it was "Crush" time, go-go-go-get-it-finished (or else). As soon as I'd finished, I drank juice. (just to be on the safe side)
Numbers could have been worse...
90,268,70, 347, 135 (hour after work)
That's my day SWAG'ng it!
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